My issues started 17 months ago. I had a lot of back pain and was having time off work. For about a month previous to that, I had a lot of shooting pains in both legs as well.
I had already been to the ER twice because I knew something wasn't right but they kept giving me painkillers and sending me home. One night I got the kids to bed and then went to hospital because the pain was getting unbearable. Again they tried to send me home. This time I couldn't make it to my car so I went back to the bed and demanded they do something.
The doctor came and gave me a hard time about not leaving and didn't seem to believe that there was something wrong. Over the next two hours my whole lower half went numb. It was excruciating and I had the doctor there watching me while I laid there in agony and offered no pain medication.
Later on I was woken up by the doctor who told me I was overdosed and insinuated that it was my fault. Luckily it was time for the next shift to come on and common sense prevailed. The neurosurgery department was called and a couple of different specialists visited me through the day.
I had surgery the next day. I was happy when I woke up and I had some feeling back in my lower half. After a week in hospital, they sent me to a rehabilitation centre for 3 weeks. The hospital then provided rehab for another 3 months at home.
Then it got worse again. I had surgery number two which apparently went well. That was 4 months ago now. I have given up hope of going back to work any more. I'm always in pain, my feet are swelling up, I now have mild bladder and bowel dysfunction, depression etc.
In all, it has been a horrible experience that almost destroyed me mentally, physically and financially.
I'm really sorry to hear about your hospital experience. I've seen member on here share similar stories and I just don't understand why the doctors think it's ok to prescribe a bunch of drugs and call it a day without properly investigating! What function do you currently have after surgery 2? I think the pain is from being so early from the surgery, hopefully it settles as time passes.
Post by kilg0retr0ut on Nov 12, 2015 13:59:37 GMT -8
Welcome Horrible familiar sounding story. One thing with SCI injuries is you learn your stronger than you may have expected, not really given a choice. 17 months is still really fresh jon, you still have a great window for return, and I hope you can find the right combo of exercise and meds to reduce your pain and get you back to being able to function on a higher level. You made it this far, you'll find a way to manage. This site is loaded with CES information and experiences, many here have CES residuals. Mark