Inspired Spinal Cord Injury Support Forum

jessinskip
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Survey: Bowel care after spinal cord injury Jul 4, 2014 16:06:36 GMT -8

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Post by jessinskip on Jul 4, 2014 16:06:36 GMT -8

We are currently doing research on this important and understudied topic!

Bowel care has been identified as a key aspect for improving quality of life for individuals living with SCI. However, it has become clear that researchers and clinicians do not know very much about current bowel care practices. We are hoping to gather more details about individuals’ current bowel care practices and their cardiovascular responses to bowel care.

Individuals living with SCI everyday are the experts in this area. Your contribution to this research may help inform future individuals who sustain a SCI by describing practices currently used by individuals living with SCI. For example, it will help provide clearer explanations of bowel care practices for information manuals. Finally, it will also help to direct future research and improvements in care.

Your participation will involve a web- or paper-based survey lasting approximately 10-15 minutes.

Participants will be entered into a draw for one of three $100 gift cards and will also have the opportunity to meet with our Nurse Continence Advisor, if interested.

To begin the web-based survey, request a paper based survey or find out more information, please follow this link

Thank you very much for your participation!

Jess Inskip

inskip [at] icord.org

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DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Survey: Bowel care after spinal cord injury Jul 4, 2014 16:52:11 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Jul 4, 2014 16:52:11 GMT -8 Welcome and good luck with the research study jessinskip!
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Butiki Advanced Member Posts: 2,270 Post Likes Received: 1,154 Date Joined: July 2013 Injury: L 3 ASIA B CES Date Injured: 16/11/2012 Member is: Offline Send PM	Survey: Bowel care after spinal cord injury Jul 4, 2014 17:10:51 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Butiki on Jul 4, 2014 17:10:51 GMT -8 I am more than happy to do the survey, as soon as I'm on my desk top.
	Just do it

wavewolf Advanced Member Posts: 1,407 Post Likes Received: 1,159 Date Joined: July 2013 Injury: T9 incomplete + other neurological Date Injured: 10 February 2009 Member is: Offline Send PM	Survey: Bowel care after spinal cord injury Jul 4, 2014 18:53:48 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by wavewolf on Jul 4, 2014 18:53:48 GMT -8 Wanted to do survey, but link did not work. This certainly is #1 quality of life issue for me... You might want to read info under B&B on this forum, posted by DJ. Tells it like it is.
	DJ likes this Hoea ra!

Butiki
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Survey: Bowel care after spinal cord injury Jul 5, 2014 21:55:52 GMT -8

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Post by Butiki on Jul 5, 2014 21:55:52 GMT -8

Jul 4, 2014 18:53:48 GMT -8 wavewolf said:

Wanted to do survey, but link did not work. This certainly is #1 quality of life issue for me... You might want to read info under B&B on this forum, posted by DJ. Tells it like it is.

Same here, link doesn't work

Just do it

barny New Member Posts: 41 Post Likes Received: 40 Date Joined: April 2014 Injury: Brown Sequard Syndrome Date Injured: 12 / August / 2012 Member is: Offline Send PM	Survey: Bowel care after spinal cord injury Jul 6, 2014 10:49:48 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by barny on Jul 6, 2014 10:49:48 GMT -8 Tried Link doesn't work.

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Survey: Bowel care after spinal cord injury Jul 6, 2014 12:24:53 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Jul 6, 2014 12:24:53 GMT -8 jessinskip...if you send myself or DJ the link, we can probably help you out

jessinskip
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Survey: Bowel care after spinal cord injury Jul 6, 2014 15:33:00 GMT -8

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Post by jessinskip on Jul 6, 2014 15:33:00 GMT -8

Jul 4, 2014 18:53:48 GMT -8 wavewolf said:

Wanted to do survey, but link did not work. This certainly is #1 quality of life issue for me... You might want to read info under B&B on this forum, posted by DJ. Tells it like it is.

Whoops!!! Really sorry about that everyone!!

Here is the link: Click here

Thanks Wavewolf - I have read the info under B&B and found it very helpful.

Thanks very much!

Jessica

DJ likes this

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Survey: Bowel care after spinal cord injury Jul 6, 2014 18:44:36 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Jul 6, 2014 18:44:36 GMT -8 jessinskip...i tidied the link
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wavewolf
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Survey: Bowel care after spinal cord injury Jul 6, 2014 19:36:19 GMT -8

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Post by wavewolf on Jul 6, 2014 19:36:19 GMT -8

Jul 6, 2014 15:33:00 GMT -8 jessinskip said:

Jul 4, 2014 18:53:48 GMT -8 wavewolf said:

Wanted to do survey, but link did not work. This certainly is #1 quality of life issue for me... You might want to read info under B&B on this forum, posted by DJ. Tells it like it is.

Whoops!!! Really sorry about that everyone!!

Here is the link: Click here

Thanks Wavewolf - I have read the info under B&B and found it very helpful.

Thanks very much!

Jessica

Glad info was helpful--also to us!

Finished survey. In question about assistive devices, I choose best answer, but actually use different means and change frequently to maximize functionality and best preserve energy. Not sure I understood the fatigue question (fatigued/tired/exhausted). There was another question that I was very unsure about, and tried to go back to find it but could not. Is there a way I could look at survey without taking it again? Thought you might want this feedback.

Hoea ra!

barny New Member Posts: 41 Post Likes Received: 40 Date Joined: April 2014 Injury: Brown Sequard Syndrome Date Injured: 12 / August / 2012 Member is: Offline Send PM	Survey: Bowel care after spinal cord injury Jul 7, 2014 12:52:42 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by barny on Jul 7, 2014 12:52:42 GMT -8 Have completed the Survey.
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jessinskip New Member Posts: 6 Post Likes Received: 5 Date Joined: July 2014 Member is: Offline Send PM	Survey: Bowel care after spinal cord injury Jul 8, 2014 8:18:52 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by jessinskip on Jul 8, 2014 8:18:52 GMT -8 Jul 7, 2014 12:52:42 GMT -8 barny said: Have completed the Survey. Thanks Barny!

jessinskip
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Survey: Bowel care after spinal cord injury Jul 8, 2014 8:23:32 GMT -8

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Post by jessinskip on Jul 8, 2014 8:23:32 GMT -8

Jul 6, 2014 19:36:19 GMT -8 wavewolf said:

Jul 6, 2014 15:33:00 GMT -8 jessinskip said:

Whoops!!! Really sorry about that everyone!!

Here is the link: Click here

Thanks Wavewolf - I have read the info under B&B and found it very helpful.

Thanks very much!

Jessica

Glad info was helpful--also to us!

Finished survey. In question about assistive devices, I choose best answer, but actually use different means and change frequently to maximize functionality and best preserve energy. Not sure I understood the fatigue question (fatigued/tired/exhausted). There was another question that I was very unsure about, and tried to go back to find it but could not. Is there a way I could look at survey without taking it again? Thought you might want this feedback.

Thanks! Yes, that would be very helpful. I am having trouble using the PM function - when I start to type your name there are no possible recipients by that name (or so it says). If you could send me an email at jinskip [at] sfu.ca I will email it to you. Many thanks, Jess

jessinskip New Member Posts: 6 Post Likes Received: 5 Date Joined: July 2014 Member is: Offline Send PM	Survey: Bowel care after spinal cord injury Jul 8, 2014 8:24:02 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by jessinskip on Jul 8, 2014 8:24:02 GMT -8 Jul 6, 2014 18:44:36 GMT -8 Lαrα said: jessinskip...i tidied the link Thanks very much Lara!!
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airohs Member Posts: 152 Post Likes Received: 136 Date Joined: August 2013 Injury: C4 / 5 Incomplete Tetraplegic Date Injured: May 23 1999 Member is: Offline Send PM	Survey: Bowel care after spinal cord injury Jul 9, 2014 10:39:40 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by airohs on Jul 9, 2014 10:39:40 GMT -8 survey done glad to help 15yr c4/5.
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Survey: Bowel care after spinal cord injury

Post by jessinskip on Jul 4, 2014 16:06:36 GMT -8

Post by DJ on Jul 4, 2014 16:52:11 GMT -8

Post by Butiki on Jul 4, 2014 17:10:51 GMT -8

Post by wavewolf on Jul 4, 2014 18:53:48 GMT -8

Post by Butiki on Jul 5, 2014 21:55:52 GMT -8

Post by barny on Jul 6, 2014 10:49:48 GMT -8

Post by Lαrα on Jul 6, 2014 12:24:53 GMT -8

Post by jessinskip on Jul 6, 2014 15:33:00 GMT -8

Post by Lαrα on Jul 6, 2014 18:44:36 GMT -8

Post by wavewolf on Jul 6, 2014 19:36:19 GMT -8

Post by barny on Jul 7, 2014 12:52:42 GMT -8

Post by jessinskip on Jul 8, 2014 8:18:52 GMT -8

Post by jessinskip on Jul 8, 2014 8:23:32 GMT -8

Post by jessinskip on Jul 8, 2014 8:24:02 GMT -8

Post by airohs on Jul 9, 2014 10:39:40 GMT -8

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