Post by kilg0retr0ut on Mar 5, 2015 8:00:55 GMT -8
I've read here that Truwreck and Andrew work full time jobs. I'm wondering how many others are pulling this off. How many people with Ces are working and what jobs do you perform?
Good question kilg0retr0ut although I dont do my usual job that I did pre CES but im real busy with other projects so i work lots but its on line teaching instead.
Post by kilg0retr0ut on Mar 13, 2015 8:17:45 GMT -8
It depends on what your left with, well and I guess what you started with. I read in some article that only 20% of people with CES work in some fashion. Collect a check kind of work. When I said started with I mean if you where a computer programmer you would be more qualified and have better potential than a guy who cleaned carpets. So education would be a part. Physical residuals would be another part. Job market and age. Amount of meds taken. I know a guy full time in a chair that works as a day trader. He takes Methadone and doe's well. Without it he may not be able to work. How much medication are you willing to take to work?
Just wondering how people who work full time manage it.
Thankyou for clarifying kilg0retr0ut and yes its a real interesting and valid point. Il explain a little from my experience with my work.
In regards to qualifications, i am qualified to teach children in their first year at school only and children with special educational needs. I have toyed with the option of returning to school to teach but the local school i worked at isnt quite accessible enough and the time isnt right just yet.
So i decided to study and learn Tarot reading and this would allow me the option to work on line if i chose to.
Some may have opinions on the skill that i developed but i will ask anyone to reserve judgement as any pre conceptions are not representational of the facts. The study of Tarot is lifelong and indepth with astrology, numerology and chemistry also.
I am a pretty good reader and i am now teaching students of Tarot also. I enjoy it thoroughly and it allows me to choose how and when i work. I have written 4 E books on the subject and have had several offers of partnerships.
We can find a way forward with employment if we have the resources but it isnt easy. Going out to work is a very different scenario but very possible too if challenges can be overcome.
I do feel more should and can be done to enable more people back to work or some sort of focus because i for one, need my mind to be busy, i need focus. I simply could not spend my days 'existing' because i need purpose.
Sadly, if pain is a huge factor then here is a major problem, pain management is essential and i do feel the 'professionals' can be doing a better joint effort if work as a team. all with an end aim of resolving issues that prevent many people with CES/ SCI from returning to work.
Since you mentioned me I guess I can answer, and I voted too.
Job: Computer support (Very highly specialized and government clearance is required so I can't get any more specific or I can go to prison for a very long time).
I take methadone (less than 20 mg daily) and ALA (600 mg daily) as the main parts of my pain meds.
Injuries are C5-C6-T1 and L3-L4-L5-S1 all herniated or damaged. Pain is anywhere from 2 though 11 on a 1 to 10 scale. The days when it's 9 or higher I can't get out of bed without help. Even then is can be excruciating. Most days are 2 though 6 and I can ignore almost anything under 5 enough to do my job.
I use music and meditation to manage pain. If I didn't I would need much higher doses of pain meds to function.
I have partial leg paralysis and I can only hobble about 30 feet with AFOs and forearm crutches or walker before my legs quit and I come crashing down. I use a wheelchair most of the time so I can spread out the energy and reduce pain to last the entire day of work, plus a little more when possible.
I was a diesel mechanic in 1991 when I first injured my lower back. I went to school with the help of a Pell grant and student loans. Without financial assistance I would not have been able to work..
I am little over 40 now and my doctor wants to put me on full disability in the next year or 2 so I am doing everything I can to payoff any debts I have acquired before that happens. Each year I have had to take more sick days than the previous year due to pain. Right now I don't get any paid vacation so sick days have a direct impact on financial stability. Very soon I will have my debts low enough the disability pay I do get will cover most of them. With Social Security Disability I will have enough every month not to worry about the basics.
Ah truwrecks,you reminded me that i didnt mention pain meds. The most effective form of pain relief that i have found that works for me is Ibrufen combined alternatively with paracetamol.
They work so well together but im not sure if the names are different elsewhere.
Post by kilg0retr0ut on Mar 16, 2015 6:32:14 GMT -8
Acetaminophen (Tylenol) in the states. Truwrecks, sounds tough. You must have an understanding employer. Thanks for the reply, it gives me a better understanding of what price you pay to work.
Acetaminophen (Tylenol) in the states. Truwrecks, sounds tough. You must have an understanding employer. Thanks for the reply, it gives me a better understanding of what price you pay to work.
My current employer is very good about my disabilities and related complications. My manager has injured his C6 disc several years ago. He said it took him 6 months to be able to walk again and use his hands. He has first hand knowledge of the effort and pain it takes to work full time. If he didn't have that experience I'm not sure he would understand.