Inspired Spinal Cord Injury Support Forum

fishkybizniz
Member

Posts: 174

Post Likes Received: 147
Date Joined: June 2014
Injury: C4,5&6
Date Injured: 1987/.. diagnosed 11/2013

Member is: Offline
Send PM

Adrenal insufficiently Jul 30, 2015 19:17:25 GMT -8

Quote

Post by fishkybizniz on Jul 30, 2015 19:17:25 GMT -8

Before my injury was discovered I was being treated for high blood pressure. Starting a few months ago my blood pressure got dangerously low. My doctor said something else is wrong. He tested my adrenal system and the whole blasted thing was on tilt. Low potassium, low blood sugar, low salt, and the whopper of it all, low cordisol. My doctor fast tracked me into an Endocrinologist. I don't have Addison's disease but I now have to deal with the problem as my case is a parallel to Addison's. My doctor said the stress from the injured cord (c3, c4 & c5) and narcotics is the probable cause. I wasn't taking it too serious until I got my no fail every 3 months Nerogenic bladder infection. Yesterday my caregiver was on the phone with doctors giving a play by play. Oh lucky me I didn't have to go to ER. I'm on board now. I have a wrist blood pressure monitor with 2 Potassium doses and dexamethasone I need with me at all times. No wonder it has been so hard for me to make progress. The cord and low cordisol dished out a doubled of fatigue. Anyone else dealing with adrenal fatigue??

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Adrenal insufficiently Jul 31, 2015 5:14:11 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Jul 31, 2015 5:14:11 GMT -8 fishkybizniz, I havent heard of anyone with it? Its interesting that it can be an effect from the injury but nothing surprises me, one thing triggers another it seems

fishkybizniz
Member

Posts: 174

Post Likes Received: 147
Date Joined: June 2014
Injury: C4,5&6
Date Injured: 1987/.. diagnosed 11/2013

Member is: Offline
Send PM

Adrenal insufficiently Jul 31, 2015 7:04:02 GMT -8 via Inspired Mobile

Quote

Post by fishkybizniz on Jul 31, 2015 7:04:02 GMT -8

In the blood pressure thread I noticed the mention a lot of members reporting low blood pressure. That's why I created this thread. It's the first sign of having adrenal fatigue. Adrenal fatigue is a fatal condition if not treated properly. Doctors can supplement cortisol so the organs can work correctly day to day but when the body gets stressed, 3X the amount is needed. The condition is so serious, it needs more than several medical alerts handy. My bladder infection stressed my system plummeting my blood pressure down to 74/58 with a 111 pulse. Immediately my caregiver leaped into action. The exhausted pituitary gland can't produce enough to keep the organs regulated let alone release extra when the body gets stressed. With my infection I now see the importance of having what to do mapped out and making sure I have my counter attack arsenal with me at all times. Guess who's going shopping for dog tags? Arf Arf

DJ likes this

kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	Adrenal insufficiently Jul 31, 2015 14:51:55 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Jul 31, 2015 14:51:55 GMT -8 Your attitude is great.
	L4/5 CES

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Adrenal insufficiently Aug 1, 2015 5:51:09 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Aug 1, 2015 5:51:09 GMT -8 fishkybizniz I have low blood pressure generally but nothing like what you're experiencing. It's good you brought this up though because it's a pretty serious issue and it's important that everyone is aware of it!

fishkybizniz
Member

Posts: 174

Post Likes Received: 147
Date Joined: June 2014
Injury: C4,5&6
Date Injured: 1987/.. diagnosed 11/2013

Member is: Offline
Send PM

Adrenal insufficiently Aug 1, 2015 11:21:57 GMT -8 via Inspired Mobile

Quote

Post by fishkybizniz on Aug 1, 2015 11:21:57 GMT -8

Jul 31, 2015 5:14:11 GMT -8 Lαrα said:

fishkybizniz, I havent heard of anyone with it? Its interesting that it can be an effect from the injury but nothing surprises me, one thing triggers another it seems

I found an article online about the chain of events that happen after a cord injury. Too scientific for me to follow word for word. It explains how spinal cord injuries make us susceptible to diseases and poor health issues. I've had my whole back tested for allergies and not allergic to anything but need treatment for a severe case of rhinitis and mild asthma. So yes, our spinal cord injuries make us vulnerable.

fishkybizniz
Member

Posts: 174

Post Likes Received: 147
Date Joined: June 2014
Injury: C4,5&6
Date Injured: 1987/.. diagnosed 11/2013

Member is: Offline
Send PM

Adrenal insufficiently Aug 1, 2015 11:28:17 GMT -8 via Inspired Mobile

Quote

Post by fishkybizniz on Aug 1, 2015 11:28:17 GMT -8

Jul 31, 2015 14:51:55 GMT -8 kilg0retr0ut said:

Your attitude is great.

Thank you. I decided from the beginning I would not let this steal my joy. I'm still me and still have a life to live. Pouting about it will only make it worse. "Run Forest RUN!"

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Adrenal insufficiently Aug 1, 2015 13:31:08 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Aug 1, 2015 13:31:08 GMT -8 fishkybizniz,This is the best way forwards for anyone with SCI, its all about attitude..

wavewolf
Advanced Member

Posts: 1,407

Post Likes Received: 1,159
Date Joined: July 2013
Injury: T9 incomplete + other neurological
Date Injured: 10 February 2009

Member is: Offline
Send PM

Adrenal insufficiently Aug 6, 2015 21:15:15 GMT -8

Quote

Post by wavewolf on Aug 6, 2015 21:15:15 GMT -8

fishkybizniz, very valuable info! I am glad you are getting on top of better care for condition. I am on immune-suppressing meds for my disease, neurosarcoidosis. High doses of steroids for over six years, so my body does not make cortisol. Therefore, I am in constant state of adrenal fatigue, and it has become critical (life threatening) several times. It is the major cause for my lack of energy. Only answer for me because of disease (which caused my SCI) is steroid dependency. When I tried for second time to taper steroids to avoid side effects of chronic use, I could not function at all. I wrestle with balancing all aspects every day.

Medical dog tag--great idea! Here is what I use, including visible message for immediate access and electronic version for detailed info:
www.loveyourpets.com/home/lp4/page_2476 stainless steel is most durable, up to 6 lines of 20 characters--fist line should be name + "MEDICAL ALERT"
www.loveyourpets.com/home/lp4/smartlist_42/accessories.html stainless steel chain, can be sized easily, very strong but would break for safety
www.amazon.com/Verbatim-Flash-Drive-Black-98505/dp/B00J88HSUK you can store all the info ever needed for emergency!

DJ and fishkybizniz like this

Hoea ra!

fishkybizniz
Member

Posts: 174

Post Likes Received: 147
Date Joined: June 2014
Injury: C4,5&6
Date Injured: 1987/.. diagnosed 11/2013

Member is: Offline
Send PM

Adrenal insufficiently Aug 16, 2015 0:53:18 GMT -8 via Inspired Mobile

Quote

Post by fishkybizniz on Aug 16, 2015 0:53:18 GMT -8

Thank you Warewolf. Whoa, I'm sorry to hear you're so delicate. It's all a bit of a dance isn't it? My stress testing confirmed my pituitary is still functioning with the testing showing now it's not enough. I have to supplement the hormone for 3-6 months before we'll know if the cord injury messed it up for good. I'm so grateful for everyone here free sharing their journey. The conditions I've dealt with make my well friends eyes glaze over if I try to explain. So what if we nap like a hibernating tortoise. LOL!

DJ and wavewolf like this

keithbruce Member Posts: 108 Post Likes Received: 69 Date Joined: November 2015 Member is: Offline Send PM	Adrenal insufficiently Feb 15, 2016 20:08:01 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by keithbruce on Feb 15, 2016 20:08:01 GMT -8 fishkybizniz, I hope you have recovered from the condition.
	DJ likes this OrthoTexas, Frisco

Site Map	Site Policies	Helpful Links
Home	Terms of Service	Forum Features
About Us	Privacy Policy	Site Discussion
Account	Rules	Server Status
New Posts	Report Abuse	Mobile App

Adrenal insufficiently

Post by fishkybizniz on Jul 30, 2015 19:17:25 GMT -8

Post by Lαrα on Jul 31, 2015 5:14:11 GMT -8

Post by fishkybizniz on Jul 31, 2015 7:04:02 GMT -8

Post by kilg0retr0ut on Jul 31, 2015 14:51:55 GMT -8

Post by DJ on Aug 1, 2015 5:51:09 GMT -8

Post by fishkybizniz on Aug 1, 2015 11:21:57 GMT -8

Post by fishkybizniz on Aug 1, 2015 11:28:17 GMT -8

Post by Lαrα on Aug 1, 2015 13:31:08 GMT -8

Post by wavewolf on Aug 6, 2015 21:15:15 GMT -8

Post by fishkybizniz on Aug 16, 2015 0:53:18 GMT -8

Post by keithbruce on Feb 15, 2016 20:08:01 GMT -8

Like Us On Facebook

Help Support The Forum