I'm not sure if it will help or not but I would definitely try the ankle support. I've spent thousands with doctors to no avail and this $20.00 ankle support brace has all but eliminated those shooting pains.
I'm not sure if it will help or not but I would definitely try the ankle support. I've spent thousands with doctors to no avail and this $20.00 ankle support brace has all but eliminated those shooting pains.
Maybe my shooting pain isn't as similar as I thought Jeff. Mine is inside more electric in nature. The reason I'm having the tendon transfer surgery is because walking on the outside edge is tearing up what left of my ankle, not to mention the pressure sores. I'm really hoping these shots work long-term Jeff. I don't know much about them. I thought they might have a similar effect as predisone, so was reluctant to try them.
I'm not sure if it will help or not but I would definitely try the ankle support. I've spent thousands with doctors to no avail and this $20.00 ankle support brace has all but eliminated those shooting pains.
Maybe my shooting pain isn't as similar as I thought Jeff. Mine is inside more electric in nature. The reason I'm having the tendon transfer surgery is because walking on the outside edge is tearing up what left of my ankle, not to mention the pressure sores. I'm really hoping these shots work long-term Jeff. I don't know much about them. I thought they might have a similar effect as predisone, so was reluctant to try them.
Oh I see. The pain sounds the same but the reason behind it is different for sure.
Post by kilg0retr0ut on Aug 3, 2015 8:15:17 GMT -8
I wish I could figure out what exactly causes it. I had the shocks last night. I call the type I had last night buzzers.(pin pointed and don't move) They were right in the middle of the backside of my thigh. I have another type that travels, those get bad when three locations are firing at once. I end up a heart racing, sweat soaked mess. The worst part is they can last 8-12 hrs. and have had what I call after shocks up to three days. Yeah I know, sounds crazy as hell. The lyrica knocks out most of them and I haven't had a bad episode in a long time.
It makes me wonder if your getting the same pain, that maybe I need to keep looking for a cause. I'd given up thinking it was just damaged nerves.
I have so many "different" pains that some people, especially the doctors, probably thinking I am dreaming it up. However, I assure them it is all too real. The "shooting" pain I have is from my right ankle up to about the knee. It is excruciating to the point it has nearly brought me to tears at times. I had the "buzzing/electrical" that turns out to be sciatica, or so they said. Since my ESI a couple of weeks ago that has disappeared to about 95%. The intense "cold/needle piercing" in my feet disappeared for a few days after the ESI. Now, it is back and right on the old schedule. Every other day it feels like they are in a bucket of ice water and needles along with cinder blocks strapped to them when I walk. I notice my balance is worse on those days as well. It was so bad Saturday that I basically stayed in bed nearly all day/night. No braces, no socks, no covers or anything else was allowed to come near my feet.
I would give anything for an answer to all of this because that is nearly as frustrating as the pain is.
Post by acrobatinmydreams on Aug 9, 2015 20:15:13 GMT -8
Well I was hoping it would last longer for you. My Sacro illiac joint injections did not work. So that means my pain is coming from the clumped up nerves that are adhered to my spine. When I had the injections before in 2006, I got good pain relief, at least from the hip pain, and it lasted a few months. But it was very painful for me this time. Funny you got immediate relief because I did too in 2006. But I have been miserable all week. They did them on Monday. I don't like this "try and see" attitude they have.
I am not brave enough to let them do ESI's into the tethered cord. The neurosurgeon advised against it.
Have they mentioned nerve blocks for your lower legs? The doctor that did my SI injections mentioned it and said that they can numb the entire lower leg and see if it would help the shocks/burning/cold. But it concerns me because I depend on pressure to drive and walk. So I am a bit afraid that if they numb it, it will change my ability to walk. He said they only do one leg at a time in case that happens. But we are not normal people with normal function. So if one leg is impaired at all, I can't walk. Like you I don't have a chair or anything to use.
If the blocks work, they can do radiofrequency ablation. He said it was like using a microwave to burn the sensory nerves. But those may not last either. I think the results are hit and miss.
I have so many "different" pains that some people, especially the doctors, probably thinking I am dreaming it up. However, I assure them it is all too real. The "shooting" pain I have is from my right ankle up to about the knee. It is excruciating to the point it has nearly brought me to tears at times. I had the "buzzing/electrical" that turns out to be sciatica, or so they said. Since my ESI a couple of weeks ago that has disappeared to about 95%. The intense "cold/needle piercing" in my feet disappeared for a few days after the ESI. Now, it is back and right on the old schedule. Every other day it feels like they are in a bucket of ice water and needles along with cinder blocks strapped to them when I walk. I notice my balance is worse on those days as well. It was so bad Saturday that I basically stayed in bed nearly all day/night. No braces, no socks, no covers or anything else was allowed to come near my feet.
I would give anything for an answer to all of this because that is nearly as frustrating as the pain is.
Well your not dreaming it up. I've had sciatica, what I experience is different for me. The the problem with this type of pain is explaining it. Its a different level of pain, added to the "normal" pain. The neurosurgeon that looked at my neck said he could give me injections but he thought it wasn't going to be worthwhile. It might be they feel we exaggerate our pain when it should be taken literally. My wife thought we should take a video of me shocking. I'm not really up for that. I hope you can find some relief soon.
Well I was hoping it would last longer for you. My Sacro illiac joint injections did not work. So that means my pain is coming from the clumped up nerves that are adhered to my spine. When I had the injections before in 2006, I got good pain relief, at least from the hip pain, and it lasted a few months. But it was very painful for me this time. Funny you got immediate relief because I did too in 2006. But I have been miserable all week. They did them on Monday. I don't like this "try and see" attitude they have.
I am not brave enough to let them do ESI's into the tethered cord. The neurosurgeon advised against it.
Have they mentioned nerve blocks for your lower legs? The doctor that did my SI injections mentioned it and said that they can numb the entire lower leg and see if it would help the shocks/burning/cold. But it concerns me because I depend on pressure to drive and walk. So I am a bit afraid that if they numb it, it will change my ability to walk. He said they only do one leg at a time in case that happens. But we are not normal people with normal function. So if one leg is impaired at all, I can't walk. Like you I don't have a chair or anything to use.
If the blocks work, they can do radiofrequency ablation. He said it was like using a microwave to burn the sensory nerves. But those may not last either. I think the results are hit and miss.
I understand that chairs are costly, and if you not using it much it isn't worth spending a ton. I have a chair I got from the thrift store. It was in great shape and cost $10.00. I've only had to use it a few times but your right without it I was pooched because I couldn't walk. I'd be afraid of the nerve blocks as well, the whole ability to walk is huge. I hope you find something, seems like the "try and see" is all anyone can do at this time. I can't remember, did you try Methadone?
Well I was hoping it would last longer for you. My Sacro illiac joint injections did not work. So that means my pain is coming from the clumped up nerves that are adhered to my spine. When I had the injections before in 2006, I got good pain relief, at least from the hip pain, and it lasted a few months. But it was very painful for me this time. Funny you got immediate relief because I did too in 2006. But I have been miserable all week. They did them on Monday. I don't like this "try and see" attitude they have.
I am not brave enough to let them do ESI's into the tethered cord. The neurosurgeon advised against it.
Have they mentioned nerve blocks for your lower legs? The doctor that did my SI injections mentioned it and said that they can numb the entire lower leg and see if it would help the shocks/burning/cold. But it concerns me because I depend on pressure to drive and walk. So I am a bit afraid that if they numb it, it will change my ability to walk. He said they only do one leg at a time in case that happens. But we are not normal people with normal function. So if one leg is impaired at all, I can't walk. Like you I don't have a chair or anything to use.
If the blocks work, they can do radiofrequency ablation. He said it was like using a microwave to burn the sensory nerves. But those may not last either. I think the results are hit and miss.
I am scheduled for another this Thursday. The sciatica has been relieved which is a big plus. Anytime some pain is relieved it is a win of sorts. LOL
I have so many "different" pains that some people, especially the doctors, probably thinking I am dreaming it up. However, I assure them it is all too real. The "shooting" pain I have is from my right ankle up to about the knee. It is excruciating to the point it has nearly brought me to tears at times. I had the "buzzing/electrical" that turns out to be sciatica, or so they said. Since my ESI a couple of weeks ago that has disappeared to about 95%. The intense "cold/needle piercing" in my feet disappeared for a few days after the ESI. Now, it is back and right on the old schedule. Every other day it feels like they are in a bucket of ice water and needles along with cinder blocks strapped to them when I walk. I notice my balance is worse on those days as well. It was so bad Saturday that I basically stayed in bed nearly all day/night. No braces, no socks, no covers or anything else was allowed to come near my feet.
I would give anything for an answer to all of this because that is nearly as frustrating as the pain is.
Well your not dreaming it up. I've had sciatica, what I experience is different for me. The the problem with this type of pain is explaining it. Its a different level of pain, added to the "normal" pain. The neurosurgeon that looked at my neck said he could give me injections but he thought it wasn't going to be worthwhile. It might be they feel we exaggerate our pain when it should be taken literally. My wife thought we should take a video of me shocking. I'm not really up for that. I hope you can find some relief soon.
Exactly kilg0retr0ut, explaining it and getting them to comprehend is the problem. I will not hesitate to take of video because one way or another they are going to know what I am dealing with. I know that isn't for everyone but after 19+ years of getting the same old "three headed man" look I am going to let them know LOL
Well I was hoping it would last longer for you. My Sacro illiac joint injections did not work. So that means my pain is coming from the clumped up nerves that are adhered to my spine. When I had the injections before in 2006, I got good pain relief, at least from the hip pain, and it lasted a few months. But it was very painful for me this time. Funny you got immediate relief because I did too in 2006. But I have been miserable all week. They did them on Monday. I don't like this "try and see" attitude they have.
I am not brave enough to let them do ESI's into the tethered cord. The neurosurgeon advised against it.
Have they mentioned nerve blocks for your lower legs? The doctor that did my SI injections mentioned it and said that they can numb the entire lower leg and see if it would help the shocks/burning/cold. But it concerns me because I depend on pressure to drive and walk. So I am a bit afraid that if they numb it, it will change my ability to walk. He said they only do one leg at a time in case that happens. But we are not normal people with normal function. So if one leg is impaired at all, I can't walk. Like you I don't have a chair or anything to use.
If the blocks work, they can do radiofrequency ablation. He said it was like using a microwave to burn the sensory nerves. But those may not last either. I think the results are hit and miss.
I am scheduled for another this Thursday. The sciatica has been relieved which is a big plus. Anytime some pain is relieved it is a win of sorts. LOL
I am scheduled for more SI joint injections on the 18th but I think it has aggravated my pain. They wanted to do trocanter blocks in addition to the SI joints at the same time but we decided on just the SI joints. The thing with us is this could be referred pain from somewhere else. I am numb in my SI joints or down to the joints anyway and always have been because of my injury but I honestly can't stand to undergo another set.
I hope you get some relief acrobatinmydreams. I am not sure how many of these my insurance is going to let me have but I am sure it is only a few. My part on the ESI is $320.00 so I am not going to shell that out every three weeks for very long.
Well I was hoping it would last longer for you. My Sacro illiac joint injections did not work. So that means my pain is coming from the clumped up nerves that are adhered to my spine. When I had the injections before in 2006, I got good pain relief, at least from the hip pain, and it lasted a few months. But it was very painful for me this time. Funny you got immediate relief because I did too in 2006. But I have been miserable all week. They did them on Monday. I don't like this "try and see" attitude they have.
I am not brave enough to let them do ESI's into the tethered cord. The neurosurgeon advised against it.
Have they mentioned nerve blocks for your lower legs? The doctor that did my SI injections mentioned it and said that they can numb the entire lower leg and see if it would help the shocks/burning/cold. But it concerns me because I depend on pressure to drive and walk. So I am a bit afraid that if they numb it, it will change my ability to walk. He said they only do one leg at a time in case that happens. But we are not normal people with normal function. So if one leg is impaired at all, I can't walk. Like you I don't have a chair or anything to use.
If the blocks work, they can do radiofrequency ablation. He said it was like using a microwave to burn the sensory nerves. But those may not last either. I think the results are hit and miss.
I understand that chairs are costly, and if you not using it much it isn't worth spending a ton. I have a chair I got from the thrift store. It was in great shape and cost $10.00. I've only had to use it a few times but your right without it I was pooched because I couldn't walk. I'd be afraid of the nerve blocks as well, the whole ability to walk is huge. I hope you find something, seems like the "try and see" is all anyone can do at this time. I can't remember, did you try Methadone?
The thing is I am going to have to just use it to do all the things that I usually walk to do. My hips are just worn out from all the walking with a swayed gait. I know there is not much they can do but try and see but I hate to be a guinea pig and so many of the treatments simply won't work for us. They know that. The interventional side of pain management is a billion dollar a year industry. After weeding through a couple of bad clinics, I think I have found a trust worthy pain doctor. I was really hoping the SI injections would work like they did in 2006 when I had them. I got immediate relief. But it seems the Depo Medrol just aggravated it this time.
So at Craig (SCI hospital in Denver CO), they measured me for a chair and I am just waiting on it to get here. Oddly in CO, I qualify for Medicaid so that will take care of the thousands of dollars I was anticipating. I haven't qualified for Mcaid since my accident because I worked most of the years afterwards.
Also one thing I have noticed with pain management. They don't know much about the tethered cord (Adhesive Arachnoiditis) that I have. If you do an injections into that mess of "clumped nerves", there is no way they can tell if there is a connecting fissure. I have a syrynx also...thanks to my original accident and one that is normal for the time that I have been injured. If there is a fissure meaning the CSF fluid flows in and out then the Depo Medrol into that mess of nerves could completely paralyze me. When you sign consent for these interventional procedures paralysis is one of the risks that you acknowledge can happen as a risk of normal part of the procedure. The neurosurgeon said that EVERYONE who has been injured as long as I have will have a tethered cord. It won't bother most people but some need surgery. I am one of the latter that will eventually need surgery. My legs have weakened considerably but I don't know if it is decreasing my walking or I am suffering from more damage from the spinal cord injury.
I have not tried Methadone. I have been on 5 mg of oxycodone three times a day since 2007 and I take 90 mg Cymbalta with it. I did not tolerate Lyrica, Topamax, Neurontin or any of the other drugs prescribed for the burning because they plunged me into depression and brain fog that wouldn't allow me to work. I have took them all at different times during the last 26 years with the same results over and over. I started taking Darvocet in about 2003 when I developed stomach ulcers from the 800mg Ibuprofen I had been taking for several years. Ibuprofen really works best for the hip pain but once you get ulcers from it you cannot take any nsaids anymore. I tried that too earlier last year, ulcers came back with a vengeance.
So just keep a watch on your symptoms as you age.
jeff1967, LOL at the $320.00 every three weeks. There is a reason they are making a Billion a year. I wouldn't mind it if it worked though. I have to drive 5 hours to get mine...all the way to Denver. It hurt so bad this time, I stayed the night. I can't do that often either. www.painnewsnetwork.org/stories/2015/8/9/fed-report-sparks-new-debate-over-steroid-injections Read the Bold links embedded within this article. Very Interesting as ESI are NOT FDA approved.