definitions need to be vaporized ..... labelling, classifying, stratifying ..... what purpose does it serve? The supposed able-bodied purpose.
lonewolf..although nobody like labels they can serve a very good purpose...
For example....Autism...without diagnosis is too complex to deal with for family members without that label. That label opens up a way forward, like a signpost and also a world of understanding and support. Without that label...the difficulties for the family and the individual are to complex to deal with.....so a label can serve good purpose.
Once the label is given, thats it..forget the definition..its only there for practical purpose.
As for myself...im classed as disabled..does that offend me?..errm no......not at all..because i am many things and not a single one can truly define who i am.
Perceptions on what disabled is...we can change by being good role models
disagree ... we MUST treat everyone unequivocally the same ...... with love and compassion.
Thanks Lara, your right and it makes sense in my head. But I just picture running into someone I know and not knowing what to say or how to explain. Most people in my little town think I'm just fine. They don't see the CES part of my life besides the limp. In fact many think I'm just a burden on society, collecting they're hard earned tax dollars.
If that's what they think of you, you can tell them to off!
Oooh DJ.....who moderates my slang talk if i daren to use it... lol naughty you (remember little ones may read Daddy's posts)
lonewolf..although nobody like labels they can serve a very good purpose...
For example....Autism...without diagnosis is too complex to deal with for family members without that label. That label opens up a way forward, like a signpost and also a world of understanding and support. Without that label...the difficulties for the family and the individual are to complex to deal with.....so a label can serve good purpose.
Once the label is given, thats it..forget the definition..its only there for practical purpose.
As for myself...im classed as disabled..does that offend me?..errm no......not at all..because i am many things and not a single one can truly define who i am.
Perceptions on what disabled is...we can change by being good role models
disagree ... we MUST treat everyone unequivocally the same ...... with love and compassion.
No lonewolf...with all due respect....i disagree...we cant treat everyone the same...everyone is different, with different needs...
What we must do is respect everyone equally...promote a non descriminating ethos and celebrate diversity
disagree ... we MUST treat everyone unequivocally the same ...... with love and compassion.
So we MUST treat everyone the same huh lonewolf? What about the real child molesters, rapists, murderers, etc? You want to show them love and compassion too?
Hi everyone I am late in on this post and I know my illness and disability is different from yours. But imo we all should be treated on our own merits. imo all disabled people can not and should not be classed the same and there fore can not be treated the same because we are not the same. Unfortunately and sadly the word disabled to many means only one thing that everyone needs help with every aspect of their life and this is not true.
I am now almost bedridden unless something changes this is a real possibility But if you saw me on my good days you would swear there was nothing wrong with me. and as there is no tests for what I suffer with Fibromyalgia and there is no cure or real treatment we are looked on as an hypochondriac!! at the very least the other words we get called are un printable.
So I say never judge a book by it's cover and treat each person accordingly. But I do think the only way forward is to be your own advocate of our own illness/disability and try and educate those who are willing to listen or nothing will ever change for the better. Oops sorry did I go way off topic? I just feel strongly we should be more open about our needs and expectations. If folks don't know how can we blame them when they don't know how to re act or behave towards us.
Be wise and manage your mobility now and you will save your upright mobility for longer. ~Lara
Excellent advice! I have been using braces and forearm canes because my house is inaccessible and the chair I got after rehab injured my shoulders--too wide and heavy--thus threatening walking and wheeling. In November 2012 I dislocated my shoulder while pulling up bed covers, result of walking too much "on my arms". Doctor recommended 50% minimum mobility in chair to save shoulders. Although I got prescription for ultralight, fitted chair then, it has taken over a year to get my appointment for "wheelchair evaluation" to be measured. During that time Medicare stopped payment for such, so my chances are slim to none for a new custom chair. Since my recent bout of pressure sores on my feet, I must use a wheelchair more like 90%. A lot of the flesh on my heels has been removed, and the best orthotics will not prevent further injury or total loss of walking if I don't respect my new limits. I have been most fortunate to find a used chair that I have adjusted to fit very well, and am learning how to use it best. House is still inaccessible, and I am looking to move--accomplishing this is a daunting task. But with lighter chair I can lift it between rooms, and to porch and off side of porch to ground. I am actually getting stronger by wheeling more and all this lifting. And I can move fast again, which I am really liking! Fortunately I can do standing transfers, and reach for things high in cupboards. My service dog is utterly dismayed that he is no longer doing his job in the house to help me with mobility/balance, so I will retrain him for help with chair and so I can exercise him when we move.
I do not worry if people don't understand why I use different means of getting around. If they ask in confusion, or in true interest, I answer that I choose what is best for my body and to preserve my independence as long as possible. If they make a snide remark, I ask if they would like to trade places with me.
Concerning the original title of this thread, my brain is affected by my disease and sometimes I fear that I add to the misconception that being in a chair means less cognitive function. But since I am usually alone when out and about, people have to deal directly with me!