since you said "U2FP doesn't lobby drugs and trials", in your opinion, which SCI orgs should do that when it becomes necessary?
Paolo
You know quite a lot about the SCI world that you shouldn't need to ask Grammy this question, but in case you don't know, you could do an internet search for groups to do this work. i don't know if the group exists so you and Bob would be better off doing the work yourselves rather than finding out who to blame for not doing it.
So, will you and Bob be lobbying and pushing Acorda over this issue? You could have written to them about fifty times already instead of writing the same thing over and over and over and over and over and over and over on this thread.
Dennis Tesolat
www.StemCellsandAtomBombs.org ______________
"Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
Martin Luther King
My point is: in your opinion, which SCI orgs should do that when it becomes necessary?
Paolo
When it becomes necessary? HUH? How do you expect me to be able to make future predictions on inventions about drugs being developed at all these different companies that don't currently even exist? I'm no soothsayer Paolo. If I die tomorrow, my predictions wouldn't go down in history anyway.
My point is: in your opinion, which SCI orgs should do that when it becomes necessary?
Paolo
When it becomes necessary? HUH? How do you expect me to be able to make future predictions on inventions about drugs being developed that don't currently even exist? I'm no soothsayer Paolo. If I die tomorrow, my predictions wouldn't go down in history anyway.
(When it becomes necessary? HUH?)
It's not about predictions; he's asking you if any present organization would take on the challenge of pushing a company like acorda to expedite human grade chase? I really thought that's what U2F was supposed to be about. Or, is it because Acorda is your sponsor you are avoiding the issue. As far as individuals writing to Acorda that's not a good option, we need to Unite2 fight I thought!
Grass roots advocacy fertilized by Big Pharma-DICHOTOMY at it's best
My point is: in your opinion, which SCI orgs should do that when it becomes necessary?
Paolo
When it becomes necessary? HUH? How do you expect me to be able to make future predictions on inventions about drugs being developed at all these different companies that don't currently even exist? I'm no soothsayer Paolo. If I die tomorrow, my predictions wouldn't go down in history anyway.
Grammy,
there is definitely a language barrier here. Let me rephrase my question once more:
since you said "U2FP doesn't lobby drugs and trials", in your opinion, which SCI orgs should do that in case it would become necessary tomorrow?
When it becomes necessary? HUH? How do you expect me to be able to make future predictions on inventions about drugs being developed at all these different companies that don't currently even exist? I'm no soothsayer Paolo. If I die tomorrow, my predictions wouldn't go down in history anyway.
Grammy,
there is definitely a language barrier here. Let me rephrase my question once more:
since you said "U2FP doesn't lobby drugs and trials", in your opinion, which SCI orgs should do that in case it would become necessary tomorrow?
Paolo
When it becomes necessary? HUH? How do you expect me to be able to make future predictions on inventions about drugs being developed at all these different companies that don't currently even exist? I'm no soothsayer Paolo. If I die tomorrow, my predictions wouldn't go down in history anyway.
since you said "U2FP doesn't lobby drugs and trials", in your opinion, which SCI orgs should do that when it becomes necessary?
Paolo
You know quite a lot about the SCI world that you shouldn't need to ask Grammy this question, but in case you don't know, you could do an internet search for groups to do this work. i don't know if the group exists so you and Bob would be better off doing the work yourselves rather than finding out who to blame for not doing it. Apparently neither of your fingers are broken.
Why don't you and/or Paolo do this? It's actually quite simple and if you feel confident that this is the answer, then go ahead and do it. Why is this someone else's job?
So, will you and Bob be lobbying and pushing Acorda over this issue? You could have written to them about fifty times already instead of writing the same thing over and over and over and over and over and over and over on this thread.
thanks for the clarifications, so now I understand better why U2FP never took action to put pressure on Acorda to get Chondroitinase to clinical trials as was suggested by Dr. Jerry Silver.
So, in your opinion, which SCI org should have done that?
Paolo
Yet again, there is no human drug developed and there is no trial in existence. It's a moot point. I've given the community the same information links and provided every link of the video presentations repeatedly. I do remember writing in my latest research report that Sigma made a nice clean research reagent for scientists to use. You could take some action yourself by contacting them to see if they could possibly make a human grade formula. In the meantime, have you bothered to call Spinal Research, Acorda or Novartis yourself for their updated reports to see how they are coming along in developing a human product for CSPG inhibition in their labs or is it that you are proposing someone else should do that for you?
As stemcellsnatombombs already asked you...
You know quite a lot about the SCI world that you shouldn't need to ask Grammy this question, but in case you don't know, you could do an internet search for groups to do this work. i don't know if the group exists so you and Bob would be better off doing the work yourselves rather than finding out who to blame for not doing it. Apparently neither of your fingers are broken.
Why don't you and/or Paolo do this? It's actually quite simple and if you feel confident that this is the answer, then go ahead and do it. Why is this someone else's job?
So, will you and Bob be lobbying and pushing over this issue? You could have written to all of these biotech's about fifty times already instead of writing the same thing over and over and over and over and over and over and over on this thread.
You know quite a lot about the SCI world that you shouldn't need to ask Grammy this question, but in case you don't know, you could do an internet search for groups to do this work. i don't know if the group exists so you and Bob would be better off doing the work yourselves rather than finding out who to blame for not doing it.
So, will you and Bob be lobbying and pushing Acorda over this issue? You could have written to them about fifty times already instead of writing the same thing over and over and over and over and over and over and over on this thread.
Ya think?
As far as individuals writing to Acorda that's not a good option, we need to Unite2 fight I thought!
Yet again, there is no human drug developed and there is no trial in existence. It's a moot point. I've given the community the same information links and provided every link of the video presentations repeatedly. I do remember writing in my latest research report that Sigma made a nice clean research reagent for scientists to use. You could take some action yourself by contacting them to see if they could possibly make a human grade formula. In the meantime, have you bothered to call Spinal Research, Acorda or Novartis yourself for their updated reports to see how they are coming along in developing a human product for CSPG inhibition in their labs or is it that you are proposing someone else should do that for you?
Yet again, there is no human drug developed and there is no trial in existence. It's a moot point. I've given the community the same information links and provided every link of the video presentations repeatedly. I do remember writing in my latest research report that Sigma made a nice clean research reagent for scientists to use. You could take some action yourself by contacting them to see if they could possibly make a human grade formula. In the meantime, have you bothered to call Spinal Research, Acorda or Novartis yourself for their updated reports to see how they are coming along in developing a human product for CSPG inhibition in their labs or is it that you are proposing someone else should do that for you?
As stemcellsnatombombs already asked you...
You know quite a lot about the SCI world that you shouldn't need to ask Grammy this question, but in case you don't know, you could do an internet search for groups to do this work. i don't know if the group exists so you and Bob would be better off doing the work yourselves rather than finding out who to blame for not doing it. Apparently neither of your fingers are broken.
Why don't you and/or Paolo do this? It's actually quite simple and if you feel confident that this is the answer, then go ahead and do it. Why is this someone else's job?
So, will you and Bob be lobbying and pushing over this issue? You could have written to all of these biotech's about fifty times already instead of writing the same thing over and over and over and over and over and over and over on this thread.
I went to a conference at "Push to Walk" in riverdale, NJ a place I work out in. It was held by Accorda, talked to a few patients there who had MS, listened to their stories about using Ampyra. I asked the Doc who was speaking if there was any information on its efficacy for TM they had no information for me. The patients with MS had some good results mostly with stamina and endurance while doing exercise. Nothing earth shattering. Emailed the company to see if they had done, are doing, or planned on doing any trials with TM never got a reply. Never followed up with them after that.
tbone57,
Wow, "Push to Walk" is one of our sponsors! Here's your information on the TM trial posted about a month ago by Dr. Michael Levy from John Hopkins and the link at clinical trial. gov. you were looking for. He's explaining all of the statistics and benefits seen in the Multiple Sclerosis trials where they tested this dalfampridine drug called Amprya. He also explains the redesign of this new TM trial that he's referenced in the patient recruiting information if you're interested. Perhaps they were in the middle of the trial redesign when you tried to contact them and that's why you didn't get an answer. I also need to make my disclaimer perfectly clear. I did not check to see if the physician on this video gave proper FDA information, nor am I selling a pharmaceutical or clinical trial to you. I'm not your doctor. You're strictly on your own with Dr. Levy. I'm only sharing this information with you as cookie baker from the internet since I'm not a spokesman for anything or anybody but myself. Hope this helps on the information you were searching for. Good luck!
OK, copy that grammy, I will watch that video and glean whatever information I can from it, much appreciated. Ive been working out at Push to Walk for about year and half now, great bunch of people there!!
Yet again, there is no human drug developed and there is no trial in existence. It's a moot point. I've given the community the same information links and provided every link of the video presentations repeatedly. I do remember writing in my latest research report that Sigma made a nice clean research reagent for scientists to use. You could take some action yourself by contacting them to see if they could possibly make a human grade formula. In the meantime, have you bothered to call Spinal Research, Acorda or Novartis yourself for their updated reports to see how they are coming along in developing a human product for CSPG inhibition in their labs or is it that you are proposing someone else should do that for you?
As stemcellsnatombombs already asked you...
You know quite a lot about the SCI world that you shouldn't need to ask Grammy this question, but in case you don't know, you could do an internet search for groups to do this work. i don't know if the group exists so you and Bob would be better off doing the work yourselves rather than finding out who to blame for not doing it. Apparently neither of your fingers are broken.
Why don't you and/or Paolo do this? It's actually quite simple and if you feel confident that this is the answer, then go ahead and do it. Why is this someone else's job?
So, will you and Bob be lobbying and pushing over this issue? You could have written to all of these biotech's about fifty times already instead of writing the same thing over and over and over and over and over and over and over on this thread.
This thread is not about any individuals writing to Acorda, It's about an Advocacy group like your's grammy that has financial ties to Pharma and how that relationship could prevent you from asking Acorda for some action so some of the people in the community you represent could breath unassisted.
Grass roots advocacy fertilized by Big Pharma-DICHOTOMY at it's best
Bob, but this is boring. By asking me the same question repeatedly, you obviously don't listen or instead you have choosen not to.
Chondroitinase ABC (Ch'ase) needs to be taken out of it's current bacterial form. Scientists need to be able to change the molecular properties of it. Acorda was invited to speak about it at W2W. I posted that video here for you as requested. There is no drug made yet. They're still researching how to make a human CSPG inhibitor. Many labs around the world are working on this same issue. Acorda has not yet accomplished a complete human formulation version in their development labs yet that been reported that I'm aware of.
There is no drug. Only research.
The Spinal Research of UK was invited to W2W to speak also just a couple months ago. I posted that link for Paolo. They've been funding this line of research for many years and Dr. Bacon said they are now ready to start transitioning all of their years research towards human trials and have started setting up teams. Please see that symposium video to hear his report. Dr. Silver is working with this team. Novartis has not yet accomplished a complete human formulation version in their development labs yet that been reported that I'm aware of either.
There is no drug. Only research.
Yet again, there is no human drug developed and there is no trial in existence. It's a moot point. I've given the community the same information links and provided every link of the video presentations repeatedly. I do remember writing in my latest research report that Sigma made a nice clean research reagent for scientists to use. You could take some action yourself by contacting them to see if they could possibly make a human grade formula. In the meantime, have you bothered to call Spinal Research, Acorda or Novartis yourself for their updated reports to see how they are coming along in developing a human product for CSPG inhibition in their labs?
I have no updates since Dr. Bacon presented the current information on video about 90 days ago. You and Paolo volunteered to make your own inquiries with all of these biotech and pharmaceutical companies to see how their progress is coming along. Thanks for your hard work in helping the community with it.