How's South Carolina for a Quad? Or anywhere?

welcome miamigrl71, it sounds like you should stay right where you are, I don't believe anyone has the care you have. my suggestion don't with it because you'll lose it. I live in CA and I get no caregiving and have to pay a lot for my supplies.

I don't have much either, live off ssi benefits, lots of debt in student loans, healthcare in America is pretty horrible considering we should have at least close to the best.

Sam, it may be possible to get your student loan forgiven by sending them a letter that you obtain from social security saying that you are permanently completely disabled. But be sure to deal directly only with the legitimate fafsa.ed.gov website, not the jillion of other people who want to "reduce your debt"...and who will call you for the rest of your life if you ever talk to them.

The hours of aide care you get are (most likely) through a Medicaid HCBS waiver. Different states use and prioritize the waivers differently, and for many states there’s a waiting list for services - you can qualify all the ways there are but you get no services until either your state increases Medicaid $, the Feds increase Medicaid funding or attrition - enough people no longer need services that it becomes your turn. I’ve heard of waits as long as 11 years. It’s worth spending some time on the phone to find out what and how you would qualify for in SC or wherever.

Also, I suggest that you look into regional paratransit wherever you go. Miami and Dade and Broward counties actually have a lot of public transportation which means paratransit is pretty widely available. The rural southeast and southwest? Not so much.

I agree Vintage........I likely won't be going .........My brother for some reason wants to move there and I'd love out of hurricane alley but theres the cold, no medical marijuana in sc & I can't risk losing my benefits or access to great health care esp. since he's looking not at a central city. 

FWIW - some states (ie, where I am) don’t have waiting lists for HCBS services, once you’re eligible - but you do start over at the bottom of the list. Medical University of SC is kind of the hub for SCI stuff in the state.

Vintage, did the dissolution of DARS affect services/service coordination? I know the folks I know in and around Houston and Katy were concerned.