For many people with Cauda Equina Syndrome who have suffered CESthrough mis diagnosis this, im sure will have been questioned. We now know that Cauda Equina is not quite as rare as we are led to believe. Healthcare practitioners are made very aware of the condition so lack of awareness and and information is no excuse.
So why is this very serious condition still missed?
I have a personal opinion on this..as an example..you have visited the doctor and are presenting with some or all or the Red Flag Signals for Cauda Equina Syndrome. The doctor fails in his care of duty because he decides..in his superior wisdom that you in fact do NOT have Cauda Equina Syndrome and send you home with painkillers and if you are exceptionally fortunate, a physio assessment.
There we have the problem....right there
General pracitioners/doctors cannot diagnose CES but they are certainly trained to recognise it. So if they cannot diagnose it..then they cannot say you dont have it either.
If your doctor suspects it...or recognises any Red Flag Signals (which is their duty to do) all they have to do is refer you for a scan...
Thats it..job done..responsibility taken and then pass it on for the hospital to say yes or no. This is, in my opinion, what they are not understanding.
It would take some amazing doctor with supernatural talent to be able to say you have in fact got Cauda Equine Syndrome or not.
It is not even their place to attempt diagnosis..they are not qualified to do so...but what they do have to do...is remember their training and remember that if they suspect or are visited by a patient who presents some or all of the red flag signals then this is a medical emergency and they MUST send the patient for a scan.
At that point their job is done and duty of care carried out.
In the UK if you call an out of hours medical service the operator is given a checklist of questions and as part of this checklist they ask if you are suffering any numbness, bladder and bowel probs...difficulty walking.
Lαrα, our hospital has a CT scan but unfortunately no MRI. We have to fly to either Darwin or Adelaide for that.
To be honest that should not have been your problem Butiki...nor should be the geographical distance and the country's inability to provide appropriate infrastructure.
It's not just CES that's misdiagnosed or missed entirely. I know people who go in with symptoms that seem all over the board and totally unrelated. The doctor doesn't make a connecton that something needs further study because the symptoms are so varied.
Another reason some of the incomplete syndromes are missed or shoved under the rug, is because of patient error. We fail to mention certain things that may be red flags because we fear an answer or because we don't connect them in our own minds.
Say you go to the doctor with leg pain, pins and needles numbness...that's all you mention. You fail to mention the fact that you've not had a BM in a week or more and that has been going on for some time. You fail to mention changes in urination because you don't notice. Perhaps you fail to mention change in sex drive because none of that has anything to do with the sciatica you think you have. So, CES get's missed.
Upper injuries get missed for the same reason. Only the neck pain and inability to move your neck without pain is mentioned, not the inability to wash one's hair in the shower because your arm's get tired or the B&B changes or the sex drive change....etc. Diminished sensation creeps up....none of this clicks in your head. I didn't in mine. Nor in any of the doctors that i saw.
It's error on all parts usually not just on the part of the doctor. I am in NO WAY defending doctors. Nor am I defending the physician's assistants they have attempting to diagnose problems, but actually end up making things worse because there is no disclosure. By the time a person finds out they have an SCI so many doctors have been seen that the final doctor who gets the unhappy task of diagnosing an SCI ends up facing a possible lawsuit because the other guys dropped the ball and he or she was the only one willing to step up and tell you what's wrong.
In the US people can and will sue for anything. Doctors don't always give a firm diagnosis out of fear sadly for us.
I hear what you are saying larue but i also disagree with some points....If, for example,someone goes to their doctor with leg pains and pins and needles it is the responsibility of the doctor to question the patient further and of course examin.
They are the ones with the knowledge and training and expertese...they know that it is not 'normal' to have leg pain and pins and needles so at the point of consultation they have a duty of care to question. They already have the knowledge of Cauda Equina Syndrome and they are already aware of the red flag signals, we as patients do not have this knowledge. So if they have a patient who is presenting some red flag signals then they must question to find out if they have or may be starting with any additional ones.
This is their job..simply.
I would imagine that if a patient is going to visit their doctor because of such issues already then they are worried and want help... Is it not possible that the bowel movement (to use your example) is not mentioned by the patient because they see no association? Which to be fair, you would only expect a medical practitioner to know of the association and CES.
Again..its their duty of care to question so they get a full picture of the problem and they can rule out a serious neurological issue such as CES.
Then all they have to do is arrange a scan..thats it..their job is done...and if it isnt done..then they are responsible for the consequence that comes with failing in their duty. In my opinion of course...and also a legal one.