Agree many doctors miss it initially and then misdiagnose it after. Could it be that they know they committed malpractice?
Doctors will not want to aknowledge CES if they have knowlingly missed it and they sure won't tell you that they have failed in your duty of care, self preservation seems to kick in.
Good morning. The discussion here conforms to what I have also read to be the standard stats of rarity. 2-6% of the world population at any given time is the most common statement I have seen on multiple sites. I will be happy to cite these in a subsequent post after some sleep. I can only assume this number fluctuates with the current birth and death rates at the time of the sample. That is solely my deduction, however. The figure I obtained yesterday is 152 million out of a 7.6 billion population, taken from simple Google searches out of my own curiosity. I am new to this forum, but thank you for allowing me to participate. I am 2 years CES post-op with significant nerve damage, spinal implant and other after effects. My career is over, but I am thankful daily that I am still able to walk. I am also terrified daily that this will progress to the worst case. Therefore, I resolved to the fact that I do need the company, input and collaboration with others that understand. Again, thank you for letting me be a part of this.
Agree many doctors miss it initially and then misdiagnose it after. Could it be that they know they committed malpractice?
Could it be that they intentionally miss it initially?
After having two major accidents they now say I have had CES before.
This childish behaviour makes it very difficult to get legal compensation for suffered damage. (CES has never been diagnosed, although I had spine surgery initially).
By the way, thank you for your wonderful website, levinelaw. There is a lot of information about personaly injury. After all thanks to this information I found a lawyer in Austria nearby where I use to live.
Agree many doctors miss it initially and then misdiagnose it after. Could it be that they know they committed malpractice?
Could it be that they intentionally miss it initially?
After having two major accidents they now say I have had CES before.
This childish behaviour makes it very difficult to get legal compensation for suffered damage. (CES has never been diagnosed, although I had spine surgery initially).
By the way, thank you for your wonderful website, levinelaw. There is a lot of information about personaly injury. After all thanks to this information I found a lawyer in Austria nearby where I use to live.
Personal injury is very "specific".
I can't see how intentionally missing it would be fathomable. Most physicians I've encountered would consider CES to be a "Holy Grail" discovery. Most have never encountered it, and have to research to become familiar again when I'm treated outside of my normal doctors, such as an ER visit on vacation or travel for work.
However, seeing that we are from separate geographic locations, I can't speak to the insurance or other monetary factors that may make something this significant a bad thing to diagnose for other areas
I certainly hope you are able to connect the dots with a personal injury pursuit. This condition is something that will need correct diagnosis and, if warranted, the award received would be very helpful in reorganizing the necessary adjustments that may be required from this life altering experience.
Hi, I'm new to this site and so glad I found this page. I feel like I have been alone with my problems all my life and have to say no gp has ever been able to offer advice and most don't know anything about ces. I have a huge spinal lipoma wrapped around my spinal cord. Its been there since I was 8 years old , possibly longer than that and all my life caused me problems and horrible back pain, but mow I'm in my 50's I suffer with bladder incontinence, CES, bowel paralyses, back pain (been on MST for 12 years) but the constipation is worst. My bowels just don't work and despite raking every laxative I can the only thing I can do is use picolax occasionally to clear me out. So any other long term sufferers have any advice on how to function ralativly normally ? My gp has said I have only 2 options left-come off morphine which isn't an option, or take the impaction dose of movicol on a weekly basis to keep my stool liquid. But with not being able to feel when I need to go , means I won't be able to leave the house and have no life. Ideas?
I think that developing CES is still uncommon but doctor's are still misdiagnosing it and really they shouldn't be. Everything comes down to money and time and knowledge. I think it is probably more rare for a general practitioner to actually recognise and diagnose CES, they just don't expect to come across it and in all fairness, most doctors will never comes across it. That does not mean they are excused from recognising CES.
Ahhh reading this excited me! I was diagnosed with CES in 2012, I shock doctors when giving my medical history. Its nice to have finally found somewhere & people who have experienced what I have.