I do understand every medication has side affects. If you are able to stop taking Baclofen that’s great. There are some of us that would not be able to handle the spasticity we would be experiencing without taking Baclofen. I take 25mg 3 times a day and still deal with spasticity. It would be nice if taking Kratom would allow me to be able to lower my dose of Baclofen.
I took cymbalta when I was first injured... I did fine on cymbalta but getting off cymbalta was very difficult. I had severe mood swings that were not like me, two weeks later I was back to normal. There are class action law suits resulting from stopping this medication. I wasn’t on it long. It was weight neutral and probably helped with pain but not with spasms.
I believe I spoke to you about zonisamide before on another thread ... it helps with nerve pain but I don’t believe I said it helps with spasticity as well. I don’t feel the need for baclofen with the zonisamide. It might be worth a mention.
I was just prescribed Cymbalta form a neurologist. I started it Thursday evening. So I’ve taken it twice. My muscles seem to be tighter and I am in more pain than I was before I started taking it. Has anyone experienced this?
Does anyone have severe muscle tightness and more nerve pain when they are in bed? My body use to relax and feel great when I laid down but for the last year it is getting more and more painful when lying down.
Hi I suffer with severe tightness,and only in the last year it's agony to lie down and sleep if I try and lie on my side the pain is awful I try and get back on my back it feels like my hips have all locked I end up getting up about 4 am and sit on sofa and try and relax I'm tired all the time , I take baclofen to help but does know good I don't understand why it's got so bad I'm last year when I lie down ,dr's don't understand either it's so frustrating .. Mimm
mimm, Hi Mimm. Have you read the earlier posts in this thread about sleeping position and stretching? Certainly worth trying if you haven't already. Nothing worse than not getting enough sleep - it makes everything else so much more difficult to deal with. Hope you find the right things to help you.
mimm, Hi Mimm. Have you read the earlier posts in this thread about sleeping position and stretching? Certainly worth trying if you haven't already. Nothing worse than not getting enough sleep - it makes everything else so much more difficult to deal with. Hope you find the right things to help you.
Hi moco Yes tried streching and I'm really reading things on here to get some more ideas ,it is exhausting , especially when after a few days it hits you ,you feel sick and awful ..
mimm , Hi Mimm. Have you read the earlier posts in this thread about sleeping position and stretching? Certainly worth trying if you haven't already. Nothing worse than not getting enough sleep - it makes everything else so much more difficult to deal with. Hope you find the right things to help you.
Hi moco Yes tried streching and I'm really reading things on here to get some more ideas ,it is exhausting , especially when after a few days it hits you ,you feel sick and awful ..
Hope you find something works for you mimm. Spasticity and muscle tightness is exhausting and really hard to deal with and little sleep makes it all so much worse. . Peter can walk but he is weak especially on his left side. The tightness that develops after exercise doesn't go away as it should after a few days. So he can only do a little at a time - can't push himself too much as it's counter productive. If there was a way of getting rid of the muscle tightness and spasticity he would be able to do so much more. It has improved over the last 5 plus years but symptoms ramp up once in a while - sometimes for a discernable reason (too much exercise, cold, bad positioning etc) and sometimes we have no idea..............
I was just prescribed Cymbalta form a neurologist. I started it Thursday evening. So I’ve taken it twice. My muscles seem to be tighter and I am in more pain than I was before I started taking it. Has anyone experienced this?
Does anyone have severe muscle tightness and more nerve pain when they are in bed? My body use to relax and feel great when I laid down but for the last year it is getting more and more painful when lying down.
Hi I suffer with severe tightness,and only in the last year it's agony to lie down and sleep if I try and lie on my side the pain is awful I try and get back on my back it feels like my hips have all locked I end up getting up about 4 am and sit on sofa and try and relax I'm tired all the time , I take baclofen to help but does know good I don't understand why it's got so bad I'm last year when I lie down ,dr's don't understand either it's so frustrating .. Mimm
bre,mimm,moco, I sure wish I knew why my body has started to feel this way when I lay down too. I have been to a few GP,s to try and find one that actually seems to want to try and help me. I haven’t found one yet that doesn’t look at me like I have two heads when I explain what’s happening. When I asked my GP that I have now to send me to a neurologist he asked where I was having nerve pain and I told him everywhere. He told me it was impossible for me to have it everywhere and he would look like an idiot if he put down that I had it everywhere. When I seen the neurologist he told me my GP had written that I had tingling in my feet. The neurologist said I was not the first person to experience nerve pain everywhere. My ribs even hurt sometimes.
I keep reading about stretching and tell myself I need to start stretching more but I just can’t get into stretching 2 or 3 times a day. I was never one to stretch or exercise before my accident. However I do 1 1/2 kilometres a day on my Physio Step and will increase that weekly.
Now that I am not taking that cymbalta I will go back to my GP and ask him to change my 10mg of Amitriptyline to a little hire dose of Nortriptyline. Apparently that one causes less weight gain. I am also struggling with severe weight gain because of medication and less mobility. The Amitriptyline was helping a lot but it’s been a year since I started it and like all meds I need to now higher my dose. I do recommend Amitriptyline or nortriptyline for bed time.
I have read on here that people seem to think Baclofen is suppose to help with nerve pain. Is Baclofen not mostly used for spasm?
I have told a lot of my family that I feel as though my hips are out of place. I feel them cracking and I have severe nerve pain in them at times.
i also take CBD oil and that is suppose to help with inflammation which we all have because of our injuries. I think it is helping some and I have taken Vintage’s advice and order some kratom.
Hi I suffer with severe tightness,and only in the last year it's agony to lie down and sleep if I try and lie on my side the pain is awful I try and get back on my back it feels like my hips have all locked I end up getting up about 4 am and sit on sofa and try and relax I'm tired all the time , I take baclofen to help but does know good I don't understand why it's got so bad I'm last year when I lie down ,dr's don't understand either it's so frustrating .. Mimm
bre ,mimm ,moco , I sure wish I knew why my body has started to feel this way when I lay down too. I have been to a few GP,s to try and find one that actually seems to want to try and help me. I haven’t found one yet that doesn’t look at me like I have two heads when I explain what’s happening. When I asked my GP that I have now to send me to a neurologist he asked where I was having nerve pain and I told him everywhere. He told me it was impossible for me to have it everywhere and he would look like an idiot if he put down that I had it everywhere. When I seen the neurologist he told me my GP had written that I had tingling in my feet. The neurologist said I was not the first person to experience nerve pain everywhere. My ribs even hurt sometimes.
I keep reading about stretching and tell myself I need to start stretching more but I just can’t get into stretching 2 or 3 times a day. I was never one to stretch or exercise before my accident. However I do 1 1/2 kilometres a day on my Physio Step and will increase that weekly.
Now that I am not taking that cymbalta I will go back to my GP and ask him to change my 10mg of Amitriptyline to a little hire dose of Nortriptyline. Apparently that one causes less weight gain. I am also struggling with severe weight gain because of medication and less mobility. The Amitriptyline was helping a lot but it’s been a year since I started it and like all meds I need to now higher my dose. I do recommend Amitriptyline or nortriptyline for bed time.
I have read on here that people seem to think Baclofen is suppose to help with nerve pain. Is Baclofen not mostly used for spasm?
I have told a lot of my family that I feel as though my hips are out of place. I feel them cracking and I have severe nerve pain in them at times.
i also take CBD oil and that is suppose to help with inflammation which we all have because of our injuries. I think it is helping some and I have taken Vintage’s advice and order some kratom.
Hello. Just to be clear - it is my husband who has the SCI but he isn't into forums etc. We have worked together every step so although I am happy to pass on what we have learned works for him - it is second hand/observed info . Re baclofen - yes it is for spasticity (Amytriplyline and Diazapam help spasticity too) but for some people, Peter included, spasticity and increased muscle tone also trigger his nerve pain (and yes he occasionally feels like it is "everywhere" - read Tetra's earlier description of it sometimes feeling like it is affecting her teeth). So reducing spasticity helps alleviate nerve pain indirectly for him. Not sure whether this is so for everyone. Re the pain in your hips. Peter has recently had an increase in his muscle tone and pain levels mostly around his left hip, groin and knee. He has an appointment for an MRI scan to check no further cord deterioration (he has cervical cord thinning/myelomalacia from stenosis). He also has an appointment with an orthopedic specialist to check whether the increase in pain is due to hip, knee and/or lower spine arthritis (increased pain also increases his muscle tone). Physios think this is the more likely culprit. Have you had that checked out - your description of "cracking" could be arthritis? Cortisone injections etc can help. Also - re the stretching. I know it's hard to think about any increase in movement when everything is hurting but maybe your therapist can give you a series of gentle targeted stretches that will help. I know Peter gets enormous relief from gentle stretching. It can be done from sitting and lying down. Sometimes increased exercise can actually aggravate his muscle tone/spasticity. If you don't have a therapist there's lots of stretching advice on the internet. This leaflet designed for people with MS has some good ones www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Brochure-Stretching-for-People-with-MS-An-Illustrated-Manual.pdf Peter has some CBD oil but not started taking it yet. We are reading good anecdotal evidence that it helps and also some good "proper" research evidence. Kratom sounds interesting but as it is illegal here in the UK he won't be able to try that. Hope you find the right combination of things to help you.
Hi I suffer with severe tightness,and only in the last year it's agony to lie down and sleep if I try and lie on my side the pain is awful I try and get back on my back it feels like my hips have all locked I end up getting up about 4 am and sit on sofa and try and relax I'm tired all the time , I take baclofen to help but does know good I don't understand why it's got so bad I'm last year when I lie down ,dr's don't understand either it's so frustrating .. Mimm
bre,mimm,moco, I sure wish I knew why my body has started to feel this way when I lay down too. I have been to a few GP,s to try and find one that actually seems to want to try and help me. I haven’t found one yet that doesn’t look at me like I have two heads when I explain what’s happening. When I asked my GP that I have now to send me to a neurologist he asked where I was having nerve pain and I told him everywhere. He told me it was impossible for me to have it everywhere and he would look like an idiot if he put down that I had it everywhere. When I seen the neurologist he told me my GP had written that I had tingling in my feet. The neurologist said I was not the first person to experience nerve pain everywhere. My ribs even hurt sometimes.
I keep reading about stretching and tell myself I need to start stretching more but I just can’t get into stretching 2 or 3 times a day. I was never one to stretch or exercise before my accident. However I do 1 1/2 kilometres a day on my Physio Step and will increase that weekly.
Now that I am not taking that cymbalta I will go back to my GP and ask him to change my 10mg of Amitriptyline to a little hire dose of Nortriptyline. Apparently that one causes less weight gain. I am also struggling with severe weight gain because of medication and less mobility. The Amitriptyline was helping a lot but it’s been a year since I started it and like all meds I need to now higher my dose. I do recommend Amitriptyline or nortriptyline for bed time.
I have read on here that people seem to think Baclofen is suppose to help with nerve pain. Is Baclofen not mostly used for spasm?
I have told a lot of my family that I feel as though my hips are out of place. I feel them cracking and I have severe nerve pain in them at times.
i also take CBD oil and that is suppose to help with inflammation which we all have because of our injuries. I think it is helping some and I have taken Vintage’s advice and order some kratom.
Hi I also feel like my hips are out so I started going to chiropractor,some won't touch a spinal injury person ,but the one i found he's years experience and I have to admit it is helping ,before I went I would hear all sorts of cracks coming from my back and hips now after a couple of sessions it's feeling good ,in fact I'm going today I would recommend it if Ur doctor ok with it , I'm still not fixed but feel I found someone who totally understands what I'm saying and he will say does this blah blah blah happen when I do such a thing , so fingers crossed it rids me of pain !!
bre ,mimm ,moco , I sure wish I knew why my body has started to feel this way when I lay down too. I have been to a few GP,s to try and find one that actually seems to want to try and help me. I haven’t found one yet that doesn’t look at me like I have two heads when I explain what’s happening. When I asked my GP that I have now to send me to a neurologist he asked where I was having nerve pain and I told him everywhere. He told me it was impossible for me to have it everywhere and he would look like an idiot if he put down that I had it everywhere. When I seen the neurologist he told me my GP had written that I had tingling in my feet. The neurologist said I was not the first person to experience nerve pain everywhere. My ribs even hurt sometimes.
I keep reading about stretching and tell myself I need to start stretching more but I just can’t get into stretching 2 or 3 times a day. I was never one to stretch or exercise before my accident. However I do 1 1/2 kilometres a day on my Physio Step and will increase that weekly.
Now that I am not taking that cymbalta I will go back to my GP and ask him to change my 10mg of Amitriptyline to a little hire dose of Nortriptyline. Apparently that one causes less weight gain. I am also struggling with severe weight gain because of medication and less mobility. The Amitriptyline was helping a lot but it’s been a year since I started it and like all meds I need to now higher my dose. I do recommend Amitriptyline or nortriptyline for bed time.
I have read on here that people seem to think Baclofen is suppose to help with nerve pain. Is Baclofen not mostly used for spasm?
I have told a lot of my family that I feel as though my hips are out of place. I feel them cracking and I have severe nerve pain in them at times.
i also take CBD oil and that is suppose to help with inflammation which we all have because of our injuries. I think it is helping some and I have taken Vintage’s advice and order some kratom.
Hello. Just to be clear - it is my husband who has the SCI but he isn't into forums etc. We have worked together every step so although I am happy to pass on what we have learned works for him - it is second hand/observed info . Re baclofen - yes it is for spasticity (Amytriplyline and Diazapam help spasticity too) but for some people, Peter included, spasticity and increased muscle tone also trigger his nerve pain (and yes he occasionally feels like it is "everywhere" - read Tetra's earlier description of it sometimes feeling like it is affecting her teeth). So reducing spasticity helps alleviate nerve pain indirectly for him. Not sure whether this is so for everyone. Re the pain in your hips. Peter has recently had an increase in his muscle tone and pain levels mostly around his left hip, groin and knee. He has an appointment for an MRI scan to check no further cord deterioration (he has cervical cord thinning/myelomalacia from stenosis). He also has an appointment with an orthopedic specialist to check whether the increase in pain is due to hip, knee and/or lower spine arthritis (increased pain also increases his muscle tone). Physios think this is the more likely culprit. Have you had that checked out - your description of "cracking" could be arthritis? Cortisone injections etc can help. Also - re the stretching. I know it's hard to think about any increase in movement when everything is hurting but maybe your therapist can give you a series of gentle targeted stretches that will help. I know Peter gets enormous relief from gentle stretching. It can be done from sitting and lying down. Sometimes increased exercise can actually aggravate his muscle tone/spasticity. If you don't have a therapist there's lots of stretching advice on the internet. This leaflet designed for people with MS has some good ones www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Brochure-Stretching-for-People-with-MS-An-Illustrated-Manual.pdf Peter has some CBD oil but not started taking it yet. We are reading good anecdotal evidence that it helps and also some good "proper" research evidence. Kratom sounds interesting but as it is illegal here in the UK he won't be able to try that. Hope you find the right combination of things to help you.
Yes I know it is your husband that has the injury. Being new here takes some time to remember names and what they’ve said in previous threads.That sounds about right that spasticity will cause nerve pain and light stretches just may be the way to go. Thanks
I’m not sure if there was any confusion regarding my post on baclofen treating nerve pain. Baclofen is not used to treat nerve pain. The medicine I take zonisamide is for treating nerve pain but it also helps with spasticity. It’s main purpose is for seizures but it has been used off label to treat migraines, nerve pain, spasms and obesity. That being said it has many side effects as so many medicines do. It is similar to topamax but my spasticity came back on topamax. If I sound like an advertisement for this medicine I don’t mean to... I hate taking any medication! It’s all I’m on and I would love not to be on it!!!
My right hip has degenerative arthritis. I think that adds to my spasticity in the right leg. I’m not sure it is severe yet as the mri did not indicate it was and I do not have much pain. (I’m hyper sensitive on that side) However, I have noticed significant decline in movement through that hip!