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Lαrα
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How Do You Describe Yourself in Terms of SCI? Jan 31, 2015 5:31:13 GMT -8

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Post by Lαrα on Jan 31, 2015 5:31:13 GMT -8

I actually dont over think this in regards to terminology because it isnt a real issue for me to be honest but heres a point.

Ok, so when you talk about part of your body do you describe it as 'you' like you legs or feet or nails etc? Do you say you have nails or are nails?

Of course you say you have toenails dont you ..So why do we say we are disabled?

When i refer to myself on a call to healthcare personel etc i always say 'I have a disability' or 'I have mobility issues' because the disability or the issue with mobility does not define who i am.

Just thinking out loud, whats your thoughts on this?

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	How Do You Describe Yourself in Terms of SCI? Jan 31, 2015 6:12:57 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Jan 31, 2015 6:12:57 GMT -8 I think we had a discussion about this on another thread right Lαrα? For me it doesn't really matter. Call me crippled, disabled, gimp, handicapped, it's all the same crap to me lol.
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Lαrα
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How Do You Describe Yourself in Terms of SCI? Jan 31, 2015 7:55:37 GMT -8

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Post by Lαrα on Jan 31, 2015 7:55:37 GMT -8

Jan 31, 2015 6:12:57 GMT -8 DJ said:

I think we had a discussion about this on another thread right Lαrα? For me it doesn't really matter. Call me crippled, disabled, gimp, handicapped, it's all the same crap to me lol.

Yeah we did but i wanted to mention...BUT this is about how we call our self not what others call us DJ. Its ok for me to call myself crippled but if someone else did then thats very different

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andrew Member Posts: 123 Post Likes Received: 126 Date Joined: September 2013 Injury: C7 Quad Date Injured: 10/15/2000 Member is: Offline Send PM	How Do You Describe Yourself in Terms of SCI? Jan 31, 2015 12:11:46 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by andrew on Jan 31, 2015 12:11:46 GMT -8 Just don't call me late for dinner
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wavewolf Advanced Member Posts: 1,407 Post Likes Received: 1,159 Date Joined: July 2013 Injury: T9 incomplete + other neurological Date Injured: 10 February 2009 Member is: Offline Send PM	How Do You Describe Yourself in Terms of SCI? Jan 31, 2015 15:41:15 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by wavewolf on Jan 31, 2015 15:41:15 GMT -8 Jan 31, 2015 12:11:46 GMT -8 andrew said: Just don't call me late for dinner Right there with you, especially if you cooked for me!!!!!
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How Do You Describe Yourself in Terms of SCI? Jan 31, 2015 15:43:54 GMT -8

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Post by wavewolf on Jan 31, 2015 15:43:54 GMT -8

It is the same to me if I say "I am disabled" or "I have a disability". I see both as descriptive, and say what is needed to convey to the person I am addressing for purpose I am trying to achieve. My disability is not defining who I am, but it is a significant part of my life now.

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Hoea ra!

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	How Do You Describe Yourself in Terms of SCI? Feb 1, 2015 3:24:11 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Feb 1, 2015 3:24:11 GMT -8 Lαrα,DJ,andrew,wavewolf, for the comediens!
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cbdives Advanced Member Posts: 735 Post Likes Received: 490 Date Joined: November 2013 Injury: Peripheral Neuropathy Date Injured: Progressive Member is: Offline Send PM	How Do You Describe Yourself in Terms of SCI? Feb 1, 2015 18:21:17 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by cbdives on Feb 1, 2015 18:21:17 GMT -8 I have peripheral neuropathy....smelled too rocket fuel

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	How Do You Describe Yourself in Terms of SCI? Feb 1, 2015 19:32:28 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Feb 1, 2015 19:32:28 GMT -8 Feb 1, 2015 18:21:17 GMT -8 cbdives said: I have peripheral neuropathy....smelled too rocket fuel Still can't believe how crazy that is cbdives, that's something NASA really needs to work on!

titanworker New Member Posts: 7 Post Likes Received: 4 Date Joined: November 2014 Member is: Offline Send PM	How Do You Describe Yourself in Terms of SCI? Feb 2, 2015 10:41:06 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by titanworker on Feb 2, 2015 10:41:06 GMT -8 Feb 1, 2015 18:21:17 GMT -8 cbdives said: I have peripheral neuropathy....smelled too rocket fuel Joe, Any chance you will ever respond to me on this subject of rocket fuel toxic exposure? Terry
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Knight
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How Do You Describe Yourself in Terms of SCI? Feb 9, 2015 9:43:14 GMT -8 via Inspired Mobile

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Post by Knight on Feb 9, 2015 9:43:14 GMT -8

I think I will agree with Lαrα on this one. I got offended the other day when someone called me handicapped. I don't think I am handicapped, and deep down, I don't feel like I am disabled. I do, however, have a disability.

I do say I am disabled sometimes because that's how the United States government describes me, but it does bother me a bit because that's such a broad and harsh term.

Recently, somebody publicly shamed and harassed me simply for having a disability. It hurt and made me feel very uncomfortable. (They accused me of using my disability to get special treatment or lower prices simply because I posted on a friend's post selling a KitchenAid mixer saying it was nice and that I hope to have one like it someday.)

I come across many people who seem to straight-up HATE people with disabilities, and it is sickening. I've had people call me a "faker" because I can stand with help. They have never seen me try to walk, nor do they even know my name. Some people here are rude, disgusting human beings who don't deserve to breathe. (In my opinion.)

Anyways, I am a person first, disabled second; therefore, I am a person with a disability.

Also, I am not "confined to a wheelchair", or "wheelchair-bound". Do people know how annoying it is that they use those terms? Grrrr.

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cbdives
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How Do You Describe Yourself in Terms of SCI? Feb 9, 2015 15:13:53 GMT -8

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Post by cbdives on Feb 9, 2015 15:13:53 GMT -8

My worst experience... My Peripheral neuropathy is progressive...started with tingly feet, then trouble standing for long periods among other issues, next crutches, then braces and crutches finally wheelchair dependency. All this occurred over span of several years.

My next door neighbors who we have not been on speaking terms since before they even moved in (to put it mildly) have been trying to find anything to find anything to use against me. She works for the Post Office locally so can see my mail before I see it. Well after about a year of fighting to get my Social Security Disability...She found out obviously snooping my mail.

Well I still Scuba dive...it's my therapy basically...She sent a hand written annomylis letter to Social Security stating that I was faking my disability citing that I still Scuba dive and was making a lot of money from a scuba school which was all untrue. I had to go in front of SSDI and defend myself. Fortunately, my case worker also had diabetic neuropathy and understood what was going on with me. She agreed I was not the person described in the hand written letter and put the issue to bed for her records.

Joe

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	How Do You Describe Yourself in Terms of SCI? Feb 10, 2015 2:45:54 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Feb 10, 2015 2:45:54 GMT -8 cbdives,people never cease to amaze me. Why can someone be even bothered to go to so much trouble to cause upset or problems for someone else. Its simply sad but damned annoying too.

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How Do You Describe Yourself in Terms of SCI? Feb 10, 2015 6:14:14 GMT -8

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Post by DJ on Feb 10, 2015 6:14:14 GMT -8

Knight I really don't know what to say, I can't believe some of the things you've experienced, it's just sad that stuff like that still happens now a days.

cbdives I agree with Lαrα, that is terrible! Is there any way you report her for going through confidential information? You must be able to sue for something like that.

joemonte
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How Do You Describe Yourself in Terms of SCI? Feb 10, 2015 8:07:42 GMT -8

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Post by joemonte on Feb 10, 2015 8:07:42 GMT -8

I consider myself as broken. I believe Sci is a broken part in our body verses a disease like cancer. My surgeon said this to me one day. I wanted to know if there was any chance I could ever walk again. He said "Joe you have a broken part inside you and we have to figure out how to fix that broken part. So yes there is hope. As bad as its gets sometimes, I feel someday the researchers will be able to put us backtogether. Sci is a very challenging life for all of us. I have learned to take it one day at a time.

I do like Joe's idea of scuba diving. That is on my bucket list. I am pushing to get certified this year. I love the water and I can see how Scuba diving would make someone feel great. Everyones comments were great. Best to all!

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How Do You Describe Yourself in Terms of SCI?

Post by Lαrα on Jan 31, 2015 5:31:13 GMT -8

Post by DJ on Jan 31, 2015 6:12:57 GMT -8

Post by Lαrα on Jan 31, 2015 7:55:37 GMT -8

Post by andrew on Jan 31, 2015 12:11:46 GMT -8

Post by wavewolf on Jan 31, 2015 15:41:15 GMT -8

Post by wavewolf on Jan 31, 2015 15:43:54 GMT -8

Post by Lαrα on Feb 1, 2015 3:24:11 GMT -8

Post by cbdives on Feb 1, 2015 18:21:17 GMT -8

Post by DJ on Feb 1, 2015 19:32:28 GMT -8

Post by titanworker on Feb 2, 2015 10:41:06 GMT -8

Post by Knight on Feb 9, 2015 9:43:14 GMT -8

Post by cbdives on Feb 9, 2015 15:13:53 GMT -8

Post by Lαrα on Feb 10, 2015 2:45:54 GMT -8

Post by DJ on Feb 10, 2015 6:14:14 GMT -8

Post by joemonte on Feb 10, 2015 8:07:42 GMT -8

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