Dens Axis

I can't speak directly to the issue you're experiencing (my injury was thoracic) or to the posting vintage tracked down, but I have had considerable experience with adhesive arachnoiditis/arachnoid cysts/scar tissue/post-traumatic tethering/syringomyelia/syrinxes, including two rounds of (successful) surgery and expansion duraplasty. I don't know where you're located, but if you do have syrinxes, there is a clinical study going on at NIH. Alternately, Scott Falci is a neurosurgeon in Denver who does a lot of work with/on folks who have tethering. I'm not sure if he's still actively operating, but Barth Green at UM Neurology/Jackson Memorial was one of the pioneers of post-traumatic detethering.

I had a very peculiar constellation of symptoms in the year leading up to my diagnosis and first surgery and it was stressful and confusing. Best wishes for a satisfactory outcome.

Dear friends, thank you for your support.
These are great ideas where to continue research.


vintage ,

"They know it's a common occurance while simutaneously ignoring the fact it's happening and have no practical means to combat the effects of the problem, let alone the actual problem itself."
That's exactly what they are doing.


annev308 ,

I live in Austria. So trying to get an appointment is complicated at least. But good to know that there is someone who I can address to.


kilg0retr0ut ,

thank you anyway.