Inspired Spinal Cord Injury Support Forum

garciia20
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UTI? Jun 16, 2018 17:13:52 GMT -8 via Inspired Mobile

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Post by garciia20 on Jun 16, 2018 17:13:52 GMT -8

question, I’ve been getting disreflexic as soon as I get the urge to cath. As soon as I get that little tingle that tells me it’s time the excruciating headache starts instantly, blood pressure rises as well. As soon as I cath it slowly goes back down. I cath every 4-6 hours or if I feel I gotta go (which ever comes first) for roughly 500cc. Any suggestions on what could be causing this sudden onset of dysreflexia? Wish I had a folley catheter laying around at this moment

vintage
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UTI? Jun 16, 2018 21:09:51 GMT -8

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Post by vintage on Jun 16, 2018 21:09:51 GMT -8

This suggestion of mine only addresses the headache, Garciia, not the dysreflexia. I take L- ornithine for any urinary-related headache. The L-ornithine neutralizes ammonia in the brain and (when that is the problem) gets rid of the headache like nothing else can.

Search “urea ammonia ornithine brain” for lots of info. Here is one link of many.
www.alchemistlab.com/2012/08/treating-high-ammonia/

More...
“Ammonia is a strong neurotoxin and even worse it is produced constantly in our intestines by bacteria decomposing protein in food. Ammonia is also produced in most cells in our bodies as metabolic waste so if there is some defect in detoxification of ammonia there may be a whole set of problems. Especially brain disorders since brain is very sensitive to ammonia toxicity.”
www.psoriasisdietplan.com/2016/03/ammonia-toxicity-how-to-resolve-brain-fog-and-anxiety-with-l-ornithine/

mikeq
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UTI? Jun 17, 2018 5:04:34 GMT -8

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Post by mikeq on Jun 17, 2018 5:04:34 GMT -8

Regarding your bladder and dysreflexia. It is important to drain your bladder before it gets full enough to cause dysreflexia. Sounds like 500 mL is a little too much for you. Try draining more often. If your blood pressure is high enough to cause headaches, then it is too high. No amount of medication will take away the pain caused by the absurdly high blood pressure. The source of your pain is obviously the blood pressure, caused by too much urine in your bladder. Maybe you should consider a suprapubic catheter.

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catheterboy
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UTI? Jun 17, 2018 6:19:30 GMT -8

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Post by catheterboy on Jun 17, 2018 6:19:30 GMT -8

I agree totally with the above. I could not get used to self Cathing and could not cope with it. I went to an indwelling catheter and although it had its own problems I preferred it. I had an SP for over three years and would highly recommend it. I am urehthraly catheterised at the moment again but I know in the future I will probably have the suprapubic operation again but want to see if I can stay well with it urehthraly inserted for as long as possible. Hope you sort out what's best for you soon.

garciia20
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UTI? Jun 17, 2018 20:22:13 GMT -8 via Inspired Mobile

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Post by garciia20 on Jun 17, 2018 20:22:13 GMT -8

Jun 17, 2018 5:04:34 GMT -8 mikeq said:

Regarding your bladder and dysreflexia. It is important to drain your bladder before it gets full enough to cause dysreflexia. Sounds like 500 mL is a little too much for you. Try draining more often. If your blood pressure is high enough to cause headaches, then it is too high. No amount of medication will take away the pain caused by the absurdly high blood pressure. The source of your pain is obviously the blood pressure, caused by too much urine in your bladder. Maybe you should consider a suprapubic catheter.

I’ve been cathing for over a year and I’ve never had dysreflexia issues due to bladder. 500 has never been an issue before. This has been going on since Friday night and the headaches can get excruciating

vintage
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UTI? Jun 18, 2018 1:08:35 GMT -8

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Post by vintage on Jun 18, 2018 1:08:35 GMT -8

garciia20, please get some Ornithine. If your headache is from having ammonia in your brain, this will neutralize the ammonia and stop the pain. I keep this product on my bedside table. It also helps with sleep.
drclarkstore.com/ornithine-vegetarian-500-mg-100-tapioca-capsules/

“...L-Ornithine is particularly helpful for removing ammonia from the brain, because the brain does not contain the ornithine-related enzyme necessary to render ammonia harmless by changing it into urea.
...Eating celery or drinking celery juice daily will help kidney function, and also electrolyte balance. Celery also works to removes excess uric acid from the blood, a further aid to kidney function.”
nutristart.com/ammonia-toxicity-part-2/

crappler Junior Member Posts: 76 Post Likes Received: 128 Date Joined: November 2016 Injury: C8 Complete Date Injured: Oct 15, 1989 Member is: Offline Send PM	UTI? Jun 18, 2018 4:25:05 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by crappler on Jun 18, 2018 4:25:05 GMT -8 Bladder infection, bladder infection, bladder infection. I observe those symptoms to a tee when I have a UTI coming on. Are you still having problems? My urologist prescribes me Cipro to keep on hand for cases just like this.

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	UTI? Jun 20, 2018 3:51:02 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Jun 20, 2018 3:51:02 GMT -8 garciia20, it sounds like a bladder infection to me too. Get a urine sample in ASAP so that the doctor can prescribe you antibiotics if needed. In the meantime, cath more frequently so that you won’t have to experience the dysreflexia.

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UTI?

Post by garciia20 on Jun 16, 2018 17:13:52 GMT -8

Post by vintage on Jun 16, 2018 21:09:51 GMT -8

Post by mikeq on Jun 17, 2018 5:04:34 GMT -8

Post by catheterboy on Jun 17, 2018 6:19:30 GMT -8

Post by garciia20 on Jun 17, 2018 20:22:13 GMT -8

Post by vintage on Jun 18, 2018 1:08:35 GMT -8

Post by crappler on Jun 18, 2018 4:25:05 GMT -8

Post by DJ on Jun 20, 2018 3:51:02 GMT -8

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