bladder concerns re. cathing & wearing comdom cath.

Hi mom101, and a big welcome. I'm sure that one of our male folk will be along soon. But seeing that you are brand new here, I just wanted to welcome you.

Thanks Nathanau

Regarding taping it on too tightly that's a mistake I made early on. Like your son, I had a couple condom caths fall off and I thought that was the solution. When I would take it off at the end of the day, the friction eventually caused sores at the base of my penis. That, incidentally, was one of the few times I was thankful for the diminished sensation.  Here's what I suggest: (1) try a few different brands of condom catheters and make sure they fit properly (I really like the Rochester "spirit" caths) (2) use smith and nephew skin prep wipes they'll help keep the cath on. 

As for the "sick" feeling your son gets, that's troubling. I'm sure you've heard of autonomic dysreflexia. It sounds as if your son might be experiencing it. I have two thoughts on what might be causing it. First, it might be the fact that he's taping on the caths too tightly. Second, his bladder isn't draining completely while he's wearing it. 

Whatever the case may be, he needs to go see a urologist (you should request a urodynamics test). Also, before you go to the urologist, perhaps you should try having him tape it on more loosely and see if that helps. 

Just my 2¢

thanks for all the feed back.  
to start my son is 32 now.  He never did go to a urologist and we just picked out a comdom cath on our own.  His problem is his urine trickles out when wearing the cath.  so I think, as does my son, that is why he feels sick after wearing it for hours.

Now I have to work on getting him to see the right Dr.
 My son is moving on with life now and has a girlfriend!!!!  I could not be happier.  I, we want to get to a place where my son can work and not have to worry about this problem.
My son started out doing volunteer work and then worked part-time until the job moved away.
  Now he wants to have a place on his own and will need money to do that,  $460.00 a month is not enough to do anything. I do not know how people make it on total disability mom101,vintage,kilg0retr0ut,nathanau,delboy,mikeq,stephend,
I want to thank everyone of you for responding. It is hard to share such private information and I am so grateful this site is here for all of us.

mom101, I read your post as having an 11yo son with a spinal injury. My son is 9, so any advice I give is moot.