Inspired Spinal Cord Injury Support Forum

paolo
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Cure Girls in the labs Jan 2, 2014 16:54:15 GMT -8

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Post by paolo on Jan 2, 2014 16:54:15 GMT -8

"Our Visit to the Center for Nanomedicine and Tissue Engineering in Milan"
...
"How nanotechnology can be used to cure spinal cord injury (SCI)?

“In the case of severe injuries, a portion of biological tissue is lost and it becomes useful to use a scaffold rather than just a cell therapy approach as it is necessary to provide physical and biochemical guidance for endogenous tissue to make regeneration happen. At the same time..."

curegirls.wordpress.com/2014/01/02/our-visit-to-the-center-for-nanomedicine-and-tissue-engineering-in-milan/

Paolo

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DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Cure Girls in the labs Jan 2, 2014 18:22:33 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Jan 2, 2014 18:22:33 GMT -8 Good stuff, thanks for sharing paolo
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tbone57 Senior Member Posts: 258 Post Likes Received: 235 Date Joined: December 2013 Injury: C5, C6 incomplete Transverse Myelitis Date Injured: October 19, 2009 Member is: Offline Send PM	Cure Girls in the labs Jan 3, 2014 8:01:40 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by tbone57 on Jan 3, 2014 8:01:40 GMT -8 Great article, nice to see the Italians are on top of their game. Its just so hard to believe that funding is the obstacle aren't there any billionaires out there with a paralyzed family member?
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DJ
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Cure Girls in the labs Jan 3, 2014 11:52:34 GMT -8

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Post by DJ on Jan 3, 2014 11:52:34 GMT -8

Jan 3, 2014 8:01:40 GMT -8 tbone57 said:

Great article, nice to see the Italians are on top of their game. Its just so hard to believe that funding is the obstacle aren't there any billionaires out there with a paralyzed family member?

I always wonder that too tbone57. I also wonder what would happen if a prime minister/president or their close family member had a serious spinal cord injury

bob
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Cure Girls in the labs Jan 3, 2014 14:31:07 GMT -8

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Post by bob on Jan 3, 2014 14:31:07 GMT -8

Jan 3, 2014 11:52:34 GMT -8 DJ said:

Jan 3, 2014 8:01:40 GMT -8 tbone57 said:

Great article, nice to see the Italians are on top of their game. Its just so hard to believe that funding is the obstacle aren't there any billionaires out there with a paralyzed family member?

I always wonder that too tbone57. I also wonder what would happen if a prime minister/president or their close family member had a serious spinal cord injury

I thought that also, but not so much anymore. Cancer would be a breeze, all you gotta do is stop something from continuing, unlike spinal cord injury where you have to rebuild and re-connect. And yet basically cancer remains uncured although statistics may show they increased life span I believe there is little change other than it gets diagnosed earlier. But, they sell cancer drugs like crazy. I feel some might do the same with spinal cord injury and offer inferior treatments. You can usually tell by the promises they make while soliciting your dollars.

So, my goal would be to try and make sure whatever scarce funds there is, goes into good science. Putting any available funds into a snake oil project would only slow the process down.

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Grass roots advocacy fertilized by Big Pharma-DICHOTOMY at it's best

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Cure Girls in the labs Jan 3, 2014 14:34:05 GMT -8

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Post by DJ on Jan 3, 2014 14:34:05 GMT -8

Jan 3, 2014 14:31:07 GMT -8 bob said:

Jan 3, 2014 11:52:34 GMT -8 DJ said:

I always wonder that too tbone57. I also wonder what would happen if a prime minister/president or their close family member had a serious spinal cord injury

I thought that also, but not so much anymore. Cancer would be a breeze, all you gotta do is stop something from continuing, unlike spinal cord injury where you have to rebuild and re-connect. And yet basically cancer remains uncured although statistics may show they increased life span I believe there is little change other than it gets diagnosed earlier. But, they sell cancer drugs like crazy. I feel some might do the same with spinal cord injury and offer inferior treatments. You can usually tell by the promises they make while soliciting your dollars.

So, my goal would be to try and make sure whatever scarce funds there is, goes into good science. Putting any available funds into a snake oil project would only slow the process down.

Well said bob, I agree!

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Cure Girls in the labs Jan 3, 2014 15:31:55 GMT -8

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Post by Lαrα on Jan 3, 2014 15:31:55 GMT -8

Its great work that is being done here.. The complexity and nature of a Spinal Cord Injury presents difficulties i would imagine in the acquisition of funding.

The cure, would ideally be nerve regeneration and return of signal and function to muscles..how realistic that is at this point im not sure?

Is funding the issue? or are there other factors that affect the interest to want to invest in SCI research for a cure?

Playing devils advocate a little here

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paolo
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Cure Girls in the labs Jan 3, 2014 17:03:00 GMT -8

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Post by paolo on Jan 3, 2014 17:03:00 GMT -8

Jan 3, 2014 15:31:55 GMT -8 Lαrα said:

Its great work that is being done here..

The complexity and nature of a Spinal Cord Injury presents difficulties i would imagine in the acquisition of funding.

The cure, would ideally be nerve regeneration and return of signal and function to muscles..how realistic that is at this point im not sure?

Is funding the issue? or are there other factors that affect the interest to want to invest in SCI research for a cure?

Playing devils advocate a little here

Devils advocates are essential in any field

In my opinion the research center visited by the Cure Girls is doing a promising work, so I would provide founding to them (so that they can go forward as fast as possible), but so far they haven't fully cured yet an animal with chronic SCI, they just reported some recovery of functions in rats in a study that to my knowledge has not been replicated yet.
I expect that soon we will hear more from this labs.

In general I think that there are a lot of money spent in SCI research, but the question is what kind of SCI research? Since I have started digging (few years now) in how money are spent in SCI research I have seen a lot of questionable spending.
To repair the dameged spinal cord with regenerative therapies it seems very possible to me given the results of many studies, but there is still some work to do to find the solutions that seem realistic now to many researchers.
Unfortunatly (as I am trying to point out in the other discussion) medical research is not efficient at all, so is SCI research. If we could spend the money we have more efficently we would have enough (or close to enough) money to make a cure happen in a not too distant future, I believe.
In my experience it's easier to spend more efficently the money we have than to drive more money to the field, but that requires a more active parteipation to SCI research by people with SCI.
I believe that things got better in the last few years, but we need more people willing to deal with scienze which is not fun if you are not a scientist and also have to make at the end of the day with all the complications that SCI brings in our life.
Fortunatly the web is helping a lot spreading a lot of knoledge in very short time, so i believe SCI people have never been so educated, never had so much power and will be even more educated in the future.

Paolo

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Cure Girls in the labs Jan 4, 2014 4:22:55 GMT -8

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Post by Lαrα on Jan 4, 2014 4:22:55 GMT -8

You have highlighted some very worthy points paolo ..Indeed SCI awareness is spreading and we all can play a part in developing understanding and becoming empowered.
Knowledge is empowering within itself.

I will be honest in saying that i have a limited understanding on the issue of research and financial and practical implications on research and finding a cure.
I will endeavour in becoming more knowledgeable in this area for sure because its importance shouldn't be undermined from my ignorance on it.

Thankyou for sharing your thoughts...

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freewheeler
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Cure Girls in the labs Jan 6, 2014 1:27:38 GMT -8

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Post by freewheeler on Jan 6, 2014 1:27:38 GMT -8

How much donated money goes to administration costs, wages and expenses i wonder paolo? We have a situation in the UK that many big charitable organisations use so much of the donated money on these costs that very little ends up being used for its given purpose

Wondeful work is being done by the Cure Girls...

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DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Cure Girls in the labs Jan 6, 2014 7:16:48 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Jan 6, 2014 7:16:48 GMT -8 Good question freewheeler
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paolo
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Cure Girls in the labs Jan 6, 2014 15:48:21 GMT -8

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Post by paolo on Jan 6, 2014 15:48:21 GMT -8

Jan 6, 2014 1:27:38 GMT -8 freewheeler said:

How much donated money goes to administration costs, wages and expenses i wonder paolo? We have a situation in the UK that many big charitable organisations use so much of the donated money on these costs that very little ends up being used for its given purpose

Wondeful work is being done by the Cure Girls...

That's always a good question to ask as things are ofthen disappointing as you say. I think the lab visited by the cure girls can accept donations through the university of Milan. Probably the university keeps around 10% and the rest goes to the lab.
A good charity that I know shoul try to keep expences below 15/20%, but I know often that is not the case.
The cure girls have organized fundraising events to benefit a few non profit orgs that support research, but I don't know more details..
Personally I have a good opinion of the UK based charity "Spinal Research" but it's always hard to say for sure who to support ...unless you have a christal ball

Paolo

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DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Cure Girls in the labs Jan 6, 2014 18:30:26 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Jan 6, 2014 18:30:26 GMT -8 I think that sounds like a fair number paolo

bob Member Posts: 156 Post Likes Received: 55 Date Joined: December 2013 Injury: Father to son with t12 Date Injured: Jan 1998 Member is: Offline Send PM	Cure Girls in the labs Jan 6, 2014 20:01:37 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by bob on Jan 6, 2014 20:01:37 GMT -8 I agree with Paolo about the University keeping 10% as I learned that when I did a right to know request for funding at Rutgers University. But, the next part where it goes to the lab is where I have issues.
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grammy
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Cure Girls in the labs Jan 6, 2014 20:45:48 GMT -8

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Post by grammy on Jan 6, 2014 20:45:48 GMT -8

Not all Universities take donation shares. Some allow every last penny to go straight into the lab and will frequently help with matching funds from their various benevolent recourses. Know specifically what research project you're wanting to fund and ask for help in driving every dollar possible into the project rather than having portions going elsewhere. It takes some homework, but the effort is well worth it.

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Cure Girls in the labs

Post by paolo on Jan 2, 2014 16:54:15 GMT -8

Post by DJ on Jan 2, 2014 18:22:33 GMT -8

Post by tbone57 on Jan 3, 2014 8:01:40 GMT -8

Post by DJ on Jan 3, 2014 11:52:34 GMT -8

Post by bob on Jan 3, 2014 14:31:07 GMT -8

Post by DJ on Jan 3, 2014 14:34:05 GMT -8

Post by Lαrα on Jan 3, 2014 15:31:55 GMT -8

Post by paolo on Jan 3, 2014 17:03:00 GMT -8

Post by Lαrα on Jan 4, 2014 4:22:55 GMT -8

Post by freewheeler on Jan 6, 2014 1:27:38 GMT -8

Post by DJ on Jan 6, 2014 7:16:48 GMT -8

Post by paolo on Jan 6, 2014 15:48:21 GMT -8

Post by DJ on Jan 6, 2014 18:30:26 GMT -8

Post by bob on Jan 6, 2014 20:01:37 GMT -8

Post by grammy on Jan 6, 2014 20:45:48 GMT -8

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