Wow Knight I didn't know you had to cath that often, I thought you had a Foley catheter. Getting 400-600ml's on average about 10-12 times a day seems like a lot! On average I try to drink 2L of water per day and other than water, I normally drink milk in the morning and sometimes coffee or tea. With you cathing at least 10 times and getting at least 400ml, that's 4L's right there. It seems like too much!
wavewolf yeah you're right, damaging my kidneys is a big fear already so I should take care of my body as Lαrα has mentioned. I'll cath more often. Starting soon...
wavewolf, yeah you're right, damaging my kidneys is a big fear already so I should take care of my body as Lαrα has mentioned. I'll cath more often. Starting soon...
Start now! Seriously. I would be interested to know how you will manage a hygenic set-up when you are not at home. That is a real challenge when you are a student, and schedules tend to be less regular. Of course, for us, we are forced to live by planning and by yielding spontaneity to practicality.
wavewolf, yeah you're right, damaging my kidneys is a big fear already so I should take care of my body as Lαrα has mentioned. I'll cath more often. Starting soon...
Start now! Seriously. I would be interested to know how you will manage a hygenic set-up when you are not at home. That is a real challenge when you are a student, and schedules tend to be less regular. Of course, for us, we are forced to live by planning and by yielding spontaneity to practicality.
Yeah I have no idea how I'll do it. I can't even self cath so I really don't know how I could do it more often and in my chair. I'll start practising self catheterizations soon though because I'll be needing it for when I go to university.
Start now! Seriously. I would be interested to know how you will manage a hygenic set-up when you are not at home. That is a real challenge when you are a student, and schedules tend to be less regular. Of course, for us, we are forced to live by planning and by yielding spontaneity to practicality.
Yeah I have no idea how I'll do it. I can't even self cath so I really don't know how I could do it more often and in my chair. I'll start practising self catheterizations soon though because I'll be needing it for when I go to university.
Maybe the option of SPC would be worth considering. It is easily reversible if you decide it doesn't work for you. Especially is easier as quad if you are in chair while needing to cath on schedule--you have option of direct emptying or using leg bag.
Yeah I have no idea how I'll do it. I can't even self cath so I really don't know how I could do it more often and in my chair. I'll start practising self catheterizations soon though because I'll be needing it for when I go to university.
Maybe the option of SPC would be worth considering. It is easily reversible if you decide it doesn't work for you. Especially is easier as quad if you are in chair while needing to cath on schedule--you have option of direct emptying or using leg bag.
I'm against anything invasive like that on my self.
Hey Everyone. Appreciate the discussion. Lots to consider. In terms of infection a SPC is similar to an indwelling foley. They both use an inflatable balloon which bacteria can adhere to. An SPC is further from the anus which helps. I don't know.
Hey Everyone. Appreciate the discussion. Lots to consider. In terms of infection a SPC is similar to an indwelling foley. They both use an inflatable balloon which bacteria can adhere to. An SPC is further from the anus which helps. I don't know.
SPCs are easier if hand function is limited, or schedule of cathing cannot be kept with IC.
DJ, I have to agree that invasive measures are not a first choice! But compared to kidney damage? Sometimes they are necessary, even with risks. Yes, I would choose to delay as long as possible.
This thread has brought some great points of discussion, I can appreciate how someone may not want to have an invasive procedure carried out but I can absolutely see advantages too with a procedure that allows a suprapubic.
We have already had the ultimate invasive surgery performed with metalwork left in place etc. I see it that after SCI, the ideal is to bring as much normality to life and have manageable procedures to enable our body functions to continue with the least intrusion to our life as possible.
If i needed to consider the choices, I would much prefer a small aspect of my body having a procedure to it to facilitate emptying my bladder than have my dysfunction take control of my life.
If i could not intermittently catheter, I would not want an indwelling catheter. I want to be able to be 'spontaneous' if need be and an indwelling would affect this, I also spend a lot of time around horses so I dont want a tube to worry about.
We have to consider what and how we want our life to function..I have become pretty busy lately and not spent much time at home so my routine has to now work around this...My body should not dictate to me how things will roll.
After saying that im in favour of everything natural....i have zero piercings, not even my ears and would not ever want a tattoo
All I can say is I agree 100% with DJ, but if I needed a SPC or a colostomy I would do it if it was going to make my life easier or prolong my life. I would hate to have either procedure done, but we are not in a position to do what we want now.
DJ, I have to agree that invasive measures are not a first choice! But compared to kidney damage? Sometimes they are necessary, even with risks. Yes, I would choose to delay as long as possible.
Yeah that's true wavewolf, but for my self personally I don't think I'm risking kidney damage with the way things are right now. My bladder emptys itself when it needs to and I catheterize 2-3 times to get rid of the residual urine. My bladder never overfills to the point where it could get backed up to my kidneys but in the odd times that my bladder doesn't self empty, I get intense autonomic dysreflexia and catheterize immediately.
All I can say is I agree 100% with DJ, but if I needed a SPC or a colostomy I would do it if it was going to make my life easier or prolong my life. I would hate to have either procedure done, but we are not in a position to do what we want now.
I'd only get a colostomy if my life depended on it. Like if it was literally a life and death situation. Fingers crossed that never happens!