Inspired Spinal Cord Injury Support Forum

izabella New Member Posts: 21 Post Likes Received: 15 Date Joined: September 2014 Injury: CES Date Injured: Jan2014 Member is: Offline Send PM	Has Anyone Experienced This? Sept 16, 2014 5:32:33 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by izabella on Sept 16, 2014 5:32:33 GMT -8 Hey thanks for saying kilg! I dont see the point in fooling myself, what the point? :-) I just wanna get on with it and wherever it leads!!
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DJ
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Has Anyone Experienced This? Sept 16, 2014 12:50:46 GMT -8

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Post by DJ on Sept 16, 2014 12:50:46 GMT -8

Sept 16, 2014 5:29:31 GMT -8 kilg0retr0ut said:

Scared Booktrout early one morning. I'd been shocking for about 8hrs. straight, three spots all firing at the same time, which means no break in between. I was soaked screaming and had tears rolling out of my eyes. She put her head on my chest my heart was racing so fast she thought it was going to blow. I just keep in my mind that eventually they will stop.

That's crazy kilg0retr0ut!

I've been having bad nerve pain on my left feet for a couple days now.

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Has Anyone Experienced This? Sept 16, 2014 14:45:53 GMT -8

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Post by kilg0retr0ut on Sept 16, 2014 14:45:53 GMT -8

Yeah, it really sucks DJ. Hobbit said his was up, I woke up with one zapping my heel, 100 mg Lyrica did the trick in about an hour.
I think I have my meds as low as I can go and still function. I got down lower but it was felt pretty raw and it was hard to focus.
Somewhere I thought I read that 400 mg of Tramadol was the daily max. I'm at 300 mg and pretty uncomfortable. I'd like to get off this ladder.

L4/5 CES

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Has Anyone Experienced This? Sept 16, 2014 15:10:33 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Sept 16, 2014 15:10:33 GMT -8 You too eh hobbit? I wish there was a better solution to this. So many of you guys are taking a whole bunch of meds just to help with a little bit of a pain, it's terrible!

dlevy Member Posts: 126 Post Likes Received: 91 Date Joined: January 2014 Injury: T12 incomplete Date Injured: 8/18/2013 Member is: Offline Send PM	Has Anyone Experienced This? Sept 16, 2014 17:22:59 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by dlevy on Sept 16, 2014 17:22:59 GMT -8 A little bit of pain? Why do you say that?
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Has Anyone Experienced This? Sept 16, 2014 22:38:14 GMT -8

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Post by Lαrα on Sept 16, 2014 22:38:14 GMT -8

kilg0retr0ut..im sorry..ive only just noticed your post! Damn thats just not right, having to endure that. Have you told your doctor about the heart rate by the way...Beta blockers may be a thought if that happens regular.

You would think that by now there would be an effective treatment/drug that suppresses this over reaction in the brain...I guess Cannabis does just that but surely there is an alternative that can be given.

I read that drugs used for epilepsy are helpful and im presuming that they suppress the activity in the brain that is malfunctioning.

kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	Has Anyone Experienced This? Sept 17, 2014 4:29:58 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Sept 17, 2014 4:29:58 GMT -8 Sept 16, 2014 17:22:59 GMT -8 dlevy said: A little bit of pain? Why do you say that? Yes DJ, how can you say "little pain" after what I just described? Did you mean frequency between?
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Has Anyone Experienced This? Sept 17, 2014 4:33:06 GMT -8

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Post by kilg0retr0ut on Sept 17, 2014 4:33:06 GMT -8

Sept 16, 2014 22:38:14 GMT -8 Lαrα said:

kilg0retr0ut..im sorry..ive only just noticed your post! Damn thats just not right, having to endure that. Have you told your doctor about the heart rate by the way...Beta blockers may be a thought if that happens regular.

You would think that by now there would be an effective treatment/drug that suppresses this over reaction in the brain...I guess Cannabis does just that but surely there is an alternative that can be given.

I read that drugs used for epilepsy are helpful and im presuming that they suppress the activity in the brain that is malfunctioning.

Cannabis doesn't do a thing for the shocks or I'd be smoking it by the bale.

L4/5 CES

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Has Anyone Experienced This? Sept 17, 2014 4:37:34 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Sept 17, 2014 4:37:34 GMT -8 Have they recently increased or how you always suffered with them kilg0retr0ut?

kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	Has Anyone Experienced This? Sept 17, 2014 4:39:53 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Sept 17, 2014 4:39:53 GMT -8 They started 2 months after surgery.
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Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Has Anyone Experienced This? Sept 18, 2014 2:51:08 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Sept 18, 2014 2:51:08 GMT -8 Sept 17, 2014 4:39:53 GMT -8 kilg0retr0ut said: They started 2 months after surgery. I just wondered if they worsened recently..and there may be something triggering the change

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Has Anyone Experienced This? Sept 18, 2014 2:56:54 GMT -8

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Post by DJ on Sept 18, 2014 2:56:54 GMT -8

Sept 16, 2014 17:22:59 GMT -8 dlevy said:

A little bit of pain? Why do you say that?

Sept 17, 2014 4:29:58 GMT -8 kilg0retr0ut said:

Yes DJ, how can you say "little pain" after what I just described?
Did you mean frequency between?

Sorry guys, I should have worded it better. I mean that you're all taking so much of the meds but it's only helping with a little bit of the pain. Leaving out "of the" changes the meaning a lot! Again, sorry about that.

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Has Anyone Experienced This?

Post by izabella on Sept 16, 2014 5:32:33 GMT -8

Post by DJ on Sept 16, 2014 12:50:46 GMT -8

Post by kilg0retr0ut on Sept 16, 2014 14:45:53 GMT -8

Post by DJ on Sept 16, 2014 15:10:33 GMT -8

Post by dlevy on Sept 16, 2014 17:22:59 GMT -8

Post by Lαrα on Sept 16, 2014 22:38:14 GMT -8

Post by kilg0retr0ut on Sept 17, 2014 4:29:58 GMT -8

Post by kilg0retr0ut on Sept 17, 2014 4:33:06 GMT -8

Post by Lαrα on Sept 17, 2014 4:37:34 GMT -8

Post by kilg0retr0ut on Sept 17, 2014 4:39:53 GMT -8

Post by Lαrα on Sept 18, 2014 2:51:08 GMT -8

Post by DJ on Sept 18, 2014 2:56:54 GMT -8

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