My daughter, 20, broke T12 and chipped L1 in an accident a month ago. After surgery and 2 1/2 weeks in a rehab hospital she is ready to come home, except for one thing. She just cannot get the hang of cathing herself. This is completely understandable as even some nurses/techs can't do it because her meatus is very small and hidden. And because of her injury she is barely able to reach to do it.
I just started watching as the nurses do it, and I can't see it either, so I'm not sure I'll be able to cath her at home either, let alone be there every 4 hours since I work.
She has made tremendous improvements in walking and is fairly mobile, although with weakness in her legs, so she is lucky in that regard. She's doing the bowel program OK. It's just the cathing at this point and I just don't know how she will be able to cath herself and be at home. Until this week her bladder was unable to release any urine on its own, but is now doing so (although she can't control it) but a lot is left behind.
Hi Barbalot. Welcome. I was taught to cath while in the hospital after my accident. (Actually, I already knew how to cath, but that was pre-SCI.) My spasticity made it extremely difficult. Later, a Foley was put in. Supposedly it was reversable, but in truth it wasn't. After ten months with a Foley, full-time diapers were necessary. But I find that getting that Foley out of me has given me a life without urinary tract infections. Are you fairly sure that your daughter has a lot of urine left behind? If so, she will easily get a urinary tract infection. That small amout of retained urine invites bacteria. I have no solution, just lots of empathy.
if she is like me she will find a way depending on her abilities. I couldn't cath myself well when I left the hospital, but after doing it a few times I figured out a way for me to control with the use of only one hand at the time. she will figure it out and as time passes with gained abilities it will become easier. welcome barb
It took me a while to learn to do IC. my hands were badly impaired as a C-5-7 quad and even my carers had trouble finding the hole, at times. My anatomy is, shall we say, confusing. After perhaps 3 months I was no longer intimidated by it, but I often missed the hole. Using a mirror was impossible- I slowly learned to do it by feel but after 9 years i STILL get it wrong sometimes. Being female can be very challenging for this.
Your daughter's injury is very recent still. Lend her your confidence- 95% of us do finally master it. Sure, she is less flexible but over time she will find new ways to move. Most injuries do not even stabilize fo many months. Almost all improve. In the USA we get rushed through rehab at a rate that is stupid. Often the swelling around the cord has not reduced yet so we do not know what function will return. I learned more on-line than i did in rehab, and youtube still teaches me things. You and your family have every reason to be confident.
Thanks for your responses. She is finally home today, a month after the accident. She is terrified of cars now and saw a psychologist in the hospital and took Ativan for the ride, but it was still bad. She has slept most of the afternoon but managed to cath herself on the first try, so that's reason for celebration around here!
Also while I was sure the first hospital ( which failed to give us discharge papers) said it was a T12 fracture, the rehab hospital said L1. I'm not sure how much difference it makes, though.
Thanks for your responses. She is finally home today, a month after the accident. She is terrified of cars now and saw a psychologist in the hospital and took Ativan for the ride, but it was still bad. She has slept most of the afternoon but managed to cath herself on the first try, so that's reason for celebration around here!
Also while I was sure the first hospital ( which failed to give us discharge papers) said it was a T12 fracture, the rehab hospital said L1. I'm not sure how much difference it makes, though.
that is similar to what happened to me, they told me different areas of my spine were affected, 1st it was c4, then another day they said c5, then another day it was c3, so I'm not sure exactly which are really affected because it wont change anything with regard my recovery, still frustrating nonetheless. good news with the cathing success.
The main point of interest is the cord damage and at what level. At a t12 to L1 worst case a transected cord ( cut in two) she can still use all the functions of her upper body. (belly button upwards) Cathing should not be a problem. If Asia score is higher B, C and D it gets much nearer to normality.