Inspired Spinal Cord Injury Support Forum

outlier
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Usual Aug 19, 2019 1:37:29 GMT -8

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Post by outlier on Aug 19, 2019 1:37:29 GMT -8

I'm suffering but my Dad is going through major spinal cord damage -- L4-L5. I've known he was going down for a long time because of radiology imaging. So I told him to go to the MAYO in Rochester MN. He called but they are so demanding -- seriously? Like they ever use the files they get. "Just say yes and you get treatment." Have we really gotten here?

tetra Advanced Member Posts: 815 Post Likes Received: 942 Date Joined: November 2016 Injury: C5-7 Incomplete Date Injured: 5/28/2008 Member is: Offline Send PM	Usual Aug 19, 2019 8:29:31 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by tetra on Aug 19, 2019 8:29:31 GMT -8 Out- Sounds like a bad day for you all. Could you explain in more detail? But yes, I think we are "here" and "here" is just bizarre.
	outlier likes this I step in the water, but the water has moved on...

moco Advanced Member Posts: 352 Post Likes Received: 409 Date Joined: November 2016 Injury: Wife of incomplete C4-C7 Date Injured: July 2012 Member is: Offline Send PM	Usual Aug 20, 2019 0:15:09 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by moco on Aug 20, 2019 0:15:09 GMT -8 Sorry you are having a bad day outlier, and for what is happening with your Dad. Hope it has gotten better - keep us updated. Sending hugs xx
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outlier Member Posts: 124 Post Likes Received: 116 Date Joined: December 2016 Injury: C5-T2 Posterior cord Date Injured: 3-15-2011 Member is: Offline Send PM	Usual Aug 20, 2019 21:13:51 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by outlier on Aug 20, 2019 21:13:51 GMT -8 I'm not doing well guess it is august so he has made appointments to go in. Quite frankly, I don't think anyone is doing well now.

outlier
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Usual Oct 2, 2019 14:48:05 GMT -8

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Post by outlier on Oct 2, 2019 14:48:05 GMT -8

I had a weird episode recently -- my legs contracted involuntarily, were numb, and hurt like hell. My hands also -- so I'm thinking it has to be cervical and in a similar location. Scared the s*** out of me -- similar to my first episode but sudden onset. I'm still recovering but it lasted about a week. So I'm wondering if this is a relapse or new attack...the good news is it is calming down. The scary thing is I live alone and I've made so much progress with my last attack so you forget there can be other attacks. Not sure that makes sense -- but it's like an "ah s*** moment."

tetra
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Usual Oct 3, 2019 7:29:26 GMT -8

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Post by tetra on Oct 3, 2019 7:29:26 GMT -8

Oct 2, 2019 14:48:05 GMT -8 outlier said:

I had a weird episode recently -- my legs contracted involuntarily, were numb, and hurt like hell. My hands also -- so I'm thinking it has to be cervical and in a similar location. Scared the s*** out of me -- similar to my first episode but sudden onset. I'm still recovering but it lasted about a week. So I'm wondering if this is a relapse or new attack...the good news is it is calming down. The scary thing is I live alone and I've made so much progress with my last attack so you forget there can be other attacks. Not sure that makes sense -- but it's like an "ah s*** moment."

Gosh, Out, this is terrifying. Keep us informed and ,meanwhile I will do the possibly useless activity of keeping you in my prayers. Or possibly not.

mikeq likes this

I step in the water, but the water has moved on...

mikeq Advanced Member Posts: 446 Post Likes Received: 730 Date Joined: December 2016 Injury: C5/C6 Date Injured: 1981 Member is: Offline Send PM	Usual Oct 4, 2019 5:04:54 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by mikeq on Oct 4, 2019 5:04:54 GMT -8 Tetra, your weird sense of humour makes me smile. Out, life is so fragile a buffoon can be fatal to it. Thus spoke Zarathustra.

vintage Advanced Member Posts: 2,576 Post Likes Received: 1,757 Date Joined: November 2016 Injury: T9 incomplete Date Injured: March 15, 2014 Member is: Offline Send PM	Usual Oct 4, 2019 6:40:40 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by vintage on Oct 4, 2019 6:40:40 GMT -8 Looking back, I’ve had aides, nurses, and doctors that qualify as “buffoons” and were near-fatal to me. Oh yeah, and one Director of Nursing at a nursing home.

tarabev
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Usual Oct 4, 2019 15:35:45 GMT -8

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Post by tarabev on Oct 4, 2019 15:35:45 GMT -8

Oct 3, 2019 7:29:26 GMT -8 tetra said:

Oct 2, 2019 14:48:05 GMT -8 outlier said:

I had a weird episode recently -- my legs contracted involuntarily, were numb, and hurt like hell. My hands also -- so I'm thinking it has to be cervical and in a similar location. Scared the s*** out of me -- similar to my first episode but sudden onset. I'm still recovering but it lasted about a week. So I'm wondering if this is a relapse or new attack...the good news is it is calming down. The scary thing is I live alone and I've made so much progress with my last attack so you forget there can be other attacks. Not sure that makes sense -- but it's like an "ah s*** moment."

Gosh, Out, this is terrifying. Keep us informed and ,meanwhile I will do the possibly useless activity of keeping you in my prayers. Or possibly not.

Thanks for my first chuckle of the day tetra,

outlier , About 5 months ago I woke up one morning with a lot of pain in my left shoulder blade with some numbness running down into my hand and and it was also very weak....I of course was very worried because I dont like any changes with my body, Ive been quite stable for the last 20 years. So, after trekking back and forth between my neuro, nerve conduction study, Xrays, MRI...3 months later, my hand was almost back to normal, numbness and pain basically gone... final diagnosis... they dont know what the hell caused the weakness in my hand (cant compare recent MRI to ones in the past because they got lost years ago and apparently hospitals dont keep them that long)... but I changed my sleeping position, I make sure I dont sleep on left arm bent under my pillow any longer.

outlier
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Posts: 124
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Injury: C5-T2 Posterior cord
Date Injured: 3-15-2011

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Usual Oct 5, 2019 1:26:48 GMT -8

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Post by outlier on Oct 5, 2019 1:26:48 GMT -8

Oct 4, 2019 15:35:45 GMT -8 tarabev said:

Oct 3, 2019 7:29:26 GMT -8 tetra said:

Gosh, Out, this is terrifying. Keep us informed and ,meanwhile I will do the possibly useless activity of keeping you in my prayers. Or possibly not.

Thanks for my first chuckle of the day tetra ,

outlier , About 5 months ago I woke up one morning with a lot of pain in my left shoulder blade with some numbness running down into my hand and and it was also very weak....I of course was very worried because I dont like any changes with my body, Ive been quite stable for the last 20 years. So, after trekking back and forth between my neuro, nerve conduction study, Xrays, MRI...3 months later, my hand was almost back to normal, numbness and pain basically gone... final diagnosis... they dont know what the hell caused the weakness in my hand (cant compare recent MRI to ones in the past because they got lost years ago and apparently hospitals dont keep them that long)... but I changed my sleeping position, I make sure I dont sleep on left arm bent under my pillow any longer.

outlier Member Posts: 124 Post Likes Received: 116 Date Joined: December 2016 Injury: C5-T2 Posterior cord Date Injured: 3-15-2011 Member is: Offline Send PM	Usual Oct 5, 2019 1:28:25 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by outlier on Oct 5, 2019 1:28:25 GMT -8 We all laugh, cause you got to -- my doctor and I were even laughing about it! I mean you're in Hell but what can you do?
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outlier
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Posts: 124
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Date Joined: December 2016
Injury: C5-T2 Posterior cord
Date Injured: 3-15-2011

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Usual Oct 5, 2019 1:30:54 GMT -8

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Post by outlier on Oct 5, 2019 1:30:54 GMT -8

Oct 3, 2019 7:29:26 GMT -8 tetra said:

Oct 2, 2019 14:48:05 GMT -8 outlier said:

I had a weird episode recently -- my legs contracted involuntarily, were numb, and hurt like hell. My hands also -- so I'm thinking it has to be cervical and in a similar location. Scared the s*** out of me -- similar to my first episode but sudden onset. I'm still recovering but it lasted about a week. So I'm wondering if this is a relapse or new attack...the good news is it is calming down. The scary thing is I live alone and I've made so much progress with my last attack so you forget there can be other attacks. Not sure that makes sense -- but it's like an "ah s*** moment."

Gosh, Out, this is terrifying. Keep us informed and ,meanwhile I will do the possibly useless activity of keeping you in my prayers. Or possibly not.

outlier Member Posts: 124 Post Likes Received: 116 Date Joined: December 2016 Injury: C5-T2 Posterior cord Date Injured: 3-15-2011 Member is: Offline Send PM	Usual Oct 5, 2019 1:34:17 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by outlier on Oct 5, 2019 1:34:17 GMT -8 I don't expect anything. It's a support forum...some people might relate and can be useful for those in need.

outlier Member Posts: 124 Post Likes Received: 116 Date Joined: December 2016 Injury: C5-T2 Posterior cord Date Injured: 3-15-2011 Member is: Offline Send PM	Usual Oct 5, 2019 1:42:07 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by outlier on Oct 5, 2019 1:42:07 GMT -8 BTW I have been an Admin and support person for many years (about 30). You?

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Usual

Post by outlier on Aug 19, 2019 1:37:29 GMT -8

Post by tetra on Aug 19, 2019 8:29:31 GMT -8

Post by moco on Aug 20, 2019 0:15:09 GMT -8

Post by outlier on Aug 20, 2019 21:13:51 GMT -8

Post by outlier on Oct 2, 2019 14:48:05 GMT -8

Post by tetra on Oct 3, 2019 7:29:26 GMT -8

Post by mikeq on Oct 4, 2019 5:04:54 GMT -8

Post by vintage on Oct 4, 2019 6:40:40 GMT -8

Post by tarabev on Oct 4, 2019 15:35:45 GMT -8

Post by outlier on Oct 5, 2019 1:26:48 GMT -8

Post by outlier on Oct 5, 2019 1:28:25 GMT -8

Post by outlier on Oct 5, 2019 1:30:54 GMT -8

Post by outlier on Oct 5, 2019 1:34:17 GMT -8

Post by outlier on Oct 5, 2019 1:42:07 GMT -8

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