after so long trying a BP since nearly seven years, I just tested first time a Dulcolax Suppository (10 mg Bisacodyl).
It worked just great, felt FREE and easy.
My normal BP is peristeen. But there are days you feel not free - and the risk of "accident" (u know...) is big.
So my 1st question: Many uses a Magic Bullet every day. Whats the secret of Magic Bullet. Is this just onother brand like Dulcolax, both have 10 mg Bisacodyl ? Differences ?
My 2nd question: Normal abled ppl should not take such supps every day. Ok. But we with our SCI, damaged already done: Is there other risks of using this things every othter day, or 2 / week?
My 3rd question: How far (how high in trans colon....) work such Suppositories? It felt, like the whole colon was working and producing sh***. Not just the rectum.
Just want that great feeling back I had after this........ Suppository ^^ So I use my peristeen irrigation daily, and if not feeling save and free I put this in my.... ***..... (that would be my plan)
Post by catheterboy on Aug 13, 2019 1:55:11 GMT -8
I had to give up on peristeen system some time ago. I use suppositories now all the time. I think there is a risk with long term use to the colon but at the end of the day you need quality of life now. It's like a permanent Foley catheter that I chose over self cath. After ten years with permanent Foley catheter you have an increased risk of bladder cancer.I started using in February 2014 so am over five years now. I do worry about it but life without the catheter would not be as good for me. We have to make choices but at least if you know there may be a risk in the method you use one can always then make sure the doctors check regularly for stuff going on. I have regular cystoscopy to check my bladder. Hope you find what works for you and go for it.
goisgo, I don’t use suppositories often. But about a year ago, I had some bad days with hard stool, so I used suppositories two or three days in a row. What happened really scared me. My flesh inside my rectum seemed to “over soften”. It seemed to collapse, inside. I say this because I always do digital removal of feces, so I know what I “feel like” inside. I use a lubricated vinyl glove for my removal of feces. But after those two or three days of using a suppository, I felt blubbery inside. There was no firmness. So, for myself, I shouldn’t use suppositories two or three days in a row. I have to use other means to deal with “hard stool constipation”, such as taking a lot of flax seed oil orally.
goisgo, Michael, I have been using magic Bullet now for 10 years. At the beginning it worked faster than it does now, but it still works and i use about 2/3 of each one. It will often clear the entire colon, but this depends on the consistency of my stool. Softer stool in the rectum means it is more likely to clear everything. I use digistim in the process, especially at the end, when I have waited at least 10 minutes of nothing happening. That clears any remaining mucous from the rectum area.
Complete empty is not always good, because the soupy discharge at the end makes it like having diarrhea- I lose too many electrolytes and feel tired much of that day. When material spends more time in the large intestine, more water (full of electrolytes) is removed and we need those in the blood stream.
I do understand your enjoyment of that clean feeling. For me, it is ok to empty completely but not all the time, so your plan to use Peristeen some of the time sounds like a good plan to me. I think the magic bullet will work more years for you if you only use it some of the time. I have not had problems wit h it not working for me, but a friend with MS had to switch BP methods after using magic Bullet for 12 years. It stopped working for her. This is unpredictable.
Bisacodyl brands that are not Magic Bullet have the compound dissolved in oil while Magic Bullet dissolves bisacodyl in water. The oil delivery method takes longer to work, about 45 minutes. Water based magic Bullet is faster because the suppository dissolves more quickly. Many doctors do not understand neurogenic bowel. The think they should judge our practice of bowel program the same way they judge that of able-bodied people.
I suppose if I survive long enough for suppositories to stop working I can always get a colostomy.
Hi all. I just thought I'd add a new dimensional to this post about suppositories. My husband Jack uses Bisacodyl sups. They give a more energetic bowel movement than glycerin suppositories. The problem is he gets autonomic dysreflexia when his bowel is full. If the faeces doesn't come out, he ends up in a heart pounding sweat. It can be quite frightening. I have to be with him all the time. I can't even hang the washing on the line when he has suppositories in, just in case his bowel moves while I'm out. He is seriously thinking of having a colostomy. Glycerin suppositories do not empty him enough. He also takes an aperient every two or three days. If he doesn't keep his bowel empty he feels very uncomfortable and has a lot of pain and spasm. People who do not realise what spinal injury really means, the so-called able-bodied people of this world, think it's all about loss of limbs, not being able to walk or move your hands. Nobody really knows or even thinks about the bladder or bowels. Maybe they do but they just think it's an awkward subject and don't ask questions. And how do you explain autonomic dysreflexia? The humble suppository, so easily glossed over by able-bodied people, is a necessary evil for people with spinal injury, a magic bullet but with a sting in its tail. Somebody should build a shrine around one and worship it. "We bowel to thee O holy one. Please enter my body and cleanse me of all my putridness."
plainjaney, Your tender care for your husband makes me emotional. I lived in hospitals and nursing homes for a year and a half. They were calloused. They were rude. They rushed me. They argued with me about what I was and wasn’t able to do, and about what I should and shouldn’t do. I had to beg and wait for a suppository. They would deprive me for days of a suppository or a small enema.,...claiming that I’d “had” a bowel movement. I had to wait for hours for a nurse to come give me an enema,...lying on just one side,...waiting for her to get around to me. It was inhumane. I’m so glad to hear that human kindness still flourishes in your home.
Hello vintage. That is quite a harrowing story. I hate being in hospitals. Being in a spinal unit is bad enough but general hospitals strike me with fear.
Hi vintage. Thank you for your praises. Life is not always hunky-dory. I do worry about Jack's bowels, though, and the dysreflexia. I'm always there at the ready. Even when he goes to hospital I manage his bowels. I couldn't leave it to the nursing staff. Most of them refuse to do it, anyway. When they do do it they don't do it properly. General hospitals do not understand spinal injury and what is required. You must have been terrified in hospital. Terrified and humiliated. Your experience sounds more like a torture house than a hospital. I have met staff like those you described. If I am unhappy with the way Jack is treated, I usually write a letter to the chief executive or ask to see the senior nurse in charge of all the hospital. When my husband was walking, he was very capable, strong willed and wouldn't take any crap from anybody. Now, though, when he is not under my care, I can see the vulnerability and despair in his eyes.
Mikeq. Do you still get dysreflexia with your colostomy? My husband is seriously thinking of having the operation.
Yes, mikeq, please tell us your colostomy experience. As I get older and weaker, I can see that my acrobatics of doing digital removal of feces may become impossible. I don’t want to become unable to care for myself in my own home.
plainjaney, I hadn’t figured out the BP problem yet when I was in the hospitals. Most of what I described happened in nursing homes. I got paper and wrote complaints (mostly about other issues, not BP). The result? The nursing homes just wanted to get rid of me,...passing me to somewhere worse. Plus, each time one changes nursing homes, they force you to either take a TB skin test or an X-ray for tuberculosis,..and quite possibly a battery of blood tests.
goisgo , Michael, I have been using magic Bullet now for 10 years. At the beginning it worked faster than it does now, but it still works and i use about 2/3 of each one. It will often clear the entire colon, but this depends on the consistency of my stool. Softer stool in the rectum means it is more likely to clear everything. I use digistim in the process, especially at the end, when I have waited at least 10 minutes of nothing happening. That clears any remaining mucous from the rectum area.
Complete empty is not always good, because the soupy discharge at the end makes it like having diarrhea- I lose too many electrolytes and feel tired much of that day. When material spends more time in the large intestine, more water (full of electrolytes) is removed and we need those in the blood stream.
I do understand your enjoyment of that clean feeling. For me, it is ok to empty completely but not all the time, so your plan to use Peristeen some of the time sounds like a good plan to me. I think the magic bullet will work more years for you if you only use it some of the time. I have not had problems wit h it not working for me, but a friend with MS had to switch BP methods after using magic Bullet for 12 years. It stopped working for her. This is unpredictable.
Bisacodyl brands that are not Magic Bullet have the compound dissolved in oil while Magic Bullet dissolves bisacodyl in water. The oil delivery method takes longer to work, about 45 minutes. Water based magic Bullet is faster because the suppository dissolves more quickly. Many doctors do not understand neurogenic bowel. The think they should judge our practice of bowel program the same way they judge that of able-bodied people.
I suppose if I survive long enough for suppositories to stop working I can always get a colostomy.
I always wondered what the difference between the magic bullet and bisacodyl sups were. I tried magic bullets but did not feel empty after. I use Dulcolax like Goisgo is and while my programs take 2-2 1/2 hours I feel empty when done most times. If I end with the watery stuff I know I don't have to worry about any residual after I get up. Every three days for me which sometimes is pushing the envelope.
For those considering Colostomy I recommend joining an ostomy group on Facebook and seeing all the comments and ask a lot of questions. I'm a 40 yr quad and thought the colostomy was going to be the answer until I read all the issues people with Ileostomies and colostomies deal with. If you have full use of your fingers then I can see where it might work for you or 24 hour care.
Just came on to create a post like this. Glad you got it started goisgo! I’ve been having problems with my bowels recently and it’s really bothering me. Being injured for just over 8 years now, I do a bowel routine every morning with the exception of my first two years where I was doing every other day (my rehab centre had me on every other day and I just continued it). I switched from every other day to everyday because my normal routine prior to SCI was 1 BM per day. The off days when I didn’t do a BM didn’t feel good because I’d always feel bloated and paranoid that I might have to go. I also had more accidents when I was doing every other day which is why I decided to do a bowel routine everyday.
My bowel regimen is as follows: 2 senekot overnight relief and 1 ex-lax overnight relief every night. Then in the mornings I use a rectal suppository for 15-45 mins before getting onto my commode chair. Once I’m on my commode chair, I spend 30-60 mins on there and do about 3 digital stimulation’s on average. It’s quite the s***ty process (no pun intended) and is the worst part of my day. My hemorrhoid has formed and gotten worse over the years because of this process and has the occasional bleeding. I’m using the Anodan rectal cream prescribed by my doctor to try to help it but it’s not helping much. I think I’ve also developed a fissure because the bleeding has been quite bad the past week with a lot of blood. I’m having days where I don’t pass any stool or even gas even after doing the stims and taking the suppository and medications. I fear that the Bisacodyl suppositories I’ve been using every morning has finally worn out my intestinal muscles and stopped them from working. I read today that Bisacodyl suppositories should not be taken more than 5 days in a row because of the adverse irreparable long term effects. So I’ve been using Colace glycerin suppositories for a week now and they’re ineffective. I started using Collinsonia Root supplements yesterday as vintage has mentioned in another post in the past so I’m hoping that it’ll help with the hemorrhoid. In the meantime, it looks like I’m going to have to go back to using Bisacodyl because nothing else works.