acrobatinmydreams, Thanks for the lead to bowel information, I found it quite informative and will certainly try and put it to the test. Even a slight improvement would be a step in the right direction in controlling my "sticky toffee" movements.
There is a difference. There are upper motor neuron injuries and lower motor neuron injuries.
I am T12-L3 (26 years ago). I have all the symptoms of CES but am called a T12 spinal cord injury.
I was most recently evaluated and I am now T10 Asia C. There were no Asia scores when I was injured.
Lower motor neuron injuries tend to flaccid which means you can probably push when having a bowel movement, you just can't stop or tighten the anal sphincter.
With much research, they have discovered that there is indeed a huge difference in the two and how they are treated.
It's so interesting to see all the different experiences. I wish I could have such a specific diagnosis like most of the members here, but the closest clinic/hospital with a special SCI center and doctors trained to diagnose and treat SCI, CES, CMS, etc. is over 600 miles away! (That's a 10 hour drive.)
The most recent diagnosis I received was by the one and only doctor in the state who knew much of anything about SCI before meeting me. He said I am functioning as a T10 paraparetic (incomplete paraplegic) with CES & CMS. I am not sure if the CES is complete or not. *shrug*
Not much. My left leg is very weak, and I can't lift it up off the ground very easily. It's like trying to lift 100 lbs with my pinkie! But, yes, I can walk short distances with my walker on days that my nerve pain and/or spasticity isn't out of control!
I understand what you mean Knight,it does make a difference to our understanding to actually know what level and how/where we are exactly injured.
Someone once said to me that they dont believe in labels but then again, i disagree because i think they are important in the aspect of being a signpost and showing a way forward.
I understand what you mean Knight,it does make a difference to our understanding to actually know what level and how/where we are exactly injured.
Someone once said to me that they dont believe in labels but then again, i disagree because i think they are important in the aspect of being a signpost and showing a way forward.
I agree. There are some instances where labels are pointless, like in high school, (lol) but they are helpful when it comes to understanding our function, abilities, which limits can be pushed, and which ones can't be. Finding the word "paraparetic" was very helpful for me because of how many people don't understand what "incomplete paraplegia" means. I get to avoid the game of 20 Questions now thanks to one simple word, and thanks to Google search being built into everyone's mobile! If someone doesn't understand what "paraparetic" means, I just tell them to "Google it" and walk away!
How much of my constipation is due to medication and how much is a product of the Cauda? I can go every other day or so or can go up to several weeks at times. Always very hard (literally and figuratively) and painful passing. Bristol type 1. I'm taking morphine and paracetamol which bind and Lyrica which I understand will be a mild lax. I have prunes for breakie and always eat my fruit. Veggies is a different matter...I'd eat them if they didn't destroy them in the kitchen. Terrible caatering here. I must admit I eat a lot of cheese and dairy. I also have the occasional dose of Movicol. II certainly hope that this is due to the meds as passing hardballs every few days is literrally a pain in the butt. Any advice?
For me, Glycerin suppositories help to convince things to shift, and also give a bit of lubrication - otherwise you're left feeling like you've been fisted by the incredible hulk . . .
Update, I've been getting bags of cashew nuts (125g) and eating 1/3 - 1/2 bag a day for the last week or so in addition to normal meals and the last few movements, after a couple of mega sized and hard ones, have now dropped consistently down from 1 to 3 on the stool chart . . may be worth a try
Post by kilg0retr0ut on Mar 20, 2016 8:35:23 GMT -8
Even when not taking meds it has always been slow going. I used prune juice w/pulp. I have to manual evacuate, the longer it sits it seem the harder and dryer they get. I used to call the first ones putts, like little marbles and feel like gravel. Then after those a couple of times they seem to get bigger, say the size of walnut, I call them nuggs. They then go to minis, 2-3inches, then a few actual turds. Then many times the diameter shrinks and the get the tape worm effect, then the sludge. Then once in a awhile I have this nasty explosion, and end up making a island in the bowl.
In my head I picture the turd shoot, only one side working to push, takes way longer than it should. I do better if I drink lots of water. the funny thing is many times I have no idea anything came out until I look. I also have shot nuggs out they would knock down an intruder. At first I couldn't control the gas at all and many a P.T. paid the price, then it got somewhat better, still noisier than any normal person I'm sure.
Update, I've been getting bags of cashew nuts (125g) and eating 1/3 - 1/2 bag a day for the last week or so in addition to normal meals and the last few movements, after a couple of mega sized and hard ones, have now dropped consistently down from 1 to 3 on the stool chart . . may be worth a try
Good to hear that you've found something that works, hopefully others can benefit from it as well!
Even when not taking meds it has always been slow going. I used prune juice w/pulp. I have to manual evacuate, the longer it sits it seem the harder and dryer they get. I used to call the first ones putts, like little marbles and feel like gravel. Then after those a couple of times they seem to get bigger, say the size of walnut, I call them nuggs. They then go to minis, 2-3inches, then a few actual turds. Then many times the diameter shrinks and the get the tape worm effect, then the sludge. Then once in a awhile I have this nasty explosion, and end up making a island in the bowl.
In my head I picture the turd shoot, only one side working to push, takes way longer than it should. I do better if I drink lots of water. the funny thing is many times I have no idea anything came out until I look. I also have shot nuggs out they would knock down an intruder. At first I couldn't control the gas at all and many a P.T. paid the price, then it got somewhat better, still noisier than any normal person I'm sure.
Damn, that's quite the description of your bowel routine