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blackpebble
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Neurogenic bladder? Intermittent self-catheterization? Feb 26, 2015 10:00:30 GMT -8

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Post by blackpebble on Feb 26, 2015 10:00:30 GMT -8

Do you perform intermittent self-catheterization? Do you like the way you carry and organize your supplies? Do you ever feel frustrated with the existing options for carrying and using your catheters and associated supplies?

I'm a medical student working with a team to design and produce a new carrying solution to assist everyone who performs intermittent self-catheterization. One of my teammates had a medical condition that required her to self-catheterize so we have both the right expertise and a deep personal connection.

We NEED your input!

Please email me at blackpebblemedical@gmail.com or post here if you could share your thoughts with us! Bonus points if you are in the Boston area or know of someone who is so that we can show you our prototypes in person.

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DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Neurogenic bladder? Intermittent self-catheterization? Feb 26, 2015 13:54:14 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Feb 26, 2015 13:54:14 GMT -8 Welcome blackpebble I've never had to catheterize while away from home but I can see how a lot of people can benefit from something to organize their supplies. Good luck with your research!
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Butiki
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Neurogenic bladder? Intermittent self-catheterization? Feb 26, 2015 21:29:03 GMT -8

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Post by Butiki on Feb 26, 2015 21:29:03 GMT -8

Hi blackpebble and welcome to the forum. I just carry my catheters, lube and hand sanitizer in a backpack on the back of my wheelchair. I'm a low level paraplegic, L3, so it's easy for me. If I'm at home I just pee into a bottle and all my supplies are next to my bed if I'm out I use my backpack and attach a tube from a overnight bag attached to the end of my catheter so I can just pee into the toilet, easy as.

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Just do it

Lαrα
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Neurogenic bladder? Intermittent self-catheterization? Feb 27, 2015 3:00:35 GMT -8

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Post by Lαrα on Feb 27, 2015 3:00:35 GMT -8

blackpebble, welcome to the forum. To be honest i think that most people use a backpack and keep catheters inside, especially if they are using their chair. Female catheters tend to be smaller and the ones that i have are also small and compact.

The thing is, most people will carry cleansing wipes this adds to the bulk. Females can use a large-ish handbag and guys, well, not all want to use a man bag lol.

If something specific was going to be supplied/developed then i would suggest maybe a collapsible and wipeable plastic container that isnt see through?

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kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	Neurogenic bladder? Intermittent self-catheterization? Feb 27, 2015 9:48:33 GMT -8 via Inspired Mobile Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Feb 27, 2015 9:48:33 GMT -8 Or maybe a collapsible table to put all that fun stuff on while in the stall.
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blackpebble
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Neurogenic bladder? Intermittent self-catheterization? Mar 3, 2015 13:54:57 GMT -8

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Post by blackpebble on Mar 3, 2015 13:54:57 GMT -8

Thank you all for the valuable information and suggestions!

We have prototypes that we would love to show you. We are conducting these twenty minute sessions via Skype to get your feedback on what you see.

Please post here, private message or email at blackpebblemedical@gmail.com if you are interested.

Everyone should also submit their email at goo.gl/forms/ytdiw7Mstb so that we can keep you updated!

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Knight
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Neurogenic bladder? Intermittent self-catheterization? Mar 3, 2015 19:34:13 GMT -8 via Inspired Mobile

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Post by Knight on Mar 3, 2015 19:34:13 GMT -8

I think a piece of plastic that pops between the gap in the front of most public toilet seats would be the best invention ever! I have such a problem with my legs falling into that gap, and then my skin gets pinched between the seat and the toilet, and it's insanely difficult to spread my legs apart to gain access to my urethra to cath! That would make using public restrooms quite a bit more comfortable and easy.

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Too Pretty to Walk™

kazi New Member Posts: 31 Post Likes Received: 34 Date Joined: November 2014 Member is: Offline Send PM	Neurogenic bladder? Intermittent self-catheterization? Mar 8, 2015 0:25:18 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kazi on Mar 8, 2015 0:25:18 GMT -8 i,m a physiotherapist from Bangladesh work with SCI people.. hear people use some cheap plastic container to keep catheter.

wavewolf
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Neurogenic bladder? Intermittent self-catheterization? Mar 9, 2015 22:46:00 GMT -8

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Post by wavewolf on Mar 9, 2015 22:46:00 GMT -8

Now that I have a spastic, rather than flaccid bladder--just discovered with urodynamics--I will be needing to cath. I cannot balance well on a toilet seat, so not sure if I will opt for IMC or SPC. Needing to cath while away from home seems a major dilemma, especially setting up a hygenic place to lay out what you need. kilg0retr0ut's idea of collapsible table appeals to me! blackpebble, I am interested to see your design, and have a pretty good sense for evaluating features.

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Hoea ra!

Lαrα
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Neurogenic bladder? Intermittent self-catheterization? Mar 10, 2015 0:36:14 GMT -8

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Post by Lαrα on Mar 10, 2015 0:36:14 GMT -8

Mar 9, 2015 22:46:00 GMT -8 wavewolf said:

Now that I have a spastic, rather than flaccid bladder--just discovered with urodynamics--I will be needing to cath. I cannot balance well on a toilet seat, so not sure if I will opt for IMC or SPC. Needing to cath while away from home seems a major dilemma, especially setting up a hygenic place to lay out what you need. kilg0retr0ut's idea of collapsible table appeals to me! blackpebble, I am interested to see your design, and have a pretty good sense for evaluating features.

wavewolf, this is the same as me, i cannot keep balance to catheter over a toilet either. It has been a huge issue when considering days out. The easiest way for me to catheter is on a medical bed.
I have met some friends from my unit who can catheter in a chair, i cant imagine, shimmying down my chair to get some angle and then do it discreetly..It just wont happen. I tried to catheter once in the back of a travelling horsebox once!

I have so many self catheter nightmares, i could write a book but in all fairness if i wasnt stubborn about using an indwelling it would help but i really wont do that unless it is necessary.

wavewolf
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Neurogenic bladder? Intermittent self-catheterization? Mar 10, 2015 0:56:33 GMT -8

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Post by wavewolf on Mar 10, 2015 0:56:33 GMT -8

Lαrα, that is why I am considering a SPC. Implantation is easily reversible, and it is so much easier to manage in public places. The idea of a tube coming out of my flesh seems so gross, but then wet clothes in a public place is also gross. Recently when I was in hospital, I looked at my IV and had a revelation: if you need it, you get used to seeing tubes coming out of places they "shouldn't". Kind of freed me to consider SPC with new perspective. I am waiting for another type of urodynamics to make final decision.

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Hoea ra!

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Neurogenic bladder? Intermittent self-catheterization? Mar 10, 2015 0:58:42 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Mar 10, 2015 0:58:42 GMT -8 That's fair and wise wavewolf,absolutely

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Neurogenic bladder? Intermittent self-catheterization? Mar 10, 2015 7:09:57 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Mar 10, 2015 7:09:57 GMT -8 Fair enough wavewolf. If it's reversible and can positively impact your life, why not?!

wavewolf
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Neurogenic bladder? Intermittent self-catheterization? Mar 10, 2015 18:12:51 GMT -8

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Post by wavewolf on Mar 10, 2015 18:12:51 GMT -8

The risk part for me is that with my disease, allergies to antibiotics, and being on immune-suppressing meds, much greater chance of not healing, or sarcoid lesions forming at surgical site, or infections that are hard to treat. "Natural" is best, perhaps, even with all the B&B mishaps. However, if kidney relux is found, then catheterization of some sort will be a must.

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Hoea ra!

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Neurogenic bladder? Intermittent self-catheterization?

Post by blackpebble on Feb 26, 2015 10:00:30 GMT -8

Post by DJ on Feb 26, 2015 13:54:14 GMT -8

Post by Butiki on Feb 26, 2015 21:29:03 GMT -8

Post by Lαrα on Feb 27, 2015 3:00:35 GMT -8

Post by kilg0retr0ut on Feb 27, 2015 9:48:33 GMT -8

Post by blackpebble on Mar 3, 2015 13:54:57 GMT -8

Post by Knight on Mar 3, 2015 19:34:13 GMT -8

Post by kazi on Mar 8, 2015 0:25:18 GMT -8

Post by wavewolf on Mar 9, 2015 22:46:00 GMT -8

Post by Lαrα on Mar 10, 2015 0:36:14 GMT -8

Post by wavewolf on Mar 10, 2015 0:56:33 GMT -8

Post by Lαrα on Mar 10, 2015 0:58:42 GMT -8

Post by DJ on Mar 10, 2015 7:09:57 GMT -8

Post by wavewolf on Mar 10, 2015 18:12:51 GMT -8

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