Has anyone heard of "Epidural Stimulation Now"? They're offering the epidural stimulation treatment to the public which consists of implanting the stimulator and injecting stem cells around the injury site. For those of you who have read the other threads on epidural stimulation treatment over the years, you'd know how promising it is and how successful it has been so far. This company is doing their treatment in Thailand since it's not yet FDA approved. They've had 3 people do treatment here so far (one of the guys are currently there now) and they've had good results so far! I'm really tempted to try it out but I feel like I should wait a bit after more people do it. The treatment costs $96,000 USD so that's another big thing to keep in mind before trying it out but honestly it's worth the money if I know I'll see results. Apparently there has been improvements in bowel & bladder function of the participants so that right there is huge. I'll post some of their videos below. What do you guys think? Would you try it?
This is the first thing that has given me any hope of recovery or even improve my condition DJ. And I would happily pay 96k just to get my bowels and bladder back.
This is the first thing that has given me any hope of recovery or even improve my condition DJ. And I would happily pay 96k just to get my bowels and bladder back.
I've become friends with Andrew Bell on social media to keep up with his improvement. I have a similar injury to his (T3 complete last August) and have been debating whether I want to invest in this or not. I'm trying to get as many questions answered as possible. I'm currently waiting to hear back from them about the medical evaluation part of it.
I recently discovered this centre in Thailand and was super excited. But I am also wary and wanting others to go first. I hear there is a second generation version being developed that doesn't need to be implanted. I have a baclofen pump, aorta stent and metal rods in my body and I think it might start getting crowded!
I've become friends with Andrew Bell on social media to keep up with his improvement. I have a similar injury to his (T3 complete last August) and have been debating whether I want to invest in this or not. I'm trying to get as many questions answered as possible. I'm currently waiting to hear back from them about the medical evaluation part of it.
I recently discovered this centre in Thailand and was super excited. But I am also wary and wanting others to go first. I hear there is a second generation version being developed that doesn't need to be implanted. I have a baclofen pump, aorta stent and metal rods in my body and I think it might start getting crowded!
Haha is there a non implant version developed? I've never heard that before! It would be ideal if we didn't need an implant especially for you since it's starting to get crowded.
Hi, my name is Andrew Bell & I am 30 years old. As background, I was hit by a car on my motorcycle last May & was left as a T6 complete SCI patient. After extensive research I flew to Thailand for the epidural stimulation treatment & stem cell treatment.
Having done the treatment & worked with the team over in Bangkok, I can honestly say it was from a medical stand point fantastic. From the health care, nutrition, physiotherapy, procedure itself & aftercare, the whole package far exceeded mine & my families expectations.
The treatment plan is totally specific to each patient. I had the epidural stimulation device inserted into my back & when turned it now allows me to have my motor functions back in my legs, whereby I can lift my knees to my chest, kick my legs out when sat & flex my ankles on command. I can also now stand on my own for up to 20mins & do sit to stand exercises with very little support. I have now begun to take steps of up to approx 30m with a walking frame which only this week I saw great progress from my recent sessions.
Each treatment plan lasts different periods of time as i also had stem cell treatment which has helped bring some of my bladder, bowel functions back. My bowel has improved the most to about 40%, bladder 25%. I hope to return for further stem cell treatment & physiotherapy later this year, but have no time scale or number of times I intend on doing this.
I was initially T3 at the time of my accident, but this quite quickly improves to T6 complete. I did not have any sensory feeling below my level of injury & this still remains the case. I have however started to get a lot of internal sensation & tingling in my legs when I exercise & when I get my legs stretched.
The stimulator is extremely easy to use & can be charged by just attaching a small pad to ur back where the battery is inserted into your back & you can do it whilst in bed or just on the sofa & is also very easy. I've had no problems of side effects from using the stimulator.
I hope this information helps & if you have any other questions on anything, please let me know & I am happy to help in anyway I can. My email is - andrew256@hotmail.com.
Thanks for joining the forum & sharing your experience. I've been following your recovery on your Facebook page and have seen how well you've been doing. It certainly gives me hope!
Post by kilg0retr0ut on Aug 17, 2016 9:00:02 GMT -8
Way to be your own advocate I asked my case worker if anybody ever recovered fully from my injury, she told me maybe one, and like you, that's exactly what I needed to hear. They wouldn't let me start any kind of P.T. for 2 months, I started without them. I was also lucky to be quite active before my injury and I think helps with your starting point. Age is also a factor, and time. I'm incredibly lucky to have regained what I have. I credit the team I had working with me, without them I'd never been accepted at the Mayo Clinic and had the ankle surgery that has me back on my feet. I still have many issues, I need medication to function, I have this crazy fatigue but I'm happy where I'm at right now and my life is good. Attitude is huge.
I wish you the best in your recovery and keep please keep us updated. Mark