Inspired Spinal Cord Injury Support Forum

DJ
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More Great Epidural Stimulation News Feb 19, 2018 17:06:04 GMT -8

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Post by DJ on Feb 19, 2018 17:06:04 GMT -8

Now that the FDA has approved epidural stimulation testing for people with spinal cord injuries, it'll only be a matter of time before before the treatment is available to us somewhere near home. In the meantime, the treatment is being offered in Thailand. I was very skeptical about but I remember hearing about this back in 2016 when a quadriplegic from Canada went it to do the treatment -

Today, the University of British Columbia (UBC) a very reputable Canadian university posted this article/video about that very same patient who went to Thailand for the treatment back in 2016 and it seems like he's had some significant life improving changes! Check out the article here - news.ubc.ca/2018/02/19/electrical-implant-could-improve-daily-activities-for-people-with-spinal-cord-injuries-study/

More info on FDA approval to test epidural stimulation for spinal cord injuries - www.christopherreeve.org/about-us/press-releases/fda-approves-feasibility-study-to-test-epidural-stimulation-for-spinal-cord-injury

I knew epidural stimulation would be promising the day I heard about it back 4-5 years ago and I'm happy to see that lots of research is still getting done for it with promising results. Never give up hope, we're getting closer!

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vintage
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More Great Epidural Stimulation News Feb 19, 2018 17:48:35 GMT -8

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Post by vintage on Feb 19, 2018 17:48:35 GMT -8

Here’s the go fund me page. He needs $82,000 US for the treatment. I doubt the doctors will be beating the bushes trying to find me so they can help me any time soon.
www.gofundme.com/isaac_needs_help

It says he is quadraplegic, paralyzed from his “upper chest” down. But his need for epidural stimulation is urgent because,...”The inability to control his blood pressure has taken a toll on Isaac’s body, and he does not think that he can stay alive much longer without help.”

DJ
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More Great Epidural Stimulation News Feb 20, 2018 4:06:28 GMT -8

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Post by DJ on Feb 20, 2018 4:06:28 GMT -8

Feb 19, 2018 17:48:35 GMT -8 vintage said:

Here’s the go fund me page. He needs $82,000 US for the treatment. I doubt the doctors will be beating the bushes trying to find me so they can help me any time soon.
www.gofundme.com/isaac_needs_help

It says he is quadraplegic, paralyzed from his “upper chest” down. But his need for epidural stimulation is urgent because,...”The inability to control his blood pressure has taken a toll on Isaac’s body, and he does not think that he can stay alive much longer without help.”

I've spoken to staff in the treatment facility in the past regarding treatment costs and it is high up there. Looks like they raised the money some other way for their treatment since the GoFundMe page only brought in under $4000.

The claims of him not being able to live much longer because of his inability to regulate blood pressure is also resonable since he struggles with autonomic dysreflexia (AD), a condition which can be deadly. I've experienced severe AD about 3-4 in my 6+ years of being injured and let me tell you that I'd rather be dead than to feel what I feel during a severe episode of AD. Thankfully for me I've always had people around when it's happened and we were able the find the cause of it fairly quickly but if I was alone and couldn't get to the phone to dial 911, it'd be a completely different story. One that I wouldn't be here to write about.

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tetra Advanced Member Posts: 815 Post Likes Received: 942 Date Joined: November 2016 Injury: C5-7 Incomplete Date Injured: 5/28/2008 Member is: Offline Send PM	More Great Epidural Stimulation News Feb 20, 2018 7:58:58 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by tetra on Feb 20, 2018 7:58:58 GMT -8 Each treatment, however incremental, can be very useful to someone. This person reports better blood pressure function, a critical improvement for him. Good.
	DJ likes this I step in the water, but the water has moved on...

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	More Great Epidural Stimulation News Feb 21, 2018 14:14:36 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Feb 21, 2018 14:14:36 GMT -8 It's always reassuring to hear some positive news, the FDA don't always get good press but it's so good to hear that they have approved this treatment.
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thelper New Member Posts: 1 Reputation: 0 Likes Date Joined: May 2018 Member is: Offline Send PM	More Great Epidural Stimulation News Jun 4, 2018 21:29:35 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by thelper on Jun 4, 2018 21:29:35 GMT -8 I've read a lot of their blog post, testimonial and such but didn't find much or any actual progresses on its main function. Did anyone have been in contact with them or any of their patient before?

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More Great Epidural Stimulation News

Post by DJ on Feb 19, 2018 17:06:04 GMT -8

Post by vintage on Feb 19, 2018 17:48:35 GMT -8

Post by DJ on Feb 20, 2018 4:06:28 GMT -8

Post by tetra on Feb 20, 2018 7:58:58 GMT -8

Post by Lαrα on Feb 21, 2018 14:14:36 GMT -8

Post by thelper on Jun 4, 2018 21:29:35 GMT -8

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