Inspired Spinal Cord Injury Support Forum

vintage Advanced Member Posts: 2,576 Post Likes Received: 1,757 Date Joined: November 2016 Injury: T9 incomplete Date Injured: March 15, 2014 Member is: Offline Send PM	UTI dangers Dec 13, 2018 13:34:33 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by vintage on Dec 13, 2018 13:34:33 GMT -8 No, it wasn’t like that, Karen67. I didn’t have any bladder issues to discuss with my doctor. No “guinea pigging “ occurred.

stephend
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UTI dangers Apr 3, 2019 18:12:25 GMT -8

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Post by stephend on Apr 3, 2019 18:12:25 GMT -8

Nov 20, 2018 15:02:31 GMT -8 tetra said:

Nov 20, 2018 11:57:05 GMT -8 stephend said:

As for the dizziness, did you get your blood pressure checked? Are you sure you weren't experiencing some dysreflexia?

As for UTI prevention, I think it's a given that it's damned near impossible to truly self cath in a clean way. I had one urologist put me on a prophylactic dose of antibiotics. That always worried me, because of all the risks associated with long-term antibiotic use. I've since switched to a new urologist and she's having me irrigate my bladder with a solution of gentamicin, which avoids the issues of long-term antibiotic usage. And, so far it's been working great. Mind you, before the antibiotics I averaged a UTI every month and half or so.

Here's a couple links to info about the Gentamicin.

tinyurl.com/gent-irrigation

tinyurl.com/gent-research

Just my 2¢

Stephen, how often do you irrigate?

Sorry for the late response. Every day before I go to sleep.

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UTI dangers Jun 2, 2019 12:42:07 GMT -8

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Post by wavewolf on Jun 2, 2019 12:42:07 GMT -8

Nov 21, 2018 6:59:17 GMT -8 mikeq said:

Nov 20, 2018 15:12:43 GMT -8 Karen67 said:

A previous respondent suggested an antibiotic that he takes 3 days prior to getting his catheter changed monthly. I'm trying that. My BP was like 77/36 and my pulse was over 100. And yes, I do believe the UTI caused dysreflexia.

dysreflexia is high blood pressure not low blood pressure. 77/36 is very low. A bit too low, particularly the diastolic. I'd be very worried if my diastolic was around thirty-six. I believe the overuse of antibiotics is causing microbial resistance. It won't be long before the antibiotics you take are useless. The bugs will soon become resistant to them. Then you will really be in trouble. My advice is to use antibiotics as little as possible.. I know it's difficult. Nobody likes the unpleasant feelings generated by urine infections. But unless you get temperatures, then indiscriminately using antibiotics will ultimately result in the germs gaining the upper ground. My urologist is incredibly worried about resistant bacteria and the fact that conventional antibiotics no longer work for simple urine infections. Some patients are now on injections of gentamicin. There are now increasing numbers of patients who do not respond to gentamicin. "I get really worried when patients do not respond to gentamicin," he told me.

You are so right on all points! That is why I favor use of D-mannose for prevention and treatment of early-stage UTI (often hard with paralysis to catch UTI early if you have limited/no sensation)--it is "mechanical" action, not a drug. Bladder irrigation with an antibiotic is better than broad spectrum oral dosing, but still risks bacterial resistance.

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UTI dangers Jun 7, 2019 9:51:40 GMT -8

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Post by Karen67 on Jun 7, 2019 9:51:40 GMT -8

Oct 12, 2018 5:17:50 GMT -8 mikeq said:

It is unusual for urine infections to make one very dizzy, light-headed, and have trouble finishing sentences or answering questions. This can happen when you are elderly. Are you sure the symptoms were related to the infection and not some other problem? It is entirely possible that you had a low sodium levels due to drinking excessive amounts of liquid, assuming that you were drinking lots to try and clear the infection. Were you put on a drip? About twelve years ago I was admitted into hospital with exactly the same symptoms you mentioned. My sodium levels were 116. The low sodium cut-off point is 133. I was almost hallucinating. I couldn't complete a sentence without forgetting what I was saying. I was actually talking garbage. It was terrifying. And all because I was drinking excessive amounts of water due to a urine infection (I was drinking over 4 L a day). I was in effect flushing all my electrolytes out of my body. They put me on a sodium drip. Within four or five hours I was back to normal. Low sodium levels can be very dangerous. It causes the brain to swell. If not treated urgently you could die. I can't add any more thoughts to your post, Karen, except to say that I hope you get on top of these infections and find the source of the problem. All the best to you.

Thank you for the information. Low sodium isn't the problem because I am a "salt-aholic" lol.

vintage Advanced Member Posts: 2,576 Post Likes Received: 1,757 Date Joined: November 2016 Injury: T9 incomplete Date Injured: March 15, 2014 Member is: Offline Send PM	UTI dangers Jun 7, 2019 17:04:27 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by vintage on Jun 7, 2019 17:04:27 GMT -8 Karen67. Pretty please? drclarkstore.com/kidney-cleanse-tea-hydrangea-marshmallow-gravelroot/

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UTI dangers Jun 18, 2019 12:52:51 GMT -8

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Post by Karen67 on Jun 18, 2019 12:52:51 GMT -8

Oct 12, 2018 5:17:50 GMT -8 mikeq said:

It is unusual for urine infections to make one very dizzy, light-headed, and have trouble finishing sentences or answering questions. This can happen when you are elderly. Are you sure the symptoms were related to the infection and not some other problem? It is entirely possible that you had a low sodium levels due to drinking excessive amounts of liquid, assuming that you were drinking lots to try and clear the infection. Were you put on a drip? About twelve years ago I was admitted into hospital with exactly the same symptoms you mentioned. My sodium levels were 116. The low sodium cut-off point is 133. I was almost hallucinating. I couldn't complete a sentence without forgetting what I was saying. I was actually talking garbage. It was terrifying. And all because I was drinking excessive amounts of water due to a urine infection (I was drinking over 4 L a day). I was in effect flushing all my electrolytes out of my body. They put me on a sodium drip. Within four or five hours I was back to normal. Low sodium levels can be very dangerous. It causes the brain to swell. If not treated urgently you could die. I can't add any more thoughts to your post, Karen, except to say that I hope you get on top of these infections and find the source of the problem. All the best to you.

Low sodium is never an issue with me because I am a "salt-a-holic" lol. But thanks for responding.

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UTI dangers Jun 18, 2019 12:53:45 GMT -8

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Post by Karen67 on Jun 18, 2019 12:53:45 GMT -8

Nov 20, 2018 15:02:31 GMT -8 tetra said:

Nov 20, 2018 11:57:05 GMT -8 stephend said:

As for the dizziness, did you get your blood pressure checked? Are you sure you weren't experiencing some dysreflexia?

As for UTI prevention, I think it's a given that it's damned near impossible to truly self cath in a clean way. I had one urologist put me on a prophylactic dose of antibiotics. That always worried me, because of all the risks associated with long-term antibiotic use. I've since switched to a new urologist and she's having me irrigate my bladder with a solution of gentamicin, which avoids the issues of long-term antibiotic usage. And, so far it's been working great. Mind you, before the antibiotics I averaged a UTI every month and half or so.

Here's a couple links to info about the Gentamicin.

tinyurl.com/gent-irrigation

tinyurl.com/gent-research

Just my 2¢

Stephen, how often do you irrigate?

My urologist is supposed to show me how to irrigate at my next appointment.

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UTI dangers Jun 18, 2019 13:05:19 GMT -8

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Post by Karen67 on Jun 18, 2019 13:05:19 GMT -8

Jun 7, 2019 17:04:27 GMT -8 vintage said:

Karen67 . Pretty please?
drclarkstore.com/kidney-cleanse-tea-hydrangea-marshmallow-gravelroot/

Do you know the proportions of each root for the tea? I want to research buying them individually which might be less expensive than buying the package at that website. My funds are very limited.

vintage Advanced Member Posts: 2,576 Post Likes Received: 1,757 Date Joined: November 2016 Injury: T9 incomplete Date Injured: March 15, 2014 Member is: Offline Send PM	UTI dangers Jun 18, 2019 19:44:53 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by vintage on Jun 18, 2019 19:44:53 GMT -8 Equal quantities of each herb. Also, don’t make a large batch. Just use about two tablespoons of each herb. Save some for later. At the link I gave you, they ship with each herb separate, not blended.
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nathanau Global Moderator STAFF Posts: 312 Post Likes Received: 251 Date Joined: August 2015 Injury: T-11 Son Date Injured: 7th April 2015 Member is: Offline Send PM	UTI dangers Jun 20, 2019 15:16:00 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by nathanau on Jun 20, 2019 15:16:00 GMT -8 Have any of you found Cranberry works for you? When the boy has had a UTI I've tried it for weeks on end with him, didn't seem to work at all.

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UTI dangers Jun 20, 2019 17:14:16 GMT -8

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Post by vintage on Jun 20, 2019 17:14:16 GMT -8

No, cranberry doesn’t work. Please try a tea of marshmallow root, gravel root, and hydrangea root with a shot of black cherry juice.
Journal of Urology
www.auajournals.org/article/S0022-5347(01)68322-8/abstract
“Conclusions:
CBJ exerts a mixed effect on urinary stone forming propensity. It reduces urinary pH likely by providing an acid load and decreases urinary uric acid perhaps by retarding urate synthesis. Overall CBJ increases the risk of calcium oxalate and uric acid stone formation but decreases the risk of brus-hite stones.” (Lol. That last word before ‘stones’ is all-one-word, but the software here is paranoid and won’t let it print.)

See page 549 of this free online book. Or, see the 4 screen shots I’ve attached. I’ve cured my UTI’s without antibiotics for thirty years. Doctors gave me antibiotics in the hospital after my broken back. Those antibiotics gave me a yeast infection. I was so miserable,...especially knowing that all I needed were a few inexpensive herbs and black cherry juice. I fought my way home, where I could take proper care of myself.

Make much smaller batches of the herbal kidney cleanse tea than recommended, because the UTI will soon clear up. Save the extra herbs for “next time”.
alternativa-za-vas.com/support-files/cure_for_all_diseases.pdf

l [/url [/

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Karen67 Member Posts: 108 Post Likes Received: 20 Date Joined: May 2016 Member is: Offline Send PM	UTI dangers Jun 20, 2019 18:41:59 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Karen67 on Jun 20, 2019 18:41:59 GMT -8 Jun 20, 2019 15:16:00 GMT -8 nathanau said: Have any of you found Cranberry works for you? When the boy has had a UTI I've tried it for weeks on end with him, didn't seem to work at all. I've heard that helps, but I have never tried it.
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UTI dangers Jun 20, 2019 19:00:51 GMT -8

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Post by vintage on Jun 20, 2019 19:00:51 GMT -8

“...In contrast, a meta-analysis by the Cochrane Collaboration, also published in 2012, concluded that “…cranberry juice is less effective than previously indicated….cranberry juice cannot currently be recommended for the prevention of UTIs” (20). It is interesting that the Cochrane analysis was an update of a 2008 report that resulted in a conclusion similar to that derived by Wang et al., indicating a shift in the conclusions from this group (20, 21).”
www.ncbi.nlm.nih.gov/pmc/articles/PMC4863270/

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UTI dangers

Post by vintage on Dec 13, 2018 13:34:33 GMT -8

Post by stephend on Apr 3, 2019 18:12:25 GMT -8

Post by wavewolf on Jun 2, 2019 12:42:07 GMT -8

Post by Karen67 on Jun 7, 2019 9:51:40 GMT -8

Post by vintage on Jun 7, 2019 17:04:27 GMT -8

Post by Karen67 on Jun 18, 2019 12:52:51 GMT -8

Post by Karen67 on Jun 18, 2019 12:53:45 GMT -8

Post by Karen67 on Jun 18, 2019 13:05:19 GMT -8

Post by vintage on Jun 18, 2019 19:44:53 GMT -8

Post by nathanau on Jun 20, 2019 15:16:00 GMT -8

Post by vintage on Jun 20, 2019 17:14:16 GMT -8

Post by Karen67 on Jun 20, 2019 18:41:59 GMT -8

Post by vintage on Jun 20, 2019 19:00:51 GMT -8

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