Inspired Spinal Cord Injury Support Forum

annev308
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Going to the Spinal Clinic at Mayo Feb 21, 2017 16:58:36 GMT -8 via Inspired Mobile

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Post by annev308 on Feb 21, 2017 16:58:36 GMT -8

TJ, completely and entirely FWIW (quite possibly nothing!) my (relatively small) syrinxes were caused by post-traumatic tethering aka adhesive arachnoiditis aka scar tissue (all depends on which doctor you asked!) that was so dense there was no CSF exchange above and below, and it ran 8 vertebrae long. I had it removed (twice) with good results. I didn't have any cauda equina involvement - I don't know how much trickier that makes things.

I hope you're doing well and recovering from what I am sure was a lot to take in. Best wishes.

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tj
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Going to the Spinal Clinic at Mayo Feb 22, 2017 5:52:44 GMT -8

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Post by tj on Feb 22, 2017 5:52:44 GMT -8

Thank you for your reply Annev308, I'm still waiting for my Dr's full review of all test results. I will know more then. I was already told that no surgery would help just from what the MRI had shown, and they also said the only thing I could hope for would be stem cell research to advance farther because that would be my best hope. At least I will know after all of this where things stand and will be more able to plan accordingly. Thanks for your concern and kind words , I hope that all is going well for you. ..

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tj
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Going to the Spinal Clinic at Mayo Feb 23, 2017 17:50:49 GMT -8

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Post by tj on Feb 23, 2017 17:50:49 GMT -8

I received a letter from the Dr's at Mayo today, it says that I have Arachnoiditis and the Cauda equina nerve roots are involved at the L2-L3 levels plus at the L4-L5 levels and through the L5-S1and S2-S3 levels , it also states that there is no cyst so surgery is not an option, what was thought to be a cyst is all scar tissue and fibrous material. I said that I would keep you informed about the results and this is it. Thank you all for your encouragement and support.

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tetra Advanced Member Posts: 815 Post Likes Received: 942 Date Joined: November 2016 Injury: C5-7 Incomplete Date Injured: 5/28/2008 Member is: Offline Send PM	Going to the Spinal Clinic at Mayo Feb 23, 2017 18:47:12 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by tetra on Feb 23, 2017 18:47:12 GMT -8 Good luck adapting to this diagnosis.
	tj likes this I step in the water, but the water has moved on...

tj
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Going to the Spinal Clinic at Mayo Feb 25, 2017 20:39:57 GMT -8

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Post by tj on Feb 25, 2017 20:39:57 GMT -8

I will do just as I have done before the diagnosis, I will take it one day at a time and keep people on keeping on. There's no other choice, I Dan now plan and know what is ahead and keep on going. Nothing will stand in my way , it may just slow me down a bit.

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DJ
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Going to the Spinal Clinic at Mayo Mar 9, 2017 4:25:34 GMT -8

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Post by DJ on Mar 9, 2017 4:25:34 GMT -8

Feb 23, 2017 17:50:49 GMT -8 tj said:

I received a letter from the Dr's at Mayo today, it says that I have Arachnoiditis and the Cauda equina nerve roots are involved at the L2-L3 levels plus at the L4-L5 levels and through the L5-S1and S2-S3 levels , it also states that there is no cyst so surgery is not an option, what was thought to be a cyst is all scar tissue and fibrous material. I said that I would keep you informed about the results and this is it. Thank you all for your encouragement and support.

Thanks for the update Tj. Wow, not the news you wanted to hear eh? It's good that you've been coping with it well (at least from what I can see). I know it's not easy to find out about this but you gotta keep moving forward and work towards making yourself stronger!

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tj Advanced Member Posts: 388 Post Likes Received: 500 Date Joined: October 2016 Injury: Chronic Arachnoiditis L2 through S3 Date Injured: 1976 Member is: Offline Send PM	Going to the Spinal Clinic at Mayo Mar 10, 2017 16:15:06 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by tj on Mar 10, 2017 16:15:06 GMT -8 Thanks DJ

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Going to the Spinal Clinic at Mayo

Post by annev308 on Feb 21, 2017 16:58:36 GMT -8

Post by tj on Feb 22, 2017 5:52:44 GMT -8

Post by tj on Feb 23, 2017 17:50:49 GMT -8

Post by tetra on Feb 23, 2017 18:47:12 GMT -8

Post by tj on Feb 25, 2017 20:39:57 GMT -8

Post by DJ on Mar 9, 2017 4:25:34 GMT -8

Post by tj on Mar 10, 2017 16:15:06 GMT -8

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