My Nerve Pain

I remember talking to my neurosurgeon about this nerve pain as i have the same too and other than lyrica he said to try take my mind off it and keep busy. Quite crazy i thought but in regards to the burning pain keeping busy does help because i asked him why do my feet burn so much more at night...He replied explaining that they actually burn all of the time but i notice more at night when myself and my mind are at rest.

All this nerve pain is initiated by the brain in a response to danger as the brain is confused by the disruption in the signal in the nerves to parts of the body...it therefor tells us that there is a problem there and to protect that part of the body it initiates pain. ...crazy business if you ask me lol


Also..to add...i get bad spasms in my ankles/toes and was offered baclofen ...i would have taken it but for the fact that i was also advised that it would more than likely affect my upright mobility...so i chose not to go onto it.

Ive also noticed that my brain tells my feet that they are significantly hotter than the room/outside temperature..always...it fluctuates with as temperatures change..my brain is trying to help me out by saying 'hey your burning there..act on it'!! lol but its a mess up to be honest lol

I've tried lyrica and it bums me out and i'm always out of it. Also tried cymbalta and it causes severe spasticity. So nothing yet.

Damn side effects. 

I didn't have horrible nerve pains until I had left the hospital.  Then the electric shocks would wake me up regularly at 3am.  I called my doctor, he prescribed Gabapentin.  I took this for several months walking around with what I call Gababrain.  I used to be smart, I used to have a great memory.  Now all of a sudden I was feeling that I was in a state of sluggishness with no energy whatsoever.

Then one day I stared spitting teeth.  I broke two molars.  Guess what one of the rarer side effects of Gabapentin is?
I went to the internet.  Normally, I might consider asking my doctor, but I was already aghast at what the doctor had prescribed.  Didn't he know about the side effects?  He had not mentioned any of them.

I personally think that the other folks with CES might know more.  To me it is more likely that each patient would research this info for themselves and the people in the groups seemed to know a whole lot more than the medical professionals.

Of course Lyrica was an option, but its main ingredient was Neurontin, the same ingredient as that of Gabapentin.  And it was a little more expensive than Gabapentin.

Several women suggested to me that I might do better on Alpha Lipoic Acid.  It was a supplement, in the B vitamin family.  I googled it along with diabetic nerve pain and found that many were taking it instead of the drug.  The recommended dosage was 500 mg.  I went down to the nutrition shop and picked some up.  I started with 3 200 mg capsules a day.  It did the trick.  I have very little nerve pain now.

I would not suggest that folks go about this like I did.  Coordinate the change with your doctor because there might be some withdrawal symptoms in coming off the Gaba and it probably ought to be done gradually.

I aim to keep all of the brain cells and the teeth that I have left.  CES has already taken so much from me, I do not want to let it have anymore.

This may be contraversial to some but personally i hate taking medication of any kind and would only leave it as a last resource. there are side effects to
I too have stinging nerve pain which i can describe as very irritating but refuse to take any form of medication. In my mind i think that in some way my legs are alive so i can endure it.
It is there 24/7 sort of part of me now, my tolerance level to pain is quite high too.
The only pill i take is oxybutylne  two 5mg a day and a caverject injection once a week  :love:

Not suggesting this guys...but we have a thread on medical marijuana with an interesting link...

inspiredsciforum.com/thread/179/medicle-marijuna