Inspired Spinal Cord Injury Support Forum

Lαrα
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Increased Twitches! Jul 12, 2015 3:35:13 GMT -8

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Post by Lαrα on Jul 12, 2015 3:35:13 GMT -8

Hey there guys, im just wondering if you are experiencing this. I have found that over time, my legs seem a more jumpy and twitchy when im inactive. They may do it other times but I just dont notice.

I often think that they go off on their own tangent now and then for a few days although the latest right leg jump is still there lol

It isnt painful, in fact, as weird as it may sound, it actually amuses me lol But seriously, the nerve pain and twitches etc have definitely increased.

kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	Increased Twitches! Jul 12, 2015 8:24:52 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Jul 12, 2015 8:24:52 GMT -8 Hope the pain and twitches settle for you Lara.
	L4/5 CES

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Increased Twitches! Jul 12, 2015 13:55:24 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Jul 12, 2015 13:55:24 GMT -8 Thankyou kilg0retr0ut,

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Increased Twitches! Jul 12, 2015 21:40:05 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Jul 12, 2015 21:40:05 GMT -8 Lαrα I'd say that without exercise my muscles tighten up and get more spastic so yeah! A bit of good stretching and working out helps though

hobbit Advanced Member Posts: 384 Post Likes Received: 374 Date Joined: October 2013 Injury: Incomplete T12 burst # Date Injured: May 2010 Member is: Offline Send PM	Increased Twitches! Jul 13, 2015 1:53:15 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by hobbit on Jul 13, 2015 1:53:15 GMT -8 Lara . . . ditto

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Increased Twitches! Jul 13, 2015 7:31:16 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Jul 13, 2015 7:31:16 GMT -8 Jul 13, 2015 1:53:15 GMT -8 hobbit said: Lara . . . ditto hobbit they are so so so so so so so so so so so sooooooooooooooooooooooooooooooooooooooooooooooooooooooo annoying DJ, i think stretching will be good, being 5'2 is ridiculous!
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DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Increased Twitches! Jul 13, 2015 7:56:03 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Jul 13, 2015 7:56:03 GMT -8 Jul 13, 2015 7:31:16 GMT -8 Lαrα said: DJ, i think stretching will be good, being 5'2 is ridiculous! What do you mean? Is it harder to stretch? Lol

cbdives Advanced Member Posts: 735 Post Likes Received: 490 Date Joined: November 2013 Injury: Peripheral Neuropathy Date Injured: Progressive Member is: Offline Send PM	Increased Twitches! Jul 14, 2015 12:38:15 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by cbdives on Jul 14, 2015 12:38:15 GMT -8 My feet like to cramp...no pain just annoying
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Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Increased Twitches! Jul 14, 2015 13:30:20 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Jul 14, 2015 13:30:20 GMT -8 Mine too cbdives,

fishkybizniz
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Increased Twitches! Jul 21, 2015 14:58:24 GMT -8 via Inspired Mobile

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Post by fishkybizniz on Jul 21, 2015 14:58:24 GMT -8

I'm glad I turned into this thread Laramie. I need to report my face twitching to my doctor. Only happens right before I sleep. New are increased jolts followed by numbing in the arms and hands. I don't know what it means. Am I getting better and these are the brain do a spot checks or a sign the condition is getting worse? Recently I was diagnosed adrenal insufficiently. My adrenal fatigue is attributed to all the shock my body has been through (spasticity and drugs). They are supplementing but it only works on the day to day, not if I'm stressed. I have a bladder infection and sure enough my blood pressure plummeted...because my body can't raise cordisol on it's own. I'm calling the doctor to see if they can give me a self guided road map. I already know to drop my blood pressure med, and took an extra dose of cordisol but don't know if I do both and how long. Lara, have you had the twitching all along or is this new?

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DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Increased Twitches! Jul 21, 2015 15:06:35 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Jul 21, 2015 15:06:35 GMT -8 fishkybizniz it'd definitely be a good idea to find out from the doctor what the cause of that could be. Also, bladder infections suck! Hope you can get rid of it quick

fishkybizniz
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Increased Twitches! Jul 21, 2015 19:02:06 GMT -8 via Inspired Mobile

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Post by fishkybizniz on Jul 21, 2015 19:02:06 GMT -8

You got that right DJ.,Nerogenic bladder infections are in a league of their own. They really set me back. I'm so wiped I can't get air to talk and all I can do to eat. It's the low blood pressure. I'm 85/53...but the pulse rate of 84. Right now I should be hanging upside down like a bat. ***humph!***

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Lαrα
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Increased Twitches! Jul 22, 2015 2:32:03 GMT -8

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Post by Lαrα on Jul 22, 2015 2:32:03 GMT -8

fishkybizniz, i seem to develop new twitches all the time, its very annoying. I am lower motor neurone, so technically speaking, in respect of spasticity, i should not have spasms but I think that this needs to be re thought by the medical profession.

fishkybizniz
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Increased Twitches! Jul 22, 2015 10:25:01 GMT -8 via Inspired Mobile

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Post by fishkybizniz on Jul 22, 2015 10:25:01 GMT -8

You're right! The medical professionals haven't really defined the collateral damage that comes with a spinal cord injury. I don't know anything about medical research, but I do know my cousin's daughter works in medical research and far ahead of anything tangible to us now. I'm going to ask if she can find out where they are and how soon we could see it offered to the public. It's not a straight line in research. Some of her work is estimated to be used 25yrs from now. I would love to see a balance between modern medicine and Nature's medicine. I noticed Dr. Oz is working on that through his TV show. He recommends "Natural remedies" if researchers can confirm to their effectiveness. Now that I've said this, couldn't hurt to search his website and see if any of his shows have addressed spinal cord injuries.

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fishkybizniz Member Posts: 174 Post Likes Received: 147 Date Joined: June 2014 Injury: C4,5&6 Date Injured: 1987/.. diagnosed 11/2013 Member is: Offline Send PM	Increased Twitches! Jul 22, 2015 10:30:22 GMT -8 via Inspired Mobile Quote Select Post Deselect Post Link to Post Back to Top Post by fishkybizniz on Jul 22, 2015 10:30:22 GMT -8 Lara, I forgot to ask... are you still getting better/stronger?

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Increased Twitches!

Post by Lαrα on Jul 12, 2015 3:35:13 GMT -8

Post by kilg0retr0ut on Jul 12, 2015 8:24:52 GMT -8

Post by Lαrα on Jul 12, 2015 13:55:24 GMT -8

Post by DJ on Jul 12, 2015 21:40:05 GMT -8

Post by hobbit on Jul 13, 2015 1:53:15 GMT -8

Post by Lαrα on Jul 13, 2015 7:31:16 GMT -8

Post by DJ on Jul 13, 2015 7:56:03 GMT -8

Post by cbdives on Jul 14, 2015 12:38:15 GMT -8

Post by Lαrα on Jul 14, 2015 13:30:20 GMT -8

Post by fishkybizniz on Jul 21, 2015 14:58:24 GMT -8

Post by DJ on Jul 21, 2015 15:06:35 GMT -8

Post by fishkybizniz on Jul 21, 2015 19:02:06 GMT -8

Post by Lαrα on Jul 22, 2015 2:32:03 GMT -8

Post by fishkybizniz on Jul 22, 2015 10:25:01 GMT -8

Post by fishkybizniz on Jul 22, 2015 10:30:22 GMT -8

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