Sorry, For some reason in the Private Msg, it doesn't allow me to insert images. Per your last msg, here is the latest MRI I have my lumbar spine. This was done about 3 years ago which is about 1.5 years post my L5-S1 microdiscectomy I have not had a repeat MRI since then. Since I don't have sciatica, useless docs feel no reason to repeat. This was done at Mass General hospital though, a different from the previous one. Does it still look inflamed to you? Thanks.
PS, I have to sit down and try to figure out this software one day. Maybe I can get the right slices to capture the levels I want. Perhaps that is confusing.
phugoi1982, not meaning to derail our present thread, but I wanted to tell you how to “work-around” the problem of not being able to insert an image in Private Messages. Here’s what you do: Go to any open thread on the forum where you might normally post, click full reply. Click Attach Image,...go to your photo album, choose the picture, paste it to your comment. Then COPY THAT LINK THAT APPEARS. After you copy the link, exit the forum without posting anything. Go to Messages and Paste that link that you previously “copied” into the Private Message. Send. Your image will appear in the Private Message.
phugoi1982, not meaning to derail our present thread, but I wanted to tell you how to “work-around” the problem of not being able to insert an image in Private Messages. Here’s what you do: Go to any open thread on the forum where you might normally post, click full reply. Click Attach Image,...go to your photo album, choose the picture, paste it to your comment. Then COPY THAT LINK THAT APPEARS. After in you copy the link, exit the forum without posting anything. Go to Messages and Paste that link that you previously “copied” into the Private Message. Send. Your image will appear in the Private Message.
Thanks for the info! I was going crazy trying to to post pics
phugoi1982 , do you know if bones were removed when you had surgery? Usually, the surgeon needs access to the spinal canal. Did he tell you?
The reason why I am asking: The boney area next to the foramina (both sides) should be the same color as the other bones. The dark, almost black color is unusual. Maybe that's the area that causes irritation to your caudal structures. Warning: I'm no radiologist - only patient like you. So don't take too seriously what I'm writing. Also, maybe one of your doctor's can give you more details if you ask him directly.
By the way, there is a much easier option to attach images in PMs. Don't use the "quick reply" option. Use the "quote"-option instead. You'll find the "attach image"-button in the right corner.
phugoi1982 , do you know if bones were removed when you had surgery? Usually, the surgeon needs access to the spinal canal. Did he tell you?
The reason why I am asking: The boney area next to the foramina (both sides) should be the same color as the other bones. The dark, almost black color is unusual. Maybe that's the area that causes irritation to your caudal structures. Warning: I'm no radiologist - only patient like you. So don't take too seriously what I'm writing. Also, maybe one of your doctor's can give you more details if you ask him directly.
By the way, there is a much easier option to attach images in PMs. Don't use the "quick reply" option. Use the "quote"-option instead. You'll find the "attach image"-button in the right corner.
Yes, they removed a little bone I think. Unfortunately, me surgeon was useless after surgery, denied cauda equina and was eager to do a spinal fusion if I didnt get better. He barely explained anything and in my report wrote surgery was an "astounding success" Even though my neurogenic bladder and sexual issues persisted as well as worstened back pain and arthritis. As far as he was concerned since sciatica resolved nothing else mattered. He also lied to me and said I had significant spinal instability and spondylolisthesis and would need a fusion later on just to probably so surgery again on me. My other neuros said my spinal alignment was fine and my pain was from arthritis accelerated by waiting too long to do the microdiscectomy.
By the way, there is a much easier option to attach images in PMs. Don't use the "quick reply" option. Use the "quote"-option instead. You'll find the "attach image"-button in the right corner.
Hey, thanks,r0hbart. Who’da thunk it?...starting with “quote” to attach an image.
I got a model of a spine and figured out which of my bones was removed when I had surgery (one of the doctor's letters said "extended foraminotomy" another called the procedure "hemilaminectomy"). It didn't take long for me to see what was going on in there.
I got a model of a spine and figured out which of my bones was removed when I had surgery (one of the doctor's letters said "extended foraminotomy" another called the procedure "hemilaminectomy"). It didn't take long for me to see what was going on in there.
I had a copy of my surgical report from years ago but I'm pretty sure I recall seeing the same words "foraminotomy" and "hemilaminectomy". Just as an update, thankfully my Urologist (the one who diagnosed the neurogenic bladder) wrote me an extremely strong recommendation letter for the Undiagnosed disease program I'm trying to get into in Boston. Fortunately, the program is based at the hospital where I had my discectomy. I'm basically hoping everyday I get in so I can get some damn proof of nerve damage and try a stem cell transplant or anything. I'm so mad it took me this long to get the letter. Like I said, one neurologist flat out refused to write the letter and said it is psychological and the other tried to have me committed to a mental hospital I'm also glad this Urologist had the guts to write his clinical impression again that he felt it was an undiagnosed Cauda Lesion that is probably not showing up on MRI.
Also, just to update I stupidly moved a slightly heavy plant a month an half a go and again the back pain flared up. No sciatica but horrible spasms and lower back pain. Surprise, surprise, as soon as this happened my bladder symptoms flared up. I've had to strain again to urinate much more than normal, and I have less and less sensation inside the bladder and no urge to go. Also, I'm noticing the so called "saddle" numbness. Went to the ER again and they refused to do an MRI despite the same Cauda Equina symptoms solely because I wasn't retaining and I had no sciatica. Again, this only keeps validating my point that any injury to my back or flaring up worstens my bladder symptoms. Yet, these morons refuse to accept it.
I had a copy of my surgical report from years ago but I'm pretty sure I recall seeing the same words "foraminotomy" and "hemilaminectomy". Just as an update, thankfully my Urologist (the one who diagnosed the neurogenic bladder) wrote me an extremely strong recommendation letter for the Undiagnosed disease program I'm trying to get into in Boston. Fortunately, the program is based at the hospital where I had my discectomy. I'm basically hoping everyday I get in so I can get some damn proof of nerve damage and try a stem cell transplant or anything. I'm so mad it took me this long to get the letter. Like I said, one neurologist flat out refused to write the letter and said it is psychological and the other tried to have me committed to a mental hospital I'm also glad this Urologist had the guts to write his clinical impression again that he felt it was an undiagnosed Cauda Lesion that is probably not showing up on MRI.
Also, just to update I stupidly moved a slightly heavy plant a month an half a go and again the back pain flared up. No sciatica but horrible spasms and lower back pain. Surprise, surprise, as soon as this happened my bladder symptoms flared up. I've had to strain again to urinate much more than normal, and I have less and less sensation inside the bladder and no urge to go. Also, I'm noticing the so called "saddle" numbness. Went to the ER again and they refused to do an MRI despite the same Cauda Equina symptoms solely because I wasn't retaining and I had no sciatica. Again, this only keeps validating my point that any injury to my back or flaring up worstens my bladder symptoms. Yet, these morons refuse to accept it.
Thanks for posting that! It made me furious reading because I've been going through the same thing for 15 years. My family labelling me a hypohchondriac as well as doctors and insisting my symptoms were a "manifestation of my inability to succeed in life". Fortunately, I never got to the point where I doubted myself totally although I came close. The more I fought with doctors and argued they tried to force me to take psychiatric drugs and when I told one he was a quack he nearly had me committed. I've been threatened with psychiatric hospitalization so by my family and doctors so many times. The worst thing is now, my mom believes me but just tells me not to talk about it and move on with life. I always argue, this wasn't some act of "God" or some disease like MS that you just get. What happened to me was systematic abuse and neglect from the medical community and I told her I'm not going to give them a convenient out of escaping blame for what they did to me just to make you or anyone else comfortable.
I can forgive the doctors who missed my problem even though they tried because at least they took me seriously. But the rest of the doctors who smirked at me, laughed and called my hypochondriac and denied me real care....not going to lie, I have fantasized about harming them (Not going to do it, but it makes me mad). I just keep counting on getting the right diagnosis and then nailing them with litigation.
I can forgive the doctors who missed my problem even though they tried because at least they took me seriously. But the rest of the doctors who smirked at me, laughed and called my hypochondriac and denied me real care....not going to lie, I have fantasized about harming them (Not going to do it, but it makes me mad). I just keep counting on getting the right diagnosis and then nailing them with litigation.
I get that. I went through a period of fantasizing murder of some people who treated me badly. It was an outlet and eventually I moved on. One reason I posted the link is that a Canadian friend who is transgender and an SCId person with horrifying pain related to bladder control was labeled having "body identification problems" as the reason for his pain and refused pain meds by the pain clinic people. Eventually his local (large) hospital refused to treat him except in the ER because he repeatedly demanded good care from their Urology department, and those people had thrown up their hands and blamed him basically because his medical case is very complex and they could not figure it out. Eventually he found doctors in the closest city who work well with him and are very helpful. It takes hours to drive there and the trip requires a hotel room. Who pays? Canadian Veterans Affairs is supposed to but they are more than a year behind in their payment backlog. Complex cases often go through hell, especially getting insurance to cover proper treatment.
I don't know exactly what to answer. I have been in a similar situation for 15 years. Even one of my trusted doctors has changed his mind and says I never actually had CES. Regarding surgery, he says it was absolutely necessary, but he did not want to tell me anything about the indication.
I have been annoyed for years about this behavior.
I do not think I can solve this problem medically anymore. Therefore, today I am more interested in compensation than expensive treatments nobody wants to bear the costs.