Post by lin on Aug 11, 2014 18:17:37 GMT -8
So, I'm getting a suprapubic put in on Sept 5th. I saw my Urologist last week and he recommended it to me. I have a lot of problems with IC from hand coordination issues as well as a lot of burning pain (I have no sensation issues). I also have severe nocturia as a result of my genetic disorder and autonomic dysfunction (Dysautonomia). So during the day I'll be using a flip flow valve and emptying my bladder as needed, while I'll hook up to a bed bag at night so I no longer have to get up to pee. Yay!
I'm a bit anxious, afraid of having skin complications as a result of my genetic disorder. Also afraid of it hurting. Not looking forward to the first catheter change! I asked about cath changesand my Drs nurse told me that most of their patients come in for the cath changes, but that I would be a good candidate to learn and be able to do it myself at home. I think it will come down to how uncomfortable or painful the changes are. I'm also really nervous because I'm pretty much allergic to ALL adhesives, so its going to be fun finding out what will work for me with securing the cath. And even just how to secure a full 10 inches of tubing, I'm a rather small woman! I'll probably have to zig zag it back and forth lol.
I'm really excited to not have to IC any longer. Once the weirdness is gone I think it will be "fun" being able to pee without having to pull my pants down, always been jealous of men for that 
. Lol, that reminds me a friend of mine is a female to male transgender who hasn't had surgery down below and he jokingly told me I could pee standing up and he was jealous. I think it will be much better for saving my shoulders over the years to avoid transfers to public toilets, plus nice to not have to sit on public toilets!!! And god it will be nice to go an entire night without getting up to pee 5-10 times.
