Inspired Spinal Cord Injury Support Forum

DJ
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Mayo Clinic Doing Epidural Stimulation Trials Apr 3, 2017 2:48:48 GMT -8

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Post by DJ on Apr 3, 2017 2:48:48 GMT -8

I'm sure most of you are aware of the promising epidural stimulation research that's been happening the last few years. It looks like Mayo Clinic is now doing trials as well!

Watch the video here - video.startribune.com/study-uses-epidural-stimulation-to-aid-people-with-spinal-cord-injuries/417810573/

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vintage Advanced Member Posts: 2,576 Post Likes Received: 1,757 Date Joined: November 2016 Injury: T9 incomplete Date Injured: March 15, 2014 Member is: Offline Send PM	Mayo Clinic Doing Epidural Stimulation Trials Apr 3, 2017 9:16:57 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by vintage on Apr 3, 2017 9:16:57 GMT -8 It doesn't give anything about his level or severity of injury, does it? At least, not that I could find without doing more searches.

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Mayo Clinic Doing Epidural Stimulation Trials Apr 3, 2017 10:27:06 GMT -8

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Post by califanna on Apr 3, 2017 10:27:06 GMT -8

Apr 3, 2017 2:48:48 GMT -8 DJ said:

I'm sure most of you are aware of the promising epidural stimulation research that's been happening the last few years. It looks like Mayo Clinic is now doing trials as well!

Watch the video here - video.startribune.com/study-uses-epidural-stimulation-to-aid-people-with-spinal-cord-injuries/417810573/

The more researchers looking into this problem the faster they might find a cure or at least a way to bypass the damaged nerves. I am excited for the next generation as they might actually be able to get out of their wcs.

Mayo Clinic presented at W2W last year:
spinalpedia.com/blog/2016/11/w2w-symposium-2016-epidural-stimulation/

An article by Mayo regarding their research:
www.mayoclinic.org/medical-professionals/clinical-updates/physical-medicine-rehabilitation/intraspinal-stimulation-shows-promise-for-restoring-function-after-spinal-cord-injury

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califanna
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Mayo Clinic Doing Epidural Stimulation Trials Apr 3, 2017 10:45:51 GMT -8

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Post by califanna on Apr 3, 2017 10:45:51 GMT -8

Apr 3, 2017 9:16:57 GMT -8 vintage said:

It doesn't give anything about his level or severity of injury, does it? At least, not that I could find without doing more searches.

From the video, I can guess that his level of injury is around the thoracic region? The doctor does not say exactly where it is located.

Inspiration comes and goes but when it arrives, oh how I cherish it.

tj Advanced Member Posts: 388 Post Likes Received: 500 Date Joined: October 2016 Injury: Chronic Arachnoiditis L2 through S3 Date Injured: 1976 Member is: Offline Send PM	Mayo Clinic Doing Epidural Stimulation Trials Apr 3, 2017 18:37:16 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by tj on Apr 3, 2017 18:37:16 GMT -8 I wish that they would have asked me to take part in the trial. I was just up there 6 weeks ago.
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vintage
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Mayo Clinic Doing Epidural Stimulation Trials Apr 4, 2017 2:45:59 GMT -8

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Post by vintage on Apr 4, 2017 2:45:59 GMT -8

Did it say if the cord was completely severed? Did he already have some movement? Yes, that would really be wonderful,...to be able to raise and lower the leg and get b&b back. But I would like to know more about where they put the stimulator device. Is it outside of the spinal cord?

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califanna
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Mayo Clinic Doing Epidural Stimulation Trials Apr 4, 2017 10:53:38 GMT -8

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Post by califanna on Apr 4, 2017 10:53:38 GMT -8

Apr 3, 2017 18:37:16 GMT -8 tj said:

I wish that they would have asked me to take part in the trial. I was just up there 6 weeks ago.

tj, age has a lot to do with it. When I was in my 30s, I was a test subject numerous times but as I got older the calls stopped coming. Now the researchers are focused on how I am handling getting older with a spinal cord injury. How it affects me psychologically and physically?

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Inspiration comes and goes but when it arrives, oh how I cherish it.

annev308 Junior Member Posts: 70 Post Likes Received: 91 Date Joined: December 2016 Member is: Offline Send PM	Mayo Clinic Doing Epidural Stimulation Trials Apr 28, 2017 6:17:40 GMT -8 via Inspired Mobile Quote Select Post Deselect Post Link to Post Back to Top Post by annev308 on Apr 28, 2017 6:17:40 GMT -8 University of Kentucky Lousiville is recruiting for e-stim trials.
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tetra
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Mayo Clinic Doing Epidural Stimulation Trials Apr 28, 2017 6:33:08 GMT -8

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Post by tetra on Apr 28, 2017 6:33:08 GMT -8

Apr 4, 2017 10:53:38 GMT -8 califanna said:

Apr 3, 2017 18:37:16 GMT -8 tj said:

I wish that they would have asked me to take part in the trial. I was just up there 6 weeks ago.Now the researchers are focused on how I am handling getting older with a spinal cord injury. How it affects me psychologically and physically?

Gee, how does it affect us as we age? Just feeling more wunnerful about it every day!

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I step in the water, but the water has moved on...

califanna Member Posts: 190 Post Likes Received: 263 Date Joined: December 2016 Injury: Spinal Cord Injured T-10 Date Injured: 1994 Member is: Offline Send PM	Mayo Clinic Doing Epidural Stimulation Trials Apr 28, 2017 8:38:33 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by califanna on Apr 28, 2017 8:38:33 GMT -8 Apr 28, 2017 6:17:40 GMT -8 annev308 said: University of Kentucky Lousiville is recruiting for e-stim trials. What is the age limit?
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vintage Advanced Member Posts: 2,576 Post Likes Received: 1,757 Date Joined: November 2016 Injury: T9 incomplete Date Injured: March 15, 2014 Member is: Offline Send PM	Mayo Clinic Doing Epidural Stimulation Trials Apr 28, 2017 10:07:09 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by vintage on Apr 28, 2017 10:07:09 GMT -8 Apr 28, 2017 6:33:08 GMT -8 tetra said: Apr 4, 2017 10:53:38 GMT -8 califanna said: Gee, how does it affect us as we age? Just feeling more wunnerful about it every day! Lol.
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Mayo Clinic Doing Epidural Stimulation Trials Apr 29, 2017 14:18:56 GMT -8 via Inspired Mobile

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Post by annev308 on Apr 29, 2017 14:18:56 GMT -8

UK Louisville has multiple trials going, both NMES and Epidural Stim.

The age range posted for the implant trial is 18-75. The link is: clinicaltrials.gov/ct2/show/NCT02339233?term=University+kentucky+spinal+cord+injury&recr=Open&rank=3

The age range for the NMES trial is 18-58 and the PI is at Kessler. There are constraints by weight and height also. The link is: clinicaltrials.gov/ct2/show/NCT02309983?term=University+kentucky+spinal+cord+injury&recr=Open&rank=7.

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DJ
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Mayo Clinic Doing Epidural Stimulation Trials Apr 30, 2017 7:50:52 GMT -8

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Post by DJ on Apr 30, 2017 7:50:52 GMT -8

Apr 29, 2017 14:18:56 GMT -8 annev308 said:

UK Louisville has multiple trials going, both NMES and Epidural Stim.

The age range posted for the implant trial is 18-75. The link is: clinicaltrials.gov/ct2/show/NCT02339233?term=University+kentucky+spinal+cord+injury&recr=Open&rank=3

The age range for the NMES trial is 18-58 and the PI is at Kessler. There are constraints by weight and height also. The link is: clinicaltrials.gov/ct2/show/NCT02309983?term=University+kentucky+spinal+cord+injury&recr=Open&rank=7.

The one at University of Kentucky Louisville is being conducted by Dr. Susan Harkema. She's one of the first to discover this treatment and has had very promising results! If anyone here does participate in this trial they'd be very lucky.

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Mayo Clinic Doing Epidural Stimulation Trials

Post by DJ on Apr 3, 2017 2:48:48 GMT -8

Post by vintage on Apr 3, 2017 9:16:57 GMT -8

Post by califanna on Apr 3, 2017 10:27:06 GMT -8

Post by califanna on Apr 3, 2017 10:45:51 GMT -8

Post by tj on Apr 3, 2017 18:37:16 GMT -8

Post by vintage on Apr 4, 2017 2:45:59 GMT -8

Post by califanna on Apr 4, 2017 10:53:38 GMT -8

Post by annev308 on Apr 28, 2017 6:17:40 GMT -8

Post by tetra on Apr 28, 2017 6:33:08 GMT -8

Post by califanna on Apr 28, 2017 8:38:33 GMT -8

Post by vintage on Apr 28, 2017 10:07:09 GMT -8

Post by annev308 on Apr 29, 2017 14:18:56 GMT -8

Post by DJ on Apr 30, 2017 7:50:52 GMT -8

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