Anyone here have an Illeal conduit?

I know a woman who had a radical cystectomy and placement of an ileal conduit after bladder cancer--this seems to be the most common use of the procedures. The pain in her bladder stopped, ie, no "phantom" pain. And after initial healing (which was somewhat lengthy), the stoma was not difficult to maintain and not at all painful. However, she has taken great care of her stoma to avoid breakdown of tissue. Infection has not been an issue for her, but she did not start with infection such as pseudomonas. She has had her ileal conduit for about 35 years, and is now in her late 80s! It sounds as if your companion might benefit greatly from pain reduction alone, but the infections are still a risk.

Hello mandg, I have had urostomy surgery two and half years ago, using the Ileal conduit. I started like everybody else, I guess. Intermittent cath, (while I was working — oh what a joy that was), then went the suprapubic way — disaster city: it leaked, I stunk of urine. Disgusting. Then I went with indwelling catheters, and then my urethra has such a large diameter that I had to think of something else. I researched the ilea conduit, decided that was for me. So one surgeon who was a real a**hole. Thank god a friend suggested a second opinion.
I have been VERY happy with this. Once you find the right pouches and you figure out how to take care of yourself, it is easy. Unfortunately the urine stinks when I empty the pouch. I’m told that’s normal since the urine goes through a piece of Ileal intestines (it’s been cleaned up of course but still...)
Feel free to ask me any questions you have. Good luck to you.

Anybody got a time machine?