Inspired Spinal Cord Injury Support Forum

Lαrα
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Date Injured: March 2011

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Why Does Cauda Equina Syndrome Affect Everyone Differently? May 5, 2014 10:42:09 GMT -8

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Post by Lαrα on May 5, 2014 10:42:09 GMT -8

Hey cesamyseed, good to see you back! Im real pleased that you have found the info helpful...I too found the video especially informative and it helped me understand how and why my CES affected me as it does.

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chrioli
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Why Does Cauda Equina Syndrome Affect Everyone Differently? Apr 28, 2015 4:28:26 GMT -8 via Inspired Mobile

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Post by chrioli on Apr 28, 2015 4:28:26 GMT -8

Mar 17, 2014 11:28:00 GMT -8 Lαrα said:

katydid and kilg0retr0ut...we are seriously aiming to become and excellent resource for Cauda Equina Syndrome. Developing understanding of CES is very important and much needed.

We have also given CES its own forum now too on 'Inspired'....information will grow also grow too.

katydid..if you look at the diagram on the original thread you will see that different areas of the foot are affected by different nerve roots..Therefor it depends which were damaged and how much compression was involved. If you click on the linked video, you will see how this happens

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Why Does Cauda Equina Syndrome Affect Everyone Differently? Apr 28, 2015 4:34:18 GMT -8 via Inspired Mobile

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Post by chrioli on Apr 28, 2015 4:34:18 GMT -8

Lara,
Thank you for devoting so much toward Cauda Equina education. Most sights contain red flags and surgery. But CES is life altering and long term! I am noticing since the initial shock of injury settles down I am experiencing more weakness to my legs. Could this be because of the beginnings of muscle atrophy?
Thx
You rock;)

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Lαrα
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Why Does Cauda Equina Syndrome Affect Everyone Differently? Apr 28, 2015 9:45:09 GMT -8

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Post by Lαrα on Apr 28, 2015 9:45:09 GMT -8

Apr 28, 2015 4:34:18 GMT -8 chrioli said:

Lara,
Thank you for devoting so much toward Cauda Equina education. Most sights contain red flags and surgery. But CES is life altering and long term! I am noticing since the initial shock of injury settles down I am experiencing more weakness to my legs. Could this be because of the beginnings of muscle atrophy?
Thx
You rock;)

chrioli, thankyou, i feel very fortunate to have the opportunity to do so!

Are you legs becoming gradually weaker?

What we would be hope to occur is that after your decompression surgery, you would start to make some improvements. If you had delayed surgery then there is the possibility that improvements will be less, or not at all.

The issue with your legs could be due to lack of signal to some of the muscles ( if compression has caused long term damage) and yes muscles can become weaker due to inactivity after surgery and become atrophied. Pain can also cause weakness.

But its really important to remember that any muscles that you have signal to, you need to exercise them...your strength will develop. Ideally you need an assessment so you know what your muscle gradings are.

Have you been ASIA graded?

Of course, if your legs are becoming weaker and you are noticing this then you need to make sure that you have no further issues by speaking to your consultant.

brendaanderson New Member Posts: 1 Reputation: 0 Likes Date Joined: November 2019 Member is: Offline Send PM	Why Does Cauda Equina Syndrome Affect Everyone Differently? Nov 25, 2019 1:59:28 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by brendaanderson on Nov 25, 2019 1:59:28 GMT -8 Thanks for sharing your experience.

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Why Does Cauda Equina Syndrome Affect Everyone Differently?

Post by Lαrα on May 5, 2014 10:42:09 GMT -8

Post by chrioli on Apr 28, 2015 4:28:26 GMT -8

Post by chrioli on Apr 28, 2015 4:34:18 GMT -8

Post by Lαrα on Apr 28, 2015 9:45:09 GMT -8

Post by brendaanderson on Nov 25, 2019 1:59:28 GMT -8

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