I love my wheelchair because it helps me manage pain and live more actively. I feel blessed that I was able to find such a good one online when I needed it (pressure sores on bottoms of feet) and insurance denied me. Yes, I am frustrated by my limitations that require me to use a wheelchair--but that is a different issue.
Part of the difference between Aaron F. and the girl is attitude, but she is clearly in a chair that doesn't fit her or allow for full living. Getting the right gear to assist us is a great step in the right direction, so we can rebuild our lives after becoming disabled.
jakem,you made me laugh with leg bag comment, but I can really empathize with how awful that would be especially if you cannot fix it yourself. When I have B&B mishaps, I have to remind myself that no one actually ever died of embarrassment!
The psychological impact of physical disability is rarely addressed by our doctors. We are left to figure it out. I am worried about you, kilg0retr0ut. Please do not think it is weakness to own up to issues, but I know you have untapped coping skills to draw upon. With any challenge in life, finding the most positive outlook helps us put our energy toward solving the problems.
Thats a great perspective and advice wavewolf...absolutely!
Doctors and Spinal Units do not give enough service to the emotional and psychological effects of this injury and yet the effects are almost as disabling as the physical aspect of SCI.
One of my favorite athletes, who dances on his canes like no other, is Dergin Tokmak. Here he is testing out his new wheelchair--irrepressible zest for life and courage, and just a tad crazy! OK, Butiki, the gauntlet is thrown down and we are ready for your video to top this!
I'm pretty comfortable self-image-wise and whatnot with my chair, but my chair is not that comfortable. I accept that it is part of who I am now and is my legs. I do feel like it is part of me sometimes, but I can't wait for that TiLite TRA...
I'm pretty comfortable self-image-wise and whatnot with my chair, but my chair is not that comfortable. I accept that it is part of who I am now and is my legs. I do feel like it is part of me sometimes, but I can't wait for that TiLite TRA...
You have two choices and two results to choose from.
1. See a wheelchair as a tool that allows you to get out and about and engage in life.
2. Hate your wheelchair and be miserable.
You can only pick one. I chose option 1.
I personally have no hate toward my assisting devices. They are not responsible for my health issues. They are tools to help me cope with my disabilities and have a life with some measure of quality.
Just think where you would be with the same physical disabilities 150 or more years ago. You would be left in bed waiting possibly for several years to die.
kilg0retr0ut, My apologies for the late reply, and I wasn't going to write anything, but I feel so sad that you were criticised after expressing how you felt. The question asked was are you comfortable in your chair or do you hate it? You answered honestly. Obviously you are sad and frustrated with your situation and no-one on this forum knows what issues contribute to your sense of sadness. It's so easy for someone to say be positive. Wouldn't life be easy if we could just choose that option? It's not that easy and I think it's only right that you can express honestly how you're feeling without the fear of being judged. I would say that every person contributing to this forum is unique in their struggles. Not just physically, but mentally as well. Not to mention other factors adding to the mix - e.g. family life and finances. I struggle every day with my situation. I get tired of people making judgement on my state of mind when they haven't walked (joke) in my shoes. I do understand that people want you to be positive and, believe me, I try very hard. I just felt really sad when I read your post, probably because I could relate to it so much. Lαrα, I'm not having a go at your response. I truly admire your optimism. This was more a show of support for kilg0retr0ut,
I agree with you 100% kilg0retr0ut, I just sit at home at the kitchen bench and play stupid games on my iPad, don't even get on my proper computer these days, can't get motivated. And yes a lot of the time I pray that I go to bed one night and not wake up on the morning.
ange63, so true. It doesn't matter if your a parra a quad, complete or incomplete, if your injury is worse than mine or mine is not as bad as the guy down the road, we all walk different paths in life and until someone has walked down your path they will never know the issues that affect you. Each and every one of us has different coping mechanisms, some cope well some not so well, personally I think I'm in the middle. So I just think we should support each other and respect each other's privacy.
ange63, I agree with you yes. You are very correct in how you say it isnt right to criticize someone for simply not being happy with their life with Spinal Cord Injury.
We all have our own demons to deal with but i would not be doing my job at offering support if i did not try to motivate and promote positivity.
Once depression takes a hold, its so hard to shake off and emotional issues are just as debilitating as physical ones. We have to listen to each other during our down time and then encourage each other to be strong.
I will always try to raise the vibration and offer support, this is my way and our ethos here as a support forum, even if that means a bit of 'tough love'
Loving the responses! It really makes you wake up and realize what people are going through that we don't know about. Trust me, I may seem like a relaxed stress free person but I have A LOT going on in my life that almost none of you know about, just like things I don't know about you. Everyone's been dealt their own cards and have to go with what they have. But for me, the way I see it is that someone somewhere is in a far worse situation than I'm in so I just deal with it and try to stay positive and carry on with life no matter what it throws at me.