Last week I went to ER because of extreme abdominal pain. I had to stay for about a week. When we talked about my "usual" bowel problems neuromodulation was suggested. I refused. The idea of getting a pacemaker implanted was definitely too weird.
But I wonder if anyone of you ever got one implanted? Any experience?
r0hbart, no, I don't have one. I do however have a “story”. A friend of mine had a son who wasn’t feeling well. The doctor determined that the young man needed a pacemaker. The father, not having been born yesterday, secretly paid for a second opinion. The second doctor told him there was absolutely no medical reason for his son to need that pacemaker. The father “toyed” a bit with the first doctor, asking him supposedly innocent questions about his son’s future with a pacemaker (being that the pacemaker would limit the boy’s activity for LIFE), and so forth. Then the first doctor pretended that he wanted to run one more test, just to be “absolutely certain” that the boy needed a pacemaker. And, vioila! Imagine that! The first doctor decided that the boy didn’t need a pacemaker.
Some doctors just want to get to use all that education and all those certificates that they got.
The doc admitted that there might be a problem for wheelchair users. As the pacemaker is implanted in your buttocks sitting on it could cause some discomfort.
thank you for sharing your experience. I've heard that some people are very happy with this solution. Irrespective of my bowel problem, a bladder pacemaker was proposed previously.
I am a bit unsure what to come next. Therefore, I ask for as much information as possible.
Post by catheterboy on Nov 10, 2019 12:56:21 GMT -8
I have to say my implant is nothing to do with the health problems you are talking about. My implant is all about pain relief a bit like a tens machine on the inside. I only contributed to your post to explain that an implanted device is not necessarily a problem comfort wise while sat a lot in a wheelchair. Hope this explains I have no experience of an implant for the bladder or bowels. Take care.
Now there are different types of neuromodulators. They are placed differently and programmed differently. Are mostly used for pain relief, bladder issues, and bowel issues. As usual drs firs place a test one, so you can figure out if it works for you. If it does, then they place a permanent one. I have not got one, but read about them just in case my pain won't get under control. Tried to come up with alternative plans...
I have now learned that neuromodulation is not an option for me. The cause of my defecation disorder is that the "anorectal sling" (sorry, if the translation its not correct - the german term is "anorektale Schlinge") does not lower. Unfortunately there are no treatment options except using laxatives and irrigation.
Has anyone heard of this medical condition concerning "anorektale Schlinge"?
I hadn’t heard of it, r0hbart . Could you tell us your level of injury?
Diagram 1: showing anorectal sling holding rectum in a bent position so that feces can not pass through.
Diagram 2: showing relaxation of anorectal sling allowing rectum returning to a straight position to start defecation.
vintage , my level of injury depends on the doctors who do the medical reviews and varies accordingly. (There is a law suit pending regarding the accident I was injured in three years ago.)
Very educational, r0hbart. I’ve become aware that my “higher” injury (T9 incomplete) has a “tight and closed” anal sphincter, whereas those with a T12 injury or below have an “open and relaxed” anal sphincter. Closed = spastic. Open = flaccid. That’s as far as I got on that part of our injuries and anatomy.
Very educational, r0hbart . I’ve become aware that my “higher” injury (T9 incomplete) has a “tight and closed” anal sphincter, whereas those with a T12 injury or below have an “open and relaxed” anal sphincter. Closed = spastic. Open = flaccid. That’s as far as I got on that part of our injuries and anatomy.