Hi Steve. Yes, nursing homes are garbage. If you are in Texas, as I am, they are very very garbage. The diference in my situation and your Dad’s is that I’m a para and he’s a quad. It took me a year and a half to fight my way out of nursing homes and get back to my own home. What was holding me up (well, one of the things that was holding me up) was that in those first 2 1/2 months in the hospital, I hadn’t been able to successfully transfer “without assistance” from the bed to the wheelchair, and vice-versa. That sent me to nursing homes,...do not pass go, do not collect $100. After I got to nursing homes, I was thereafter forbidden to transfer to my wheelchair, and back, unassisted. Crazy system...because since I couldn’t do it in the beginning, nobody ever did another assessment on me in the next year and seven months to see if I could transfer. Finally, I got back into my home.
I’ve seen videos where quad men can run a Hoyer lift to get themselves out of bed. The one I best remember couldn’t use his fingers, but he seemed to be able to use his hands a little. What level is your Dad? We need so much money for the adequate equipment. They put men on the moon, but equipment to help us “have a life” apparently seems too lavish to those in charge.
Post by electricguy on May 16, 2018 4:54:00 GMT -8
Unfortunately, one of the biggest problems with caring for and assisting any family member with a disability, ♿ (is the cost 💲💲💲 of supplies and adaptive equipment), not to mention any professional care, i.e. nursing, personal assistant. I don't say this to discourage you, just to let you know the truth of the matter.
Your father is lucky to have someone who is willing and hopefully able to help him.
Being paralyzed from the shoulders down, and in a nursing home. I can tell you it is much easier to get into a nursing home that it is to get out of a nursing home. I truly hope that we can be of assistance. 🤞🙏
My child has the sci, I can't give any advice other than seek out as much help as you can and network with as many people as you can, I have found Cerebral palsy people have been a huge resource for my son and I.. Also don't confine yourself to conventional solutions in his care, think outside the box as much as possible and NEVER take NO for an ABSOLUTE answer.