Inspired Spinal Cord Injury Support Forum

lansing
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Not Knowing When You Have To Pee Feb 27, 2019 9:26:59 GMT -8

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Post by lansing on Feb 27, 2019 9:26:59 GMT -8

Hey,

So since my injury I haven't been able to tell or "feel" when I have to pee. I don't receive that brain to body "signal". I can pee independently, but I have to set timers and stuff to remind myself to go to the bathroom otherwise I won't know to go and will wet myself.

Does anyone else have this issue/relate to this?

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dewy Junior Member Posts: 57 Post Likes Received: 28 Date Joined: December 2018 Injury: C4 Partial C5 Complete Date Injured: May 3rd 2013 Member is: Offline Send PM	Not Knowing When You Have To Pee Feb 27, 2019 11:57:45 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by dewy on Feb 27, 2019 11:57:45 GMT -8 Sounds like you have the solution, make it your routine and stay with. Welcome to the site
	vintage likes this Immortally Insane

marshall81 New Member Posts: 11 Post Likes Received: 3 Date Joined: February 2019 Injury: SCI Date Injured: May 8th 2018 Member is: Offline Send PM	Not Knowing When You Have To Pee Feb 27, 2019 21:55:03 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by marshall81 on Feb 27, 2019 21:55:03 GMT -8 My husband has this issue but he has a Foley catheter. when we tried to self cath they told us to get on a routine but as he has open pressure wounds they put the foley cath back in. best of luck!!
	Brandy Marshall

catheterboy Member Posts: 103 Post Likes Received: 50 Date Joined: March 2018 Injury: L2 L3 Member is: Offline Send PM	Not Knowing When You Have To Pee Feb 28, 2019 2:58:48 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by catheterboy on Feb 28, 2019 2:58:48 GMT -8 I have a Foley catheter too. My problem was two fold not knowing when I had to go and also retention. Self Cathing was not for me I hated it. Have been permanently Catheterised now for five years.

nathanau Global Moderator STAFF Posts: 312 Post Likes Received: 251 Date Joined: August 2015 Injury: T-11 Son Date Injured: 7th April 2015 Member is: Offline Send PM	Not Knowing When You Have To Pee Feb 28, 2019 21:19:05 GMT -8 via Inspired Mobile Quote Select Post Deselect Post Link to Post Back to Top Post by nathanau on Feb 28, 2019 21:19:05 GMT -8 Kiddo used to have this problem but now he gets a few minutes warning, that started happening 2 years post injury. He can mostly pee at will without a cath now he's still using them some days.
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lansing New Member Posts: 9 Post Likes Received: 3 Date Joined: February 2019 Member is: Offline Send PM	Not Knowing When You Have To Pee Mar 1, 2019 8:55:21 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by lansing on Mar 1, 2019 8:55:21 GMT -8 nathanau, Thank you for letting me know. It is always reassuring to know that you are not alone even if it often feels that way.

lavender
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Not Knowing When You Have To Pee Mar 3, 2019 8:11:14 GMT -8

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Post by lavender on Mar 3, 2019 8:11:14 GMT -8

I set a timer also to remind me to pee I get a little indication for my bowel with some cramping in my stomach but with that I need to get to a toilet real soon. I have kept wearing a pad, partly to catch any leaking as well as I have found it helps keep any of my poop in since it gives me a tighter fit so poop does not end up in my underwear. I do not have a good bowel routine.

mike
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Not Knowing When You Have To Pee Mar 11, 2019 8:08:07 GMT -8

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Post by mike on Mar 11, 2019 8:08:07 GMT -8

I'm now 6+ post (T-5 complete) and have to straight catch 6 times daily. On average, I do it every 4 hours. But I have found that, once I go to bed, I have to pee about 2 hours after bedtime. Otherwise, I will wet the bed. But then I can go around 5 hours in bed without peeing. I think that, when my body relaxes, it also lets go of fluid. Of course, if I drink a lot then I shorten the time periods. Though I don't "feel" the need to pee, I often wake up at night right after I have started to leak. I know this because there is just a little wetness.

It sounds like you are on the right track. This all sucks, doesn't it?

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vintage
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Not Knowing When You Have To Pee Mar 11, 2019 8:50:11 GMT -8

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Post by vintage on Mar 11, 2019 8:50:11 GMT -8

mike, I’m female, and spasticity makes it almost impossible to cath. Foley caths caused constant UTI’s in me. I don’t want a suprapubic. I wear diapers now, full-time. I just want to suggest for you to wear a diaper at night. It’s sad, but it isn’t the end of the world.

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mike
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Not Knowing When You Have To Pee Mar 12, 2019 9:03:35 GMT -8

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Post by mike on Mar 12, 2019 9:03:35 GMT -8

I do wear a "diaper" at night. In fact, all the time. But they only work some of the time. If I'm laying on my side, leaks dribble down against my skin and onto the bed, instead of going into the diaper. Fortunately, my bed is a plastic/vinyl air mattress which repels liquid.

dewy Junior Member Posts: 57 Post Likes Received: 28 Date Joined: December 2018 Injury: C4 Partial C5 Complete Date Injured: May 3rd 2013 Member is: Offline Send PM	Not Knowing When You Have To Pee Mar 13, 2019 15:39:50 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by dewy on Mar 13, 2019 15:39:50 GMT -8 Have you considered a condom style Cath for night?
	Immortally Insane

vintage
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Not Knowing When You Have To Pee Mar 13, 2019 22:13:41 GMT -8

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Post by vintage on Mar 13, 2019 22:13:41 GMT -8

Me too, mike. Gone are the days of the comfy, dry, soft linens. I’m just glad when the plastic/viny bed cover doesn’t get wrinkled under me. Hey! You use an air-mattress? Could you give me a link to what you use, please? Oh, and I also go to bed with a disposable chuck under me. But I usually have to dispose of that in the middle of the night when I change my diaper, and I don’t replace it. Mostly, I started sleeping on a chuck (pad) because it makes it safer for my skin when I slide into bed at night.

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Not Knowing When You Have To Pee

Post by lansing on Feb 27, 2019 9:26:59 GMT -8

Post by dewy on Feb 27, 2019 11:57:45 GMT -8

Post by marshall81 on Feb 27, 2019 21:55:03 GMT -8

Post by catheterboy on Feb 28, 2019 2:58:48 GMT -8

Post by nathanau on Feb 28, 2019 21:19:05 GMT -8

Post by lansing on Mar 1, 2019 8:55:21 GMT -8

Post by lavender on Mar 3, 2019 8:11:14 GMT -8

Post by mike on Mar 11, 2019 8:08:07 GMT -8

Post by vintage on Mar 11, 2019 8:50:11 GMT -8

Post by mike on Mar 12, 2019 9:03:35 GMT -8

Post by dewy on Mar 13, 2019 15:39:50 GMT -8

Post by vintage on Mar 13, 2019 22:13:41 GMT -8

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