Thanks DJ. Giving up the motorcycle has been something that I know I should do but it has been a part of me for so long it is hard. However, I must look at the future and not the past so I will be making some hard decisions but doing what is best for me.
Thanks DJ. Giving up the motorcycle has been something that I know I should do but it has been a part of me for so long it is hard. However, I must look at the future and not the past so I will be making some hard decisions but doing what is best for me.
I understand how you feel jeff1967 but I think it'll be worth it. You can do it!
I put it up for sale yesterday! My wife is extremely happy LOL. She would never ask me to sell it but has come up with ideas for other hobbies that would be less strenuous on me and I must agree so it is time for it to go!
I put it up for sale yesterday! My wife is extremely happy LOL. She would never ask me to sell it but has come up with ideas for other hobbies that would be less strenuous on me and I must agree so it is time for it to go!
Haha congrats on having it in you to do that! It'd take a lot more work for me to give up something I enjoy
It wasn't easy but after taking a fall this morning I knew it was for the best. It is too nice for me to drop it so I will bow out and let someone else enjoy it. When it sells I will be here crying and whining for a while DJ so be ready to convince me I did the right thing LOL
It wasn't easy but after taking a fall this morning I knew it was for the best. It is too nice for me to drop it so I will bow out and let someone else enjoy it. When it sells I will be here crying and whining for a while DJ so be ready to convince me I did the right thing LOL
Oh I hope you're ok! It won't be easy but we'll all be here to support you, don't you worry
My hip is a little sore and my ego is severely bruised but otherwise I'm ok. It scared the heck out of my wife though which I hate. Nothing like sitting in the bathroom floor butt naked with your wife standing over you asking if there is anything she can do LOL.
My hip is a little sore and my ego is severely bruised but otherwise I'm ok. It scared the heck out of my wife though which I hate. Nothing like sitting in the bathroom floor butt naked with your wife standing over you asking if there is anything she can do LOL.
Post by acrobatinmydreams on Jul 2, 2015 12:13:54 GMT -8
Lαrα, I used to have reflexes in both knees but none in my ankles. However, my recent medical evaluation reveals that I don't have reflexes in my knees anymore.
Also about the pain stimulator: I see they attach it to a specific nerve. I can understand if you have one shooting pain, but I have multiple and I never know where the stabbing will start or end. I constantly burn/cold/tingle. It is like someone took steel wool and scraped all the skin off only to pour rubbing alcohol on the raw areas. It never goes away but differs in intensity. Then I have this stabbing pain (I call him my fairy with an ice pick), it happens all over in different spots or I can go a whole day without him visiting. I never know.
The barometric pressure does effect the intensity but other than that....there is no rhyme or reason I have been able to pinpoint in 26 years that causes this agony.
That's so strange acrobatinmydreams and doesn't sound pleasant at all! Is your pain in a general area or is it all throughout your body?
,i don't take nerve pain meds or baclofen for the same reason. My consultant said that it would relax the muscles too much which would affect the upright mobility that I have
Sometimes pain meds give us much needed relief so our bodies can rest and natural healing can occur. About Baclofen, a limited dose will allow some spasticity (stiffness) to remain, which can be utilized for upright time. I take only 10mg twice daily, and my walking is enhanced because the intermittent spasms are lessened to point where I do not have to fight them, and "larger" spasticity with AFOs gives me ability to stand.
jeff1967 and acrobatinmydreams, I really feel for both of you and admire how you are coping the best you can. It is NOT weakness to admit the emotional burden that severe and continual pain brings to life. I, too, withdraw when I am unable to do more than rock (literally) with pain--don't want others to worry about me. Your endorsement of Cymbalta makes me want to try that. I fear that finding nothing to really help will make me more frustrated, as in "nothing left to try". I am not taking pain meds on regular schedule, but do take Tramadol when I simply must zone out--fortunately, this has not been often. When I stopped Baclofen, my pain was much worse, and found that I needed the small dose I take to balance spasticity of stiff and "shocking" types. R-alpha lipoic acid (300mg twice daily) takes the edge off of my neuro pain without any negative side effects. Gabapentin helped a bit, but the brain fog was intolerable on top of what cognitive dysfunction my disease brings, so I stopped it. I have found nothing that helps the hypersensitivity except being naked in a dry, moderate temp, and not drafty room! Might help if I could float around in weightless environment, not touching any sensitive parts?! I can't imagine getting insurance to cover that, LOL. Sort of a hyperbaric chamber type treatment for old SCIs...!
wavewolf, Give the Cymbalta a try. I had such good results for many years with Cymbalta and Tramadol combined. I took 60mg of Cymbalta and 200mg extended release Tramadol. It worked and therefore I could work full time. However, I guess the Cymbalta stopped working and they increased it to 90mg. When you take this combination there is a risk of "Seratonin Syndrome". My doctor would not let me continue on the Tramadol at all after the increase.
So that is why I am struggling to find something else that works. I think the Tramadol was a great drug for me but the Cymbalta helps with the Neuropathic pain. I took Cymbalta as soon as it came on the market so they didn't know about the risk of the syndrome. I took that combination for 12 years or so and it worked well for me.