You have to come up with the questions that are relevant to you! A few that come to mind: Ask about advantages of SPC over IC when in public places. Who will change out your SPC? How to care for surgical wound to assure infection-free recovery? What if stoma does not heal right? Easy to reverse? What is cost difference compared to IC? Any special adaptations as to clothes to wear with SPC? Will you still have to wear protective clothing for leakage?
Thanks for the questions...keep them coming...I had call yesterday...they stuffed up the appointment n they wanted me to go in today being Tuesday as to Friday...easier said than done at a drop of a hat.....I couldn't cos i had a friend coming with me n it was her day off n it worked out great. So to cut a long story short I'm going on the 19th of August n my friend has to take a day off work...I hate that now I have to physic myself up again lol
More questions, some of which would be answered by testing: Will SPC be less likely to allow for UTIs than IC? (Are you doing IC now?) Is SPC needed to relieve high pressures in bladder (i.e., risk of kidney reflux)? Is SPC expected to control urinary incontinence, or will other procedures be needed (eg., sling)? Bottom line: what do you gain from SPC, what are risks, and what are other options?
Post by whiteangel on Aug 20, 2015 21:35:07 GMT -8
Hi guy's so finally got to see my urologist on the 19th, I'm booked in for a SP for the 25th of September OMG can't believe I'm doing this. So it's a suprapubic with a Flip-Flo catheter valve so it won't be too much different from now, I only need to worry about transferring n worrying if there's a disabled toilet. I can choose to wear a bag or not, so now I'm wondering who has it or is using a Flip-Flo catheter valve n how do they manage n if they are happy with it?
My doctor did said that having lemon juice every day helps with the calcification build up, something about victim C....I must ask her again n goggle it unless someone else knows?...She was very young lol...It's an over night stay only cuz I wanted to make sure I'm ok..what else..ok it's takes half an hour, of light sedation... they use an ultra sound to make sure it's in the right place....I go back in 6 weeks to have it changed then maybe 4 to 6 weeks the nurse's comes to change it at home or I can go in....Ok I think that's it ...I'll keep you posted...
I also was able to test out our train service's to see if it's wheelchair friendly...I live in outer west of Sydney n I needed to get to the far north of Sydney about one and a half hours drive by cab or more so it was going to be very expensive. I could of chosen a doc that was closer but I was recommend to see her...so anyway online there the rail web site "plan my trip"...n u punch in the time u need to arrive and it gives you 4 options with times and if u need to change n what platform...there's an option to put in disability accessible n gives u a list...once u go n get your tickets you let them know your there n they put out a ramp from the platform n the train n when you get to the other side they are already informed n they know what carriage you are in..they are waiting for you with the ramp...I was every impressed with the service..I felt like the Queen lol...so anyone coming to sydney will be looked after...
whiteangel, I'm excited for you! Good news is that you have option of valve (hey, you can pee like a bloke!) or bag. And, if it doesn't work out, removal is very simple and low-risk. Glad you are going to try this, as it seems much easier to manage according to what people have shared.
whiteangel, I'm excited for you! Good news is that you have option of valve (hey, you can pee like a bloke!) or bag. And, if it doesn't work out, removal is very simple and low-risk. Glad you are going to try this, as it seems much easier to manage according to what people have shared.
God I hope so wavewolf, I'm kind of looking forward to it, so when I go out I don't have to worry about the hassle of transferring n looking for a disabled toilet but I'm still worried about the maintenance n infections...on top of that I'll have to start a bowel routine which sux...l miss those days where in half an hour ur were done now it seams it will be beyond an hour...u spend more hours with personal care than living life..lol
whiteangel, you may find that having a bowel routine is a good thing. If you were able to evacuate bowel in half hour, why is this changing with SPC? For me, bowel and bladder function is quite connected neurologically, so it is a must that both be managed regularly. Easier said than done!
whiteangel, you may find that having a bowel routine is a good thing. If you were able to evacuate bowel in half hour, why is this changing with SPC? For me, bowel and bladder function is quite connected neurologically, so it is a must that both be managed regularly. Easier said than done!
No I mean I used to be able to get ready in half hour n ran out of the house...lol...I miss those days...the worse u become the more time it takes to get ready...n u never seam to feel or look as good as u used too, no matter how much time you spend n then u realise half the day is gone...lol...
whiteangel, you may find that having a bowel routine is a good thing. If you were able to evacuate bowel in half hour, why is this changing with SPC? For me, bowel and bladder function is quite connected neurologically, so it is a must that both be managed regularly. Easier said than done!
No I mean I used to be able to get ready in half hour n ran out of the house...lol...I miss those days...the worse u become the more time it takes to get ready...n u never seam to feel or look as good as u used too, no matter how much time you spend n then u realise half the day is gone...lol...