So.....this question is in general to everyone and especially my Cauda Equina colleagues..
I have lack of sensation around my saddle area (mostly numb) and down the back of my legs, sides of my legs and my feet.
I manage to walk even though my feet are very numb....the soles of my feet even though they are numb feel like i have pieces of wood stuck to the bottom..its a strange sensation. I never imagined that I would be able to walk because of how numb my feet are but I can. I prefer to not wear anything on my feet around the house and when i walk outside i tend to look down a lot. I used to always have to look where I placed my feet but i'm so much better at it now.
My upright mobility is restricted..for longer distances i need a chair but i am pleased that i have the mobility that i do have and i still need my crutches.
Post by kilg0retr0ut on Jul 29, 2013 9:14:20 GMT -8
Same with me lara. Saddle area still numb. It used to feel like I had a rock in my shoe, a big rock.( sometimes I couldn't walk on it) That went away after awhile, but I have a hot spot under the pad of my right foot. It was really bad for about a year, I was actually walking on the heel and side of my foot to avoid the pain. I didn't realize I was doing it till my P.T. looked at the bottom of my shoe(you could see the wear marks), and the doc agreed. They put a fancy skin like pad under my foot to relieve the pressure, and it helped alot with my old braces. My new one's were padded so it only bothers me when I stay on my feet to long. My P.T. asked me when watching my gait if I realized I was always looking down when I walked, I didn't. Had to work on that. I will say after my operation I had zero muscles down the back of my legs, and my bottom was gone, aways felt like I was sitting right on bone. Things have been getting better over time. I have regained some muscles in the backs of my legs, and my botttom(not going to be cracking walnuts with it) has also regained some shape and padding. That may be too much info:)
Post by kilg0retr0ut on Jul 29, 2013 9:59:43 GMT -8
For sure on the burning, mine isn't too bad. My right leg is my good leg but it also has more feeling so I have more pain in it. At first it always felt like my leg in foot were really tight. (having a hard time explaining) it just felt like it kept getting tighter and tighter, I would stretch to relieve some of it but it's still tight. My right foot feels gnarled for lack of a better word, like my foots has a death grip on something, always. They have talked about cutting tendons, but my doc thinks I would lose some balance because I kinda use my toes, hence the curled under toe deal. I walk on my toenails(eeww kinda creepy), and also have this hammer toe thing thats not all that comfortable, but it is what it is. Once again, I feel so lucky to have the return I got.
kilg0retr0ut Oooh its all wierd eh? I also feel that tightening and I also get bad spasms in the ankles and toes. They can turn inward or outward but it hurts! LOL and my ankles just spaz left or right so tight that its a struggle to straighten them...lol it actually does amuse me sometimes, i guess thats odd
When I walk (wobble, and sometimes drag my left leg while leaning on a walker) it feels like I am floating, in a way. I can feel the fronts of my thighs and not much else. I don't dare walk barefoot and don't walk very often as of late as my fusion is messed up. Occasionally I can feel weight through my right leg.
When I walk (wobble, and sometimes drag my left leg while leaning on a walker) it feels like I am floating, in a way. I can feel the fronts of my thighs and not much else. I don't dare walk barefoot and don't walk very often as of late as my fusion is messed up. Occasionally I can feel weight through my right leg.
I understand the floating feeling....i felt this often when i first started walking, i felt very wobbly on a walker and could not ever imagine moving onto crutches.
I find i prefer to walk barefoot as it helps me to position my feet and feel a little better. It's def strange when we feel in some places and then not others.. :shrug:
Sorry to hear about the messed up fusion, i hope it gets sorted soon for you....
Post by ladylimpsalot on Aug 23, 2013 17:51:58 GMT -8
I walked with a walker for several months. Then one day I felt better, or safer, that balance had improved and moved onto a quad cane. I've recently started walking unsupported. But I have walked, and walked, and walked and try to get onto the treadmill several times a week.
The numbness is still there going from my butt to my toes but I want to hold on to what I have and continue to move. I feel tremendously blessed that I am able to keep going.
Thats great to hear ladylimpsalot...sounds like your getting stronger!...so good to hear about the walking unaided..keep up the great work! ....I guess the numbness may be here to stay..my numbness has never altered since it all developed but i have got stronger since the initial onsett of CES
For sure on the burning, mine isn't too bad. My right leg is my good leg but it also has more feeling so I have more pain in it. At first it always felt like my leg in foot were really tight. (having a hard time explaining) it just felt like it kept getting tighter and tighter, I would stretch to relieve some of it but it's still tight. My right foot feels gnarled for lack of a better word, like my foots has a death grip on something, always. They have talked about cutting tendons, but my doc thinks I would lose some balance because I kinda use my toes, hence the curled under toe deal. I walk on my toenails(eeww kinda creepy), and also have this hammer toe thing thats not all that comfortable, but it is what it is. Once again, I feel so lucky to have the return I got.
Just wanted to say I know exactly what you mean about the piece of wood on the bottom of your feet. In 2006 I nearly lost part of my finger, they had to call in the hand surgeon in the middle of the night for essentially emergency surgery to put my finger back together. After it was all healed and I was able to start using it, I described it as feeling like there was something between my finger and whatever I was touching. Like trying to hold on to a bowl for example, felt like there was something between my finger and the bowl despite the contact. Its an odd/interesting sensation. For the most part though with my finger the nerves recovered, so I have nearly normal sensation now.
I have a genetic connective tissue disorder called EDS with neuro complications
Just wanted to say I know exactly what you mean about the piece of wood on the bottom of your feet. In 2006 I nearly lost part of my finger, they had to call in the hand surgeon in the middle of the night for essentially emergency surgery to put my finger back together. After it was all healed and I was able to start using it, I described it as feeling like there was something between my finger and whatever I was touching. Like trying to hold on to a bowl for example, felt like there was something between my finger and the bowl despite the contact. Its an odd/interesting sensation. For the most part though with my finger the nerves recovered, so I have nearly normal sensation now.
Hi lin....thats interesting to hear, i thought only i ever felt this lol its an unusual feeling..i feel it all the time but im so used to it that it has become normal :shrug: Good they saved your finger lin!