So I'm going to talk about a little discussed area and that's: numb sexual parts!
I have noticed a reluctance or avoidance to bring this subject to attention by medical practitioners who have had any dealings with me. We seem to be asked and tested and advised about everything from self catheterising, indwellings, anal tone but never numb private bits
To me it is just as relevant and important a loss of function as any other. The lack of sensation, I could do nothing about but i did get used to it. My orgasms were very hard worked for and frustrating to say the least. I needed much more imagination and use of aids and a considerate and caring partner, though until i met this person I did ride solo at the start and did fine, but it is so much better to enjoy when sharing the experience with your partner!
The first time that i managed to orgasm I had one huge bladder spasm after and it almost put me off trying again but not being one to give up, I persevered and good I did because over time and practice they improved. Initially, they were weak and quite frustrating as they would trail off just before peaking but now I can manage to achieve quite a strong orgasm though they will never be as they were pre-SCI ....so my advice is...apply the saying 'If you don't use it you will lose it theory' and never give up.
If you want to discuss anything about this subject feel free to pm me, i can tell you which 'aids' i found useful too...
Post by kilg0retr0ut on Jul 13, 2013 13:22:45 GMT -8
Hey Lara, Your female perspective of numb parts is pretty much Identical to how it went for me. First six months I was focused on physical return and the ability to walk. Had no interest with all the bowel/bladder stuff going on. Then when down at Maryfreebed ( a rehab hospital in Michigan) I had a doctor ask if I was getting erections. I thought I could, and checking it seemed I could get a semi-erection. Since it was lacking in feeling we thought without a comdom would be the best way to start. Ouch! Well I got penetration, but the pain on one side was horrible, anyways later I found with a condom the pain was less intense. I couldn't achive any kind of orgasm for about six month's and not because of not trying, when I did I almost missed it. It was barely a tickle. With alot of practice and a little blue pill, things have gotton much better. I had to learn that mental and visual stimulation got me there. Still don't get there every time but at least my wife doesn't seem to mind me trying:) I just now after three years am able to tell if I'm in, thats why the mental is so important.
L4/5 CES
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Hey Lara, Your female perspective of numb parts is pretty much Identical to how it went for me. First six months I was focused on physical return and the ability to walk. Had no interest with all the bowel/bladder stuff going on. Then when down at Maryfreebed ( a rehab hospital in Michigan) I had a doctor ask if I was getting erections. I thought I could, and checking it seemed I could get a semi-erection. Since it was lacking in feeling we thought without a comdom would be the best way to start. Ouch! Well I got penetration, but the pain on one side was horrible, anyways later I found with a condom the pain was less intense. I couldn't achive any kind of orgasm for about six month's and not because of not trying, when I did I almost missed it. It was barely a tickle. With alot of practice and a little blue pill, things have gotton much better. I had to learn that mental and visual stimulation got me there. Still don't get there every time but at least my wife doesn't seem to mind me trying:) I just now after three years am able to tell if I'm in, thats why the mental is so important.
Thank-you for explaining how CES affected your sexual dysfunction. These posts really do help others understand this issue better. I find the similarities interesting.
Was the pain you felt during penetration due to hypersensitivity? That would maybe explain why it is more comfortable to wear a condom? I agree when you say it has to be a lot of mental and visual...but to be honest whatever helps us get there is all good to me...plus it sounds like you have an understanding partner too
Ladies, do a search for Dr. Marca Lipski's work at Kessler Inst. She may be down at Shepherd's in Atlanta now. I know her and am familiar with her work, as I have been an inpatient and outpatient at Kessler. The whole sensation issue has been under researched and the docs have little to add. Believe it or not, due to Dr. Sipski, and her colleague (I forget his name), there is much more research related to females than males in this area. Female/male, it doesn't matter. This is one of the major difficulties with SCI. We all complain, but no one seems to listen. For sure, incompletes are going to have better success than completes, but Sipski seems to have found an alternate path to sensation for women through the vagus nerve.
Ladies, do a search for Dr. Marca Lipski's work at Kessler Inst. She may be down at Shepherd's in Atlanta now. I know her and am familiar with her work, as I have been an inpatient and outpatient at Kessler. The whole sensation issue has been under researched and the docs have little to add. Believe it or not, due to Dr. Sipski, and her colleague (I forget his name), there is much more research related to females than males in this area. Female/male, it doesn't matter. This is one of the major difficulties with SCI. We all complain, but no one seems to listen. For sure, incompletes are going to have better success than completes, but Sipski seems to have found an alternate path to sensation for women through the vagus nerve.
Thankyou for your post and information. Its an important topic and seems little mentioned when it comes to medical practitioners.
When my doctor was concerned that I may have been suffering with CES at the time of it's onset she told me to look out for peeing and not feeling myself that I was. This actually happened several days after my first patch of numbness. I called to tell her and she wasn't interested. Now I know that this was the onset of my sexual dysfunction.