I am new to the forum and would just like to say hi and ask a question.
We are dealing with the sudden and traumatic C4 complete injury of a 24 year old male. The accident took place on the 3rd June 2013 and he was shortly thereafter diagnosed with a C4 complete injury, he also unfortunately broke his left femur and left wrist. The day of the diagnosis was obviously a hard day and the word "complete" isa particularly harsh word to hear. However within 2/3 days, he was breathing on his own, then a few days later, certain functionality returned such as lower arms which he can lift, if very weakly. He can also now shrug his shoulders, slightly move his wrists and has small amount of feeling in his thumbs. This does not look like C4 complete to me based on research (my understanding is that C4 is total paralysis of all four limbs). Could someone please let me know if they have had this experience? Are initial diagnosis subject to change? I guess it is early days yet, only 5 weeks since the accident.
A further question I would have is whether there is anything - nutrition wise - that encourages nerves to regenerate? I guess it might seem like a naive question, just wondering if anybody had any thoughts on that. We do have excellent diet and nutrition books for secondary health problems which do help a bit.
Thanks for reading and any input would be hugely appreciated. My best wishes to all survivors of SCI and supporters of those with SCI.
Hi Dunly welcome to the forum! I was initially diagnosed as a C5/C6 ASIA A (Complete) quadriplegic about 3 weeks after my car accident back in June 2011. At the time, I could barely move my right arm and was able to just very slightly move my left. I had no sitting balance at all. I also recieved a tracheostomy 3 weeks into being in the ICU. About 8 weeks later when I was an inpatient at my Spinal Cord Injury rehab, I was diagnosed as a C5/C6 ASIA B. My sensation was improving, but very slowly. I'm two years post now and I'm classed C6/C7 ASIA B. The healing process is slow but the body will always be healing itself. Your brother is making really good progress in such an early stage of recovery and that's a great sign! So to answer your question, the initial diagnosis will and in you case has changed but will definitely improve some more as time goes on. I wish the best for your brother and feel free to post up any questions, concerns, etc. I'm sure a few of our members will also speak up and answer your questions.
- DJ
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Hi Dunly and thank-you for the post, questions you have asked are important and valid ones.
This is my opinion only and i am sure others on the forum can offer theirs too, we all have gained some insight from our own experiences so I shall share mine.
At this point the person in question is very newly injured and the fact that he is showing some very good signs of function is hopeful. How much he will regain will depend on so many factors so its very difficult to say.
Complete, however normally means no function below the injury level so it could be very possible that his classification can alter and more so because he is showing signs already and so early on.
During this period his body will have inflammation settling also. It is of an opinion that nerve generation can continue up to 2 years and sometimes beyond that but the rate of regeneration can be very slow. Sometimes function is returning so slowly that it isn't always noticable especially when the improvements are so subtle.
There are several foods that have anti inflammatory benefits but If they help with nerve generation i'm not so sure although I would imagine anything that helps the healing process in regards to reducing inflammation is good.
I will take a look around with foods that have anti inflammatory benefits, I remember looking at this before so I know I can find.
Thanks so much, you are both so inspiring and helpful. i am saddened to read that you have both been affected by SCI but this is all about cooperation, mutual support and help. Its heartening to know there are people out there like you guys!! It is actually my brother who had the accident. Yes the more I read, I realise that his progress has been so good so early on. Like you said, the body continues to heal itself constantly and I truly believe nothing is impossible. Thanks Lara for nutrition advice. Food can definitely assist the healing process or at least prevent secondary complications. May i ask what rehab is like, i assume it is really, really tough? You have come so far in two years DJ. I hope you both continue to heal and i look forward to future discussions with you guys!
My apologies Dunly, I must have mis-read the brother part, I'll edit my original post. Rehab to me was actually a great learning experience. I met many friends there and after 5 months it felt like home! Thanks for the kind words and I look forward to hearing from you again!
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In regards to rehab, I actually went to my rehab unit 9 months after my initial injury. It was great for me because I learnt how to self catheter and was put on a bowel programme, learnt wheelchair skill and had intense physiotherapy. It was hard work but beneficial and I loved it there.
I met people there who became my friends and I learnt much about how to deal with this SCI business. To be honest I'm a very positive person and rehab helped me hugely along my way with this.
I trust that your brother will find it a positive experience too.
Asia ratings change with how much you recover and recovery is said to take up to 2 years. On some accounts more. If you can move any muscles below your level of injury that classifies you as either Asia C or D or E. From the sound of it, i think he's transitioned into Asia C.
A well balanced diet is required, and if he's in therapy then more protein, and carbs depending on his fatigue levels.
Grade school is to children as rehab is to SCIs. In rehab, you learn about your injury ie- spasticity spasms pain weakness wheelchair maneuvering , you learn about how to make and maintain gains, its physical and emotional support, you can a sense that you're not alone in your struggles. They basically teach you the basics of how to survive in the real world with your newly acquired injury. Rehab can be physically and emotionally demanding but therapists have been thought to not push people past their limits since the patient is probably at the lowest point in their life at that time. Keep a positive attitude and keep working hard.
I've also been told that Acetyl-L-Carnitine (supplement) is good for nerve regeneration.
Acetyl-L-Carnitine Regenerates Injured Nerves
Acetyl-l-carnitine (ALC) is a well-known nerve, mood, memory, and fat-burning nutrient. In an animal experiment, ALC was found to actually regenerate nerve fibers1 and re-establish connections between nerves and organs.
Nerves are the most difficult tissue to heal because nerve cells do not split and divide. Instead, new nerves must form or injured nerves must heal. This is a lengthy process and is often never accomplished.
The study mentioned above showed that ALC works to regenerate myelin sheathing of nerves, produce new nerve fibers, and improve the function of important nerve connections to organs – a remarkable nutritional result!
Post by freewheeler on Jul 12, 2013 0:07:03 GMT -8
Im sorry that I cant offer much in the way of advice but I wish your brother all the best with his recovery. As everyone has said, it is very early days and Im sure there is more progress to come.
While the level of injury will never change, recovery can vary greatly. You can be a C4 and function as a C7 as it just depends on the amount of return. PT is hard work but the benefits can be remarkable. I walked with crutches for about 37 years and didn't own a wheelchair. I now use a power chair full time.
My apologies Dunly, I must have mis-read the brother part, I'll edit my original post. Rehab to me was actually a great learning experience. I met many friends there and after 5 months it felt like home! Thanks for the kind words and I look forward to hearing from you again!
no worries at all. i didn't mention who at first! we are having reservations about the place where he is right now. there is one physiotherapist for about 9 patients and little encouragement or positive thinking. We are thinking of moving him somewhere where the level of care is of a better quality. He has been amazingly positive and determined but the place he is now, concentrates on him getting him to some kind of level of independence rather than maximise his recovery. hope i am not sounding too fussy here but i want him to be surrounded by positive thinkers and encouragement at this stage, otherwise its going to feel like a harder climb. hope he has good experience as you did, sounds like you made friends for life
In regards to rehab, I actually went to my rehab unit 9 months after my initial injury. It was great for me because I learnt how to self catheter and was put on a bowel programme, learnt wheelchair skill and had intense physiotherapy. It was hard work but beneficial and I loved it there.
I met people there who became my friends and I learnt much about how to deal with this SCI business. To be honest I'm a very positive person and rehab helped me hugely along my way with this.
I trust that your brother will find it a positive experience too.
Thanks Lara. Really great to learn this info and hear how your positivity is getting you through. we are being positive too but of course there are days when its all a bit too much. thanks for sharing.
I've also been told that Acetyl-L-Carnitine (supplement) is good for nerve regeneration.
Acetyl-L-Carnitine Regenerates Injured Nerves
Acetyl-l-carnitine (ALC) is a well-known nerve, mood, memory, and fat-burning nutrient. In an animal experiment, ALC was found to actually regenerate nerve fibers1 and re-establish connections between nerves and organs.
Nerves are the most difficult tissue to heal because nerve cells do not split and divide. Instead, new nerves must form or injured nerves must heal. This is a lengthy process and is often never accomplished.
The study mentioned above showed that ALC works to regenerate myelin sheathing of nerves, produce new nerve fibers, and improve the function of important nerve connections to organs – a remarkable nutritional result!
Hope that helps a bit!
Thanks so much DJ, wow lot of info here. We are definitely focused on diet. he gets fresh fruit juice every morning and lots of good fats and salad etc. Neighbours have been bringing strawberries in as its strawberry season will look into ALC!