Advice wanted re: Nerve pain

Wish there was an answer, but nerves are nerves seems they have minds of their own

Joe

I went to my Dr on Thurs....not the best report...more to come. He wants me to see a surgeon

Imagine those shocks firing from three locations at once, non-stop for 6-8 hrs. at a time. I know you tried Lyrica Butiki, but I don't think at the time you gave it a fair shot. Well plus you didn't need it, Yet. Those shock's can get a lot worse. I didn't get my first round of shocks till about 3 months after my surgery. I went close to 2yrs. just sucking it up. Under the false belief that it was part of the recovery process. Well it just kept coming. Good luck my friend, when it get's bad you my want to try some ALA, or when it gets really bad you may want to give Lyrica another shot.

Sorry to hear that Butiki

I've been having more nerve pain lately too and I never had it the first 2 years of my injury!

Spinal Cord Injury..damaged nerves....nerve pain...unfortunately innevitable....so we have to look at ways of learning to deal with it..
I remember talking with my consultant in the spinal unit about my nerve pain (burning in my feet) being so much worse at night. He explained that its there all the time but at night its more noticable because we are at rest and our mind isnt focused on anything.

Most of my time i play music..often i can go to sleep listening to music...well it does have to be something relaxing..but it certainly helps

Nerve Pain, its ironic as you can stick pins into my feet and i wont feel anything. Putting a sock on feels like putting my foot into a bath of acid. I have to check bathwater with my elbow as i cant determine the temp with my feet, place a light cotton sheet across my foot and its agony.

Peeps are wired differently and react to meds differently. I have been through the myriad of meds to treat nerve pain, anti-depressants and anti-epileptics all to no avail. Some of the anti-depressants made me depressed, one gave me suicidal tenancies!!!! One of the anti-epileptics spaced me out.

After 2 years of trial and error it was time for the opiates, now i am on a full dose of fentanyl patch cranked up to max dose of 100ug/hr. The consultant is starting me on methadone and reducing the fentanyl. Drawback is I am an opiate addict, GP thought he was being helpful introducing a change but he didn't realise how bad my opiate addiction was, the worst night of my life going through cold turkey, I become anxious just thinking about it, that was a horrible experience. Life is a balance, docs can stop the pain totally but you will be in a drug induced sleep. It all depends how much you want to be involved with life :-)