Post by wallflower on May 28, 2018 18:29:37 GMT -8
I've been considering getting botox for my bladder but before doing it my urogynecologist is having me try different medication. I was taking oxybutin for many years and it stopped working me, plus I didn't like the side effects. I stopped taking medication for my bladder and was working with a pelvic floor therapist to strengthen my pelvic floor muscles. We focused on kegels and training my bladder. Because I retain urine and I don't catheterize after everytime I pee I end up overflowing and leaking. My urodynamics showed that my bladder is able to hold about 450 but I got the first urge at about 120 and the urges come on very strong. Because my pelvic floor strength has improved I was able to hold a full bladder without leaking before finally being able to pee only 200ml on my own. My urogynecologist was happy with my bladder capacity and doesn't really want to give me botox to stretch it out to hold 600ml and is hopeful that either the vesicare or myrbetriq will help with the spasms and catheterize more times a day. I don't like the side affects of vesicare and I'm only on my 4th day of myrbetriq. So far with the myrbetriq I'm not experiencing any bothersome side effects and definitely less spasms but I notice that my urges are still very strong. I'm wondering if anyone on botox still experiences strong urges when they feel they have to pee or lost the feeling to have to go. Botox is supposed to relax the bladder and it scares me to lose the ability to feel the urge to pee. As a T12 paraplegic I value every sensation I still have but I also need to do something about my bladder situation. I hope you can share your experiences with botox, Thanks!
Post by meesaclaire on May 30, 2018 15:43:16 GMT -8
I have had botox and can highly recommend it. I didn't need any medication after i had the procedure. It's quite common to have it here in NZ as a way of managing your bladder. I think normally they use 300-400ml but i found 200ml was fine for me. Hope that helps:-)
I have had botox and can highly recommend it. I didn't need any medication after i had the procedure. It's quite common to have it here in NZ as a way of managing your bladder. I think normally they use 300-400ml but i found 200ml was fine for me. Hope that helps:-)
Thanks for your response. Sorry don't understand what you mean by that they normally use 300ml-400ml. I would like to know if after receiving Botox if you still feel the urge when you have to pee and if so is it a strong urge?
Post by meesaclaire on Jun 3, 2018 17:24:52 GMT -8
Oh, the amount is how much botox they use, they'll sort that out if you get it done. I didn't really have the urge to pee after botox and i could hold HEAPS so you just have to be vigilant in making sure you to the toilet!!
Hello, I stopped taking the ditropan after I found out it had a correlation to dementia (isn't that what we all need?) I am currently on Botox getting ready for my next 6 month dose. No other meds for the bladder and I am able to tell when it is time to go as far as urges are concerned. Only have accidents if I have a UTI which is rare. I highly recommend it.
Good catch, mamazooms. With the dementia diagnoses, nursing homes can have a field day. Yet, the only way I could find out the dementia link was to actually type in to Google “ditropan dementia”. Wow: CONSISTENTLY LINKED. Concern over high US prescribing levels of common drug linked to dementia Date: March 27, 2017 Source: European Association of Urology Summary: A new analysis raises concern over high prescription rates in the USA of a common drug used to treat overactive bladder. The drug, oxybutynin, when taken orally, is consistently linked with cognitive impairment and dementia in the elderly. The analysis shows that oxybutynin, is prescribed in more than a quarter of cases of overactive bladder (27.3%), even though other more suitable drugs are available.
###### Here are some more bad effects: www.rxlist.com/ditropan-drug/patient-images-side-effects.htm#whatis WHAT IS THE MOST IMPORTANT INFORMATION I SHOULD KNOW ABOUT OXYBUTYNIN (DITROPAN, DITROPAN XL, UROTROL)? You should not use this medication if you are allergic to oxybutynin, or if you have untreated or uncontrolled narrow-angle glaucoma, a blockage in your digestive tract (stomach or intestines), or if you are unable to urinate. Before using oxybutynin, tell your doctor if you have glaucoma, liver or kidney disease, an enlarged prostate, myasthenia gravis, ulcerative colitis, a blockage in your stomach or intestines, or a stomach disorder such as gastroesophageal reflux disease (GERD) or slow digestion. Avoid becoming overheated or dehydrated during exercise and in hot weather. Oxybutynin can decrease perspiration and you may be more prone to heat stroke.
This medication may cause blurred vision and may impair your thinking or reactions. Be careful if you drive or do anything that requires you to be alert and able to see clearly.
There are many other medicines that can interact with oxybutynin. Tell your doctor about all medications you use. This includes prescription, over-the-counter, vitamin, and herbal products. Do not start a new medication without telling your doctor. Keep a list of all your medicines and show it to any healthcare provider who treats you.
Stop using this medication and call your doctor if you have serious side effects such as hot and dry skin, extreme thirst, severe stomach pain or constipation, pain or burning when you urinate, or if you stop urinating.
I did the whole botox thing for about 4 or 5 years. It never worked all that great for me laughing about 2-3 months. Finally I met with my urologist and told her we need to do something different. We talked about having a bladder augmentation. She explained that it is an invasive procedure wherein they take a piece of your small bowel and they cut your bladder in half, cut the small bowel piece in half and stitch it together. It makes your bladder last and hold more. I immediately opted for the procedure and had it on June 23, 2017 and haven't been happier. I personally, can go about 6 or 7 (have gone 8 at times) hours before needing to cath (I was having to do it about every 2-3 before) and I wadd also able to go off my oxybutinen ER (generic Ditropan XL). I'm wishing I would have done this before wasting my time getting the botox (though I LOVED my times on propofol anesthesia!)
Hello, I stopped taking the ditropan after I found out it had a correlation to dementia (isn't that what we all need?) I am currently on Botox getting ready for my next 6 month dose. No other meds for the bladder and I am able to tell when it is time to go as far as urges are concerned. Only have accidents if I have a UTI which is rare. I highly recommend it.
Wow, I’ve never even heard of ditropan contributing to dementia before but am I ever glad I stopped taking it. I did take it for 4-5 years though so maybe that’s why my memory is awful.
Wow, your responses have been so interesting. Dementia, really?! I was on oxybutin for at least 15 years. Yikes! So after trying different medications (Vesicare & myrbetriq) I have decided to get Botox. My urogynocologist has been hesitant to do this because she says my bladder already has the capacity to fill 400ml but my urodynamics showed that I get my first urge very early and the urges are really strong. I have to clench to make the urge go away until a few minutes later when I get the urge again. I can avoid leaking if I'm sitting but in standing it's harder to hold it. It interferes with my life because I have to be inactive and sitting inorder to try to avoid getting the urge. I'm hoping that the Botox holds me for more than 2 hours and that I don't lose the feeling to have to urinate. Please continue to share your experiences, it really helps. Thank you!
Post by wallflower on Sept 25, 2018 14:30:48 GMT -8
I want to share with you my experience with botox. I finally went through with it and had the procedure on July 31st and had 100 units of botox injected into my bladder. It's been 8 weeks since then and so far no regrets. I still get the urge to pee and my bladder holds now about 600ml. I retain more urine now so I catheterize everytime I get the urge to pee because that means my bladder is full. When I measure how much urine comes out after cathing I usually get from 500-600ml. If I get the urge to pee while I'm sleeping I usually cath from 300-500ml. Which tells me that while I sleep my bladder wants to be emptied when it's less full. As for the urgency I feel now it is less strong and no leaks, even when holding 600ml. Before the botox the urge was so strong at 300ml and would leak walking to the bathroom. It took 2 weeks for the botox to kick in and for me to notice any difference. I was scared it didn't work because some people feel the effect much sooner. I didn't receive anesthesia during the procedure so I must admit it was quite painful. It really made my spasms act up since the room is so cold and my back spasms were strong for the following day. Also, I've noticed that I've been more constipated since getting the botox. I'm afraid it affected the muscles in that area because I haven't been this constipated in a long time. I am considering going back to the doctor who gave me a biofeedback treatment that helped with my constipation a couple of years ago. Hopefully that treatment will help. I would love to continue hearing your stories.