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charles555nc
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Cauda Equina Syndrome, normal-ish MRI Sept 21, 2015 18:34:41 GMT -8

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Post by charles555nc on Sept 21, 2015 18:34:41 GMT -8

I feel like something is stabbing me in the back at around the l3-l4 area. Ive had two discetomies at the L4-L5 and the L5- S1 with 0 improvement (always told the doctors my pain was higher).

I have foot weakness, sexual dysfunction, severe lower back pain, butt pain, and electrical shocks sometimes when I "push" to make a bowel movement. Unfortunately very little is showing up on my MRI. I have no clue what to do and doctors are completely worthless to me right now.

I look at cauda equina syndrome forums everywhere and its nothing but the most generic information. Does anyone have information/experience about tougher cases? I actually read alot of cases where people have severe symptoms and normal looking MRIs. What gets these people diagnosed?

Can anyone help me?

(Ill punch you if you come at me with the "Stay positive" crap)

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DJ
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Cauda Equina Syndrome, normal-ish MRI Sept 22, 2015 9:11:20 GMT -8

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Post by DJ on Sept 22, 2015 9:11:20 GMT -8

Welcome charles555nc

All I can say is stay positive! Lol, for real though, the doctors have not yet diagnosed you of anything? They just looked at the normalish MRI results and told you you're fine? Your symptoms do seem a lot CES symptoms. Hopefully more of our CES members will reply to compare symptoms.

How long have you had this for? Have you had any major falls or injuries prior to the symptoms that you can remember?

kilg0retr0ut
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Cauda Equina Syndrome, normal-ish MRI Sept 22, 2015 12:17:52 GMT -8

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Post by kilg0retr0ut on Sept 22, 2015 12:17:52 GMT -8

Sept 21, 2015 18:34:41 GMT -8 charles555nc said:

I feel like something is stabbing me in the back at around the l3-l4 area. Ive had two discetomies at the L4-L5 and the L5- S1 with 0 improvement (always told the doctors my pain was higher).

I have foot weakness, sexual dysfunction, severe lower back pain, butt pain, and electrical shocks sometimes when I "push" to make a bowel movement. Unfortunately very little is showing up on my MRI. I have no clue what to do and doctors are completely worthless to me right now.

I look at cauda equina syndrome forums everywhere and its nothing but the most generic information. Does anyone have information/experience about tougher cases? I actually read alot of cases where people have severe symptoms and normal looking MRIs. What gets these people diagnosed?

Can anyone help me?

(Ill punch you if you come at me with the "Stay positive" crap)

Being paralyzed from my waist down was a dead giveaway. We are kinda the "Stay positive" type site, so I hope your really not going to punch anyone. Sorry for your pain.
There is a thread here on red flag symptoms, not sure what your looking for.?

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charles555nc
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Cauda Equina Syndrome, normal-ish MRI Sept 22, 2015 13:03:42 GMT -8

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Post by charles555nc on Sept 22, 2015 13:03:42 GMT -8

Sept 22, 2015 12:17:52 GMT -8 kilg0retr0ut said:

Sorry for your pain.
There is a thread here on red flag symptoms, not sure what your looking for.?

Are you serious? Im asking how I can get surgery, identify my problem before I have permanent nerve damage...I thought I was clear about that. I know its Cauda Equina Nerves, but MRIs are like God to doctors and my MRI is not giving them an easy target.

DJ
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Cauda Equina Syndrome, normal-ish MRI Sept 23, 2015 4:36:10 GMT -8

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Post by DJ on Sept 23, 2015 4:36:10 GMT -8

Sept 22, 2015 13:03:42 GMT -8 charles555nc said:

Sept 22, 2015 12:17:52 GMT -8 kilg0retr0ut said:

Sorry for your pain.
There is a thread here on red flag symptoms, not sure what your looking for.?

Are you serious? Im asking how I can get surgery, identify my problem before I have permanent nerve damage...I thought I was clear about that. I know its Cauda Equina Nerves, but MRIs are like God to doctors and my MRI is not giving them an easy target.

Well if you read the other thread you'll see how others were able to finally able to have their surgery done. If you're certain you have CES be persistent and tell your doctors that it's gotta be CES due to the symptoms.

kilg0retr0ut
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Cauda Equina Syndrome, normal-ish MRI Sept 23, 2015 7:34:41 GMT -8

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Post by kilg0retr0ut on Sept 23, 2015 7:34:41 GMT -8

Sept 22, 2015 13:03:42 GMT -8 charles555nc said:

Sept 22, 2015 12:17:52 GMT -8 kilg0retr0ut said:

Sorry for your pain.
There is a thread here on red flag symptoms, not sure what your looking for.?

Are you serious? Im asking how I can get surgery, identify my problem before I have permanent nerve damage...I thought I was clear about that. I know its Cauda Equina Nerves, but MRIs are like God to doctors and my MRI is not giving them an easy target.

Dead serious Chuck. If your doctor tells you something you don't like find another doctor. You best bet would be someone in Neurosurgery. Are you a doctor? If not, how the hell you know it's CES.
You sound like you want it to be CES. I truly hope it isn't. Why would you tell the doctor your in more pain than you are? That's another type of red flag. There is a lot of info here, do some work and read how others have handled similar situations. You may need to see a pain specialist, they may be able to help you with your issues.

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kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	Cauda Equina Syndrome, normal-ish MRI Sept 24, 2015 7:50:18 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Sept 24, 2015 7:50:18 GMT -8 My apologies Charles, I misread the "told the doctor your pain was higher" I understand the pain was higher in you back. My mistake. Swing away, just don't hit me in the head.
	L4/5 CES

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Cauda Equina Syndrome, normal-ish MRI

Post by charles555nc on Sept 21, 2015 18:34:41 GMT -8

Post by DJ on Sept 22, 2015 9:11:20 GMT -8

Post by kilg0retr0ut on Sept 22, 2015 12:17:52 GMT -8

Post by charles555nc on Sept 22, 2015 13:03:42 GMT -8

Post by DJ on Sept 23, 2015 4:36:10 GMT -8

Post by kilg0retr0ut on Sept 23, 2015 7:34:41 GMT -8

Post by kilg0retr0ut on Sept 24, 2015 7:50:18 GMT -8

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