I am asking another question but since I am new, I have a lot of questions, thanks for taking the time to read my post and question.
My brother is C4 complete, accident happened on June 3 2013 so its early days. He broke his left wrist and femur too but have some movement in lower arms, wrists, feeling in thumbs and can shrug his shoulders. He is breathing on his own too. He was moved after 4 weeks from intensive care into a special spinal rehab hospital where he has started a programme of physiotherapy and ot.
we are having reservations about the level of care he is getting. Don't get me wrong, the doctors, nurses and physios are fantastic and professional. it is really to do with what i suspect might be hospital funding as there is one physio to about 9 patients so he does not get one on one care. Also there seems to be an attitude that he will do the bare minimum, just enough to be able to get him marginally independent. there is no push or positive encouragement for recovering as much as possible.
So i wanted to ask, what should we expect from a rehabilitation centre? we are in Ireland so the setup might be different that the States. however surely, the same things count, having good doctors, nurses, physiotherapists, level of positivity, facilties, etc..
We have started looking outside and see amazing places with technologies, project walk for example, Guttmann institute in Barcelona, where it is far more specialised but yes more expensive.
could you please share what you think is important for a newly injured SCI patient in terms of doctor/nurse/physio/rehab treatments and facilities care? Do you get what you pay for??
Thanks so much and best wishes to all.
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Hi, To be honest the lack of one to one on physio isn't good. My rehab was in England and ive had two physios working on the legs at the start and then one to one. Iv'e also seen 3 physios working with quads initially, then two and then down to one.
This is an important time in terms of rehabilitation. Start doing a daily log in respect to your brother's physio..also any concerns you have. Project walk sounds amazing...but look at all options, check them out and go with your written log and ask them what they will do differently in terms of physio and ensure that they address all of your concerns.
Check out the patients charter at the center he is in now and make sure that they are giving the service they promise, if they are not doing what they say they state they do then address it with them but either way let them know that you are not happy with them. Never worry that you are going to upset them.....speak out and don't accept nothing less than your brother deserves.
It should never come down to funding but sometimes this seems to happen, if you can afford to pay privately then I would think its a road you may have to go down but its not fair that you should have to pay.
DJ im sure would be happy to tell you about a place he comes to in Canada, ive seen the work they do and to be honest, its pretty amazing .
Lαrα, I'm surprised people have 2-3 physio in England! Here in Canada we'd normally have 1 physio and sometimes a student as well for an hour each day. I really think 1 hour is too little and it should be 2 at the very least. To answer your question dunly, you shouldn't have high expectations of a rehab centre as in my experience and from what I've heard don't really strive for recovery but other private physiotherapy locations such as project walk would be great! Oh, by the looks of it, your brother must be incomplete which is excellent news and from what I've seen, they work harder with the incompletes because of the higher chance of recovery. It's those two words, incomplete and complete that determine what kinda treatment you get, unfortunately.
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For the newly injured i think its very important to have them understand what is happening and why. If you're driving down the highway and your car suddenly stops and you have no clue why then hundreds of things will run through your mind and you'll have no idea what to do. In the same respect, a new SCI needs to understand what's happened and what he can do about it. Trained medical specialists are very important but its the patients body at the end of the day so his recovery will be highly dependant on his motivation and understanding of the situation, and psyche.
Good rehab facilities should be very clean, programs ran by registered nurses, have qualified doctors overlooking all patients, psychologist/psychiatrist should be available and checking up on patients periodically, patients should be receiving all therapies available that are deemed potentially beneficial, quick call bell response, nutritionists should be overlooking patient diets, have a variety of equipment to serve all levels of function, friendly staff who will be your friend, and an overall positive attitude and moral throughout the facility.
For the newly injured i think its very important to have them understand what is happening and why. If you're driving down the highway and your car suddenly stops and you have no clue why then hundreds of things will run through your mind and you'll have no idea what to do. In the same respect, a new SCI needs to understand what's happened and what he can do about it. Trained medical specialists are very important but its the patients body at the end of the day so his recovery will be highly dependant on his motivation and understanding of the situation, and psyche.
Good rehab facilities should be very clean, programs ran by registered nurses, have qualified doctors overlooking all patients, psychologist/psychiatrist should be available and checking up on patients periodically, patients should be receiving all therapies available that are deemed potentially beneficial, quick call bell response, nutritionists should be overlooking patient diets, have a variety of equipment to serve all levels of function, friendly staff who will be your friend, and an overall positive attitude and moral throughout the facility.
Hi jerseyboy, thanks so much for your great reply. Apologies for my delayed response, lots of errands to run over here. It means a lot to know what to look for as we move into the next stage of rehab for him. If you are interested, please see his first blog post which he has started. Would love to get in touch and chat. Thanks to all. Much appreciated.
For the newly injured i think its very important to have them understand what is happening and why. If you're driving down the highway and your car suddenly stops and you have no clue why then hundreds of things will run through your mind and you'll have no idea what to do. In the same respect, a new SCI needs to understand what's happened and what he can do about it. Trained medical specialists are very important but its the patients body at the end of the day so his recovery will be highly dependant on his motivation and understanding of the situation, and psyche.
Good rehab facilities should be very clean, programs ran by registered nurses, have qualified doctors overlooking all patients, psychologist/psychiatrist should be available and checking up on patients periodically, patients should be receiving all therapies available that are deemed potentially beneficial, quick call bell response, nutritionists should be overlooking patient diets, have a variety of equipment to serve all levels of function, friendly staff who will be your friend, and an overall positive attitude and moral throughout the facility.