L5-S1 herniation neurogenic bladder not Cauda Equina

I’m sorry you got rejected from the research program, phugoi1982. What I’m going to say will be small consolation, but sometimes the research tests, drugs, and implants do further harm to the participants. ...not always, of course,... but sometimes, even years later, it comes out that unanticipated complications were caused to some by the research. Arachnoiditis, a tumour in the spine can get started with surgery, a spinal tap, or a spinal block. Surgery had been planned on my back, but circumstances converged so that it couldn’t be done within a critical timeframe. I had thought that I “missed out”, and that may be true, but the surgery (if I’d had it) could also have been the beginning of yet more problems. Maybe soon there will be another opportunity for you from a different source. Hope so.🌤

I have clonus in my stump. The whole thing “kicks”. Looks really pitiful. I’m hypothyroid, so I take Kelp. Are you hypo-, hyper-, Hashimoto, or something else? A CT of your spine could be helpful. You want to know for sure what you’ve “got”. Just be sure that, after it’s done, you keep control over what the doctors “do about it”. Once they finally “see something” , they can tend to run amuck, as in a feeding frenzy.

phugoi1982, I’m pasting here a ‘reprint portion’ of something I put here on this forum on a different Thread. It’s something that I found on an alternative therapy forum. The info sounds reasonable to me. I would be amiss to believe that I have an answer to your autoimmune problem and yet keep quiet about it. I won’t belabour the point, but I hope you’ll go to these two links and check it out. I take herbs to kill parasites. Wormwood, cloves, and green black walnut hull tincture. I used to grow wormwood. And I used to make green black walnut hull tincture myself, gathering the walnuts (still inside their green hull) from off the ground where they’d fallen at a public park. Well, actually, they were Texas Walnuts, not Black Walnuts, but they worked really well.
“Diabetes
Autoimmune thyroid disease
Hypertension
Vertigo

Diabetes-
www.drclark.net/en-us/disease-a-protocols/other-illnesses-41826/diabetes

Autoimmune thyroid disease
www.curezone.org/forums/am.asp?i=613533
almostthere
This is a reply to # 613,533
Yes! My daughter had Hashimoto's cured when her parasites were gone.”

You’re welcome.
Ooooh! (Squeals with delight) This is my favorite article yet on “parasites and Hashimoto’s”.
hypothyroidmom.com/what-parasites-can-play-a-role-in-hypothyroidism/
“How Can An Infection With A Parasite Cause Hypothyroidism?
First of all, it’s important to understand that most parasitic infections won’t result in hypothyroidism. But certain parasites can trigger an autoimmune response, and thus if someone has a genetic predisposition for Hashimoto’s Thyroiditis, then having a parasitic infection can lead to the development of this condition. And many cases of Hashimoto’s Thyroiditis will result in subclinical hypothyroidism, which over time can progress to overt hypothyroidism. So a parasite usually doesn’t directly affect the thyroid gland, but instead affects the immune system, which in turn causes it to damage the thyroid gland, thus leading to hypothyroidism.
How Do You Treat A Parasitic Infection?
...Some of the more common agents used to eradicate parasites include the herbs wormwood, black walnut, clove, and oregano oil.”

Here’s yet another alternative therapy article saying that parasites cause autoimmune disease.
www.amymyersmd.com/2017/05/10-signs-you-may-have-a-parasite/

—A research article that mentions Hashimoto’s.
www.ncbi.nlm.nih.gov/pubmed/10959126

P.S. Now that I can’t garden nor gather fallen walnuts, I buy my parasite herbs from drclarkstore.com
drclarkstore.com/dr-clark-parasite-cleanse-w-freeze-dried-green-black-walnut-hull/
Or
drclarkstore.com/dr-clark-paracleanse-vegetarian-3-items/

And...if you do a liver flush, you’ll be able to eat spaghetti like a happy Italian. Honest. You can forget all that tasteless, textureless, gluten-free bread. Google “liver flush”.

Need to vent!!! So, the recommendations of the "Undiagnosed diseases program" that rejected me was to get a second opinion from a Rehab hospital that specializes in Spinal Cord Injury like Spaulding in Boston which is one of the best. First of all, are these people idiots? Rehab hospitals will treat BASED on an F*ing diagnosis which I do not have.  In fact, I called this hospital two years ago and they refused to take me and I called another one now in DC and they also will not take me because I have no physical limitations. When are these morons going to realize that I need A DIAGNOSIS and that I obviously have an ATYPICAL case of Cauda Equina. Fortunately, the medical team that rejected me is going to call my Urologist who referred me and give him more info and hopefully he will continue to reiterate his belief that I have a Cauda lesion. At this point (and I'm joking), I sometimes wish i could go to a hospital ER with a gun and demand attention and a diagnosis (for those of you like the show House M.D. there was an episode where a patient who was sick and dismissed did this). Instead, in America, we have a sytsem that is more sympathetic to alcoholics and drug addicts and people who are depressed with really no reason for it and people like us who are physically ill don't get any attention. It makes me so mad that despite having this problem and being diabetic, hypertensive, thyroid disease, high cholesterol, and being only 36 and 5'10 and 160 lbs I still eat healthy and have never turned to alcohol or drugs even though with the level of anger and depression I feel It would be so easy to do so.

I think at least for me what drives me crazy is that every year that goes by gives my condition a sense of permanency and dreaded normalcy. But since I don't have a diagnosis I don't have a sense of closure. It's not like having Lupus or MS where ALS where you can mourn what you've lost and question "why my?" but at least you have a reasonable set of expectations because you know what the hell is going on. Also, all my family keeps pushing on me is go see a therapist..bla bla. I have, and 5 years of psychological counseling hasn't helped me at all even though I had a wonderful psychologist. Not to mention I was screwed by the doctors when I had initial symptoms and sent to psychiatrists who unloaded all the BS babble on me. Also, because I'm fully ambulatory and walking it gives me a false sense of hope that maybe the nerve damage can be fixed but it's usually the smaller nerves that are harder to heal from what I understand.

I will give that a try. So far the only thing ive really stuck to us a low carb high diet which I read has potential neuroprotective effects as well as neurogenerative ones.

www.ncbi.nlm.nih.gov/m/pubmed/25401509/