As we all know, a SCI will not only affect your life, it will affect the lives of those around you. I found this little bit of information that some of you might find useful.
Having a disability like a spinal cord injury [SCI] creates a lot of questions about who you are, who you want to be, and how other people, including your family, will interact with you. You need to figure out how you’ll live your life as a person with a disability. This section offers some ideas for ways to think about these personal questions. You’ll be faced with many new emotions and challenges. Unlike questions about your physical needs, personal and social questions have no exact answers. What you decide to do with your personal and social life is up to you.
I know that my wife and me are still working through a few issues here at home.
Adjusting to life with a spinal cord injury may take many months or many years for both you and your family. Some of the emotions which you and your family feel are similar to those of most people who are grieving. You may go through a time of:
fear denial bargaining depression anger mourning (see Reaction to loss).
You and your family may experience these emotions in different ways and at different times. You may be feeling depressed about your injury and what has happened to you while, your partner, parents, or other family members may be feeling very angry about what has happened to you. Because you may be experiencing different feelings at different times, you and your family members may feel lonely and confused.
The impact on my family is what makes me sad about Spinal Cord Injury. I can deal with the impact on myself, im strong this way but the SCI affected the dynamics of my family and my position within the family.
I had firm established roles within the family..always hosting Christmas and special occasions for everyone...i love cooking! Running our family competition yard, teaching riders and young horses and running a busy equestrian shop that i built up from nothing. I never had time to think..my life was focused on family, business, horse competitions and friends.
Pre SCI days me and my mom often talked about how i would be the one out of my siblings who would care for her and my dad if they lost their independence this way. Whenever they have been ill it was me who stepped in to look after them...My mom became worried about how they would be cared for now.
I lost my longterm relationship after becoming injured..which other than being stressful is a positive but has affected other people within the family.
I felt that i lost my 'worth' with certain family members and was often reminded how i wasnt 'useful' any more..this was said both in jest and in a serious manner. Responsibilities had to be given to other members of the family who were less able to deal with everything.
So i lost my business and more recently my stableyard and one or two close family members in the process.
On a positive i am now independent, i feel i can care for my parents pretty well when that time comes, in many ways at least. I am back organizing the horse competitions for the year for about 20 riders and doing some teaching.
Im building bridges with certain family members..our relationship is different but at least there is one.
Ive also recently had the opportunity to undertake a study that i start today...this will be a big part of my life for a long time.
So...Im almost at 3 years since my SCI and its been a process or re-evaluating, learning and re-negotiating my position with family members but im almost there....im a determined girl
All of the dynamics change Lara. You've done remarkably well in rolling with all of the punches. I'm glad you've been able to make the necessary transitions. It's really hard to work your way back through relationships and life's dreams. I think the first 3-5 years are the toughest.
I have a granddaughter that loves to ride horses. My DiL also works at Horspice. It's where they take people with disabilities and introduce them to riding and taking care of the animals. I haven't been there to watch yet, but I'd love to see them work. It's amazing the connections that are made with these magnificent animals. I've never been a good rider. The horse can always sense my apprehension. I make them as nervous as I am. I'm glad you're still involved with organizing the competitions.
Post by freewheeler on Jan 20, 2014 11:19:45 GMT -8
Having two young children at the time of my accident was terrible. My children missed me when i was in rehab and had to move in with my parents. My partner had to stay working and then visiting me and the children too.
They adjusted quickly, i was worried that they would find it strange seeing mummy in a chair when i came home but they are used to it now.
As we all know, a SCI will not only affect your life, it will affect the lives of those around you. I found this little bit of information that some of you might find useful.
Having a disability like a spinal cord injury [SCI] creates a lot of questions about who you are, who you want to be, and how other people, including your family, will interact with you. You need to figure out how you’ll live your life as a person with a disability. This section offers some ideas for ways to think about these personal questions. You’ll be faced with many new emotions and challenges. Unlike questions about your physical needs, personal and social questions have no exact answers. What you decide to do with your personal and social life is up to you.
I know that my wife and me are still working through a few issues here at home.
Adjusting to life with a spinal cord injury may take many months or many years for both you and your family. Some of the emotions which you and your family feel are similar to those of most people who are grieving. You may go through a time of:
fear denial bargaining depression anger mourning (see Reaction to loss).
You and your family may experience these emotions in different ways and at different times. You may be feeling depressed about your injury and what has happened to you while, your partner, parents, or other family members may be feeling very angry about what has happened to you. Because you may be experiencing different feelings at different times, you and your family members may feel lonely and confused.
Excellent post! About 2009 --I only came to be aware of the toll on my family, friends, adequateness-- because of my lack of empathy, dulled emotions. my protection was intentional actions that 'pushed' people away that I feared getting emotionally bonded with. I was great at sabotaging relationships , based on my fears of going through another loss and/or rejection.
I understand exactly where you are coming from dannygilman. Its good that you recognise this. I did very similar myself shortly after my initial injury. I dealt with everything alone mostly and shut my mother out especially, even though she was the one who helped me the most. It was almost like i was trying to prove that i didnt need her although i still did.
Butiki this is excellent topic. Lαrα, I am very glad you are back to some activities you enjoyed prior. Extended families will adjust, I think that in these situations only a parent can truly hurt for a child and others unfortunately just evaluate what they have lost now that things are not the same. Transitions are difficult but necessary, and it is absolutely impossible to please everyone.
Having two young children at the time of my accident was terrible. My children missed me when i was in rehab and had to move in with my parents. My partner had to stay working and then visiting me and the children too.
They adjusted quickly, i was worried that they would find it strange seeing mummy in a chair when i came home but they are used to it now.
It's amazing freewheeler how quickly the kids adapt to these kind of situations. My son who was 10 at the time of my injury found it a bit hard to cope with at first, but he's fine now, treats me like any other dad, and my two and a half year old daughter, I think was to young to have any impact on her, as she was only 18 months old, I'm just dad.
Great post indeed Butiki, although I'm the one that suffered physically, it's my family that has truly suffered in all the other ways. Our lives have changed completely but there's no point looking back so forward it is!
Post by freewheeler on Feb 12, 2014 0:07:09 GMT -8
Well i have learnt that over the years that nothing stays the same. Endings. new beginnings and change is inevitable as nothing stays the same.
Our children may learn this before others and some never experience this until they are adults but maybe it just means that they will be more adapt to change and cope better with earlier experiences
Post by deanertheweiner on Feb 16, 2014 21:05:59 GMT -8
My family definitely has been through a lot, but they don't mind helping me with the physical aspects (feeding, dressing, etc) because they love me. They also try to stay strong emotionally so that I keep a positive attitude. I'm sure most of your families try to act the same way. I know DJ family does.