Post by acrobatinmydreams on May 15, 2015 10:12:25 GMT -8
jeff1967, I think the shooting pains may be aging related. I didn't have them the first 15 years. But after that they now get bad on some days. Those pains are what drove me to retire from a career that I loved. My concentration and focus suffered so much I was afraid of making a costly mistake at the hospital I worked at. Plus add in a little or alot (lol) of stress managing employees and you get a natural disaster of epic proportions.
Lαrα, I am T12-L3 incomplete just like Jeff walking with AFO's. I have no reflexes and I am super hypersensitive at the ankle. But I don't have many spasms. I have always been really flaccid. As I age I have more jumping muscles rather than all out spasm episodes.
I have an appointment with Dr Falci at Craig Hospital in Denver in June to be evaluated for a "tethered cord" because my pain has gotten so much worst in the last few years. I will let you all know how that goes. craighospital.org/programs/rehabilitative-neurosurgery
I seen pain management this morning and they are talking about putting a spinal cord stimulator in. Has anyone checked into this? This is a new doctor and they said they don't like the long term narcotic care which I agree. However, I'm not sure I want this thing stuck in my back too LOL
Hi , I have no reflexes in my left leg at all and continual burning, yet that is my strong leg. My right leg is the spastic one and has massive reflexes, when any of them are checked my leg will fly right up, in fact when they were first check after my accident I kicked the doctor in the face and my toes on the right foot curl up at the same time when the underneath of the foot is stimulated. I am now walking with a carbon fibre leg and foot brace on the right leg to turn it inward which helps with my walking and hip but I pay for it when I take it off as it seems to stimulate the nerves in the foot giving me pain.
I seen pain management this morning and they are talking about putting a spinal cord stimulator in. Has anyone checked into this? This is a new doctor and they said they don't like the long term narcotic care which I agree. However, I'm not sure I want this thing stuck in my back too LOL
acrobatinmydreams, It sure sounds hard work walking with no reflexes, do you get tired? I am very limited and tire quickly, i just lose motor power and need to rest but I walk with crutches rather than AFOS.
davincidanes,way to go girl! lol barny, that surprised me, wouldn't you think that the leg with the reflexes would be stronger, there is no sense to this is there
Post by acrobatinmydreams on May 16, 2015 9:52:00 GMT -8
Lαrα, Yes I have always fatigued faster. However, I can deal with the fatigue until you add in the relentless chronic pain (central pain syndrome). It is a whole new level of fatigue. When I worked, I was able to walk and sit but be sure not to do either for too long at a time. It just worked and I don't know how. I do have an above normal pain tolerance. I have not felt an ear ache in years but have had several ear infections.
I think your body builds and builds a resistance to pain until you just can't do it anymore. I think that is the idea with Narcotics. You have to increase them when the pain tolerance drops.
I actually have a better quality of life on low dose narcotics but I go off of them routinely and I don't increase the dose.
I am afraid of them putting anything in my back as the risk of infection etc. There is a risk with everything and you have to weigh it heavily. I would not let them do any injections just because I have seen too many infections working in a hospital. The epidurals are a higher risk infection than other procedures simply because they do so many of them.
I don't need any more problems lol I have enough without adding to it. But I am interested to find out if I have a tethered cord due to scar tissue. It is quite common in old injuries.
Post by acrobatinmydreams on May 16, 2015 9:56:46 GMT -8
Also about the pain stimulator: I see they attach it to a specific nerve. I can understand if you have one shooting pain, but I have multiple and I never know where the stabbing will start or end. I constantly burn/cold/tingle. It is like someone took steel wool and scraped all the skin off only to pour rubbing alcohol on the raw areas. It never goes away but differs in intensity. Then I have this stabbing pain (I call him my fairy with an ice pick), it happens all over in different spots or I can go a whole day without him visiting. I never know.
The barometric pressure does effect the intensity but other than that....there is no rhyme or reason I have been able to pinpoint in 26 years that causes this agony.
Also about the pain stimulator: I see they attach it to a specific nerve. I can understand if you have one shooting pain, but I have multiple and I never know where the stabbing will start or end. I constantly burn/cold/tingle. It is like someone took steel wool and scraped all the skin off only to pour rubbing alcohol on the raw areas. It never goes away but differs in intensity. Then I have this stabbing pain (I call him my fairy with an ice pick), it happens all over in different spots or I can go a whole day without him visiting. I never know.
The barometric pressure does effect the intensity but other than that....there is no rhyme or reason I have been able to pinpoint in 26 years that causes this agony.
That's so strange acrobatinmydreams and doesn't sound pleasant at all! Is your pain in a general area or is it all throughout your body?
Ah yes, its real tiring isnt it acrobatinmydreams and you are so right about the pain thing. I know my pain threshold is pretty high too but I dont want more than I get as a norm lol
From what I've read the wire lays against the spinal cord, not attached. During the trial, up to 7 days, they will position it in the area of the cord that is sending the "mixed" signals. I'm not sure of the wire length but the stimulation is the entire length of the wire.
I'm at the point where I have to have some relief. I don't want to give up my job but it's getting to the point where I have a hard time concentrating.
It seems like I have a new area of pain every few days now. My right outer thigh burns constantly and is extremely sore to the touch. I couldn't even lay on my right side in bed last night. I try to carry on with normal activities but it has gotten to the point that if something doesn't have to be done, I just lay around without pants on to keep anything from touching my leg. This is so not me and to feel so helpless right now is horrible.
I hope you find some relief as well. What a shame we have to live with the bowel, bladder and mobility issues but throw in the excruciating pain and it sure is hard to smile another day.
Post by acrobatinmydreams on May 17, 2015 14:03:24 GMT -8
DJ, It is below my knees on both legs. It is just nerve damage below injury level. Above the knees I am just numb but I have movement in my knees but not my feet.